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Discussion in 'Reactive Hypoglycemia' started by Lamont D, Jan 15, 2015.
Noshy, your blog is AWESOME.
Thank you for sharing it.
I have to admit it wasn't easy for me to show my feelings and a lot of editing happened especially with the predictive text!
I just don't know what to do for my next one.
Update number 89!(ish!)
Have had my referral through with my chosen specialist consultant.
And it's next Thursday!
Day off work and a day out to boot!
Had my appointment with my consultant this morning.
I had to describe my diagnosis to a student endocrinologist this morning.
He gave me a question and answer session while my specialist confirmed it with the science, which I did follow.(really??)
Because of the move to Manchester, my consultant didn't have all my notes, but he was quite pleased with my progress and didn't want to see me for 6 months.
However, I have to go for more tests as part of the recognition and further understanding of the condition.
Another prolonged OGGT, then another test that involves bread and jam and comparisons to each other.
It is another step forward.
He did explain, that my local hospital had only One other Reactive Hypoglycaemia patient. He was trying to find others in the North West. To gather as much information he could. And to use it in a medical paper.
I did find something else that I'm not sure what I think.
I am on meds, a tablet called sitagliptin, this inhibits my relation to beta cells, insulin, glucose and glucagon. It stops me spiking as well, which helps. This tablet does not prevent hypos, even though because of it, control is easier.
My consultant has not come across any other meds that can prevent hypos.
I have to use diet alone, which he is pleased with my approach to it.
My control pleased him and he has asked to bring my food diary next time.
My weight dropped to 11stone 7lb, which means I'm 6