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3 weeks in and I’m struggling with everything!

CornishKate

Well-Known Member
Messages
66
Type of diabetes
LADA
Treatment type
Insulin
Hi everyone, I was diagnosed ‘probably’ T2 by my GP 3 weeks ago and started 500mg Metformin for 2 weeks and then doubled them a week ago. GP made me an app with the practice diabetic nurse for the 12th of April and basically said in the meantime cut back sugar, carbs and dairy! I’d already lost a few pounds on diagnosis and have since lost probably another 4lb (I have no weight to lose) My symptoms have improved only about 10%. My nighttime dry mouth is now much worse and the morning fatigue and heart racing hasn’t improved, although this generally goes with breakfast and a tablet. I’m thinking of ringing the GP in the morning or am I expecting too much too soon? Any help appreciated! Julie
 
Hi everyone, I was diagnosed ‘probably’ T2 by my GP 3 weeks ago and started 500mg Metformin for 2 weeks and then doubled them a week ago. GP made me an app with the practice diabetic nurse for the 12th of April and basically said in the meantime cut back sugar, carbs and dairy! I’d already lost a few pounds on diagnosis and have since lost probably another 4lb (I have no weight to lose) My symptoms have improved only about 10%. My nighttime dry mouth is now much worse and the morning fatigue and heart racing hasn’t improved, although this generally goes with breakfast and a tablet. I’m thinking of ringing the GP in the morning or am I expecting too much too soon? Any help appreciated! Julie

Welcome to the forums @Mrs Allport ,

Do you know what your current blood glucose levels are?

Edited:- If you have uncontrolled weight loss and dry mouth, are you also weeing more frequently than normal?

I'll ask @daisy1 to give you some info.
 
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Obviously, we can't give you direct medical advise, but I'll make a few points with the info you have given us:
"Probably" seems a standard caveat on initial diagnosis as diabetes is rarely a clear-cut thing. Over the course of your next few appointments, it will become more solid (or possibly even change).
GPs are notoriously behind on diabetes training (I have a friend who is a GP and she's just done a refresher course some 20 years after leaving medical school). Nutritionally, if it is diabetes, then your target is to lower the glycemic index of what you eat, because that relates to the amount of glucose you will produce (and how fast). As you cannot metabolise glucose quickly enough, you need to spread out the time of which your intestines will take glucose from food and into your blood.
Low glycemic means: as little as possible sugars (including processed and fruit sugars) and simple starches (wheat, starchy root vegetables). The more complex the carbohydrates in your food, the longer it takes to break down to glucose. Fats don't really have a bearing on this. The reason doctors will often ask you to cut down on them is because there is still a camp of nutritionalists who link dietary fat to poor blood lipid profiles and therefore the risk of cardiovascular disease. However, there is an increasing body of evidential study to suggest that such a link may not be strong or exist at all, and that the fats in dairy are actually pretty good for cholesterol profile. However, that's a debate best left to somewhere else.
In the meantime, certainly keep off the sugars, have a little patience and most importantly, be firm and open with your GP. Oh, and make sure to do lots of your own research. Good luck!
 
Welcome to the forums @Mrs Allport ,

Do you know what your current blood glucose levels are?

Edited:- If you have uncontrolled weight loss and dry mouth, are you also weeing more frequently than normal?

I'll ask @daisy1 to give you some info.

No the doctor didn’t measure that, he just said the blood test was 90 and anything over 48 is diabetes. Only peeing overnight again, but daytime is normal.
 
Obviously, we can't give you direct medical advise, but I'll make a few points with the info you have given us:
"Probably" seems a standard caveat on initial diagnosis as diabetes is rarely a clear-cut thing. Over the course of your next few appointments, it will become more solid (or possibly even change).
GPs are notoriously behind on diabetes training (I have a friend who is a GP and she's just done a refresher course some 20 years after leaving medical school). Nutritionally, if it is diabetes, then your target is to lower the glycemic index of what you eat, because that relates to the amount of glucose you will produce (and how fast). As you cannot metabolise glucose quickly enough, you need to spread out the time of which your intestines will take glucose from food and into your blood.
Low glycemic means: as little as possible sugars (including processed and fruit sugars) and simple starches (wheat, starchy root vegetables). The more complex the carbohydrates in your food, the longer it takes to break down to glucose. Fats don't really have a bearing on this. The reason doctors will often ask you to cut down on them is because there is still a camp of nutritionalists who link dietary fat to poor blood lipid profiles and therefore the risk of cardiovascular disease. However, there is an increasing body of evidential study to suggest that such a link may not be strong or exist at all, and that the fats in dairy are actually pretty good for cholesterol profile. However, that's a debate best left to somewhere else.
In the meantime, certainly keep off the sugars, have a little patience and most importantly, be firm and open with your GP. Oh, and make sure to do lots of your own research. Good luck!

Thank you! A few people have said the same thing to me about the diabetic nurse being much more informed than the GP.
 
No the doctor didn’t measure that, he just said the blood test was 90 and anything over 48 is diabetes. Only peeing overnight again, but daytime is normal.

Ok so if you're getting up to pee at night then I'm thinking there's a risk that you may even be a late onset Type 1 (like me!).

Your previous blood test was probably an Hba1C test that was sent to the hospital lab? If so, your numbers were/are pretty high. (or was it the result of an instant finger prick test?)

I don't think it would hurt to have a word with your doc about the continuing weight loss, they may want to test your urine for ketones which would be another piece of the picture.
 
Ok so if you're getting up to pee at night then I'm thinking there's a risk that you may even be a late onset Type 1 (like me!).

Your previous blood test was probably an Hba1C test that was sent to the hospital lab? If so, your numbers were/are pretty high. (or was it the result of an instant finger prick test?)

I don't think it would hurt to have a word with your doc about the continuing weight loss, they may want to test your urine for ketones which would be another piece of the picture.

Hi, yes this was a blood test sent to the hospital. I’m assuming the nurse will do a thumb test when I see her next week? Thanks for your reply.
 
No the doctor didn’t measure that, he just said the blood test was 90 and anything over 48 is diabetes. Only peeing overnight again, but daytime is normal.

If that 90 was the result of an HbA1c test, and it does seem to be, then there is no "probability" about it. You are diabetic. As you were told, 48 and above is diabetic. You will be better seeing the nurse than the GP. This is the most usual approach as GPs don't have time or the expertise to look after us all. Nurses have more knowledge about diabetes, although you may receive some typical NHS dietary advice about eating carbs with every meal and low fat, which you will come to learn is very inappropriate for a Type 2 diabetic.

If you suspect your symptoms are more likely to show Type 1 than type 2, then you need to discuss all this with the nurse, and it may be wise to get an earlier appointment with either her or your GP. These things can escalate very quickly. If you start to feel ill, you need urgent medical attention and plenty of water.
 
Thank you! A few people have said the same thing to me about the diabetic nurse being much more informed than the GP.
Well, a Diabetes Specialist Nurse deals with the subject day in, day out. GPs don't.
Did your GP say what they had tested? I presume they told you your instant blood glucose level? Did they also say if they had checked 'ketone' levels (either from blood or a urine sample)? And did they take blood to be sent off for testing?
 
Hi, yes this was a blood test sent to the hospital. I’m assuming the nurse will do a thumb test when I see her next week? Thanks for your reply.

Hopefully your GP has made the correct diagnosis. But if you start feeling unwell then please seek medical assistance - do not wait for the appointment.
 
Ok so if you're getting up to pee at night then I'm thinking there's a risk that you may even be a late onset Type 1 (like me!).
Even non diabetics get up to pee in the night sometimes, I don't think it is a particular symptom of Type 1.
 
Even non diabetics get up to pee in the night sometimes, I don't think it is a particular symptom of Type 1.

Depends if it's excessive.

When coupled with un-controlled weight loss, nocturia is a classic symptom of the body's need to excrete ketones. But the OP stated she's normal during the day so hopefully I'm wrong.
 
If that 90 was the result of an HbA1c test, and it does seem to be, then there is no "probability" about it. You are diabetic. As you were told, 48 and above is diabetic. You will be better seeing the nurse than the GP. This is the most usual approach as GPs don't have time or the expertise to look after us all. Nurses have more knowledge about diabetes, although you may receive some typical NHS dietary advice about eating carbs with every meal and low fat, which you will come to learn is very inappropriate for a Type 2 diabetic.

If you suspect your symptoms are more likely to show Type 1 than type 2, then you need to discuss all this with the nurse, and it may be wise to get an earlier appointment with either her or your GP. These things can escalate very quickly. If you start to feel ill, you need urgent medical attention and plenty of water.

Thank you. Unfortunately next week was the earliest they could book a 30 minute app the diabetic nurse. But I think I’ll ring the practice tomorrow and see if I can even have a chat with someone.
 
My Hba1c was 91 at diagnosis, but I was lucky and by cutting out all those 'healthy' carbs my numbers dropped rapidly.
I don't take any notice of the advice I got to eat complex carbs - I happen to know that the complex carbs are digested by my saliva and become sugars - I did Biology and the other sciences at school and the starch to sugar experiment was one of the first ones we did - age eleven.
If you cut or the sugars and starches in the densely carbohydrate foods, concentrate on the foods which are under 11 percent carbs, then you'll at least have a chance to drop your BG levels and maybe get a good night's sleep.
 
Well, a Diabetes Specialist Nurse deals with the subject day in, day out. GPs don't.
Did your GP say what they had tested? I presume they told you your instant blood glucose level? Did they also say if they had checked 'ketone' levels (either from blood or a urine sample)? And did they take blood to be sent off for testing?


It was just one blood test the day before that was sent to the hospital, he didn’t elaborate other than to say it was 90 which definitely meant I was diabetic.
 
@Mrs Allport

Hello Mrs Allport and welcome to the Forum :) Here is the Basic Information we give to new members and I hope you will find it useful. Ask as many questions as you like and someone will help.


BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 235,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:
  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:
  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.
Take part in Diabetes.co.uk digital education programs and improve your understanding. Most of these are free.

  • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why

  • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.
 
My Hba1c was 91 at diagnosis, but I was lucky and by cutting out all those 'healthy' carbs my numbers dropped rapidly.
I don't take any notice of the advice I got to eat complex carbs - I happen to know that the complex carbs are digested by my saliva and become sugars - I did Biology and the other sciences at school and the starch to sugar experiment was one of the first ones we did - age eleven.
If you cut or the sugars and starches in the densely carbohydrate foods, concentrate on the foods which are under 11 percent carbs, then you'll at least have a chance to drop your BG levels and maybe get a good night's sleep.
The whole carb thing really confuses me!? I have switched rice and pasta to brown and already ate brown bread. Help?!
 
The whole carb thing really confuses me!? I have switched rice and pasta to brown and already ate brown bread. Help?!
I'm afraid that you are still eating carbs - the colour doesn't matter carbs become sugars and float round in your blood as you can't process them.
Most people cut our processed grains such as bread and pasta, rice etc. also remove the heavy starch veges such as potato and parsnip and concentrate on the low carb foods to find out just what they can eat and also get the most nutrition - the dense carbs have few micronutrients and although some have things added to try to prevent malnutrition, green growing things are far better able to sustain life.
 
No bread pasta rice grains at all. Eat all veg that grows above ground. Eat meat with the fat on.. Eat eggs full-fat cheese full-fat cream. Eat plenty of green leafy veg, (Not root Veg, unless your body can tolerate a small amount) Eat plenty of leafy green salad. You can have Eggs and bacon, Olive Oil, full-fat butter, coconut oil Avocado oil and Advacodo. Berries and fresh cream, not blueberries high in carbs. All meat is allowed and fish..Nothing with coated breadcrumbs on though
 
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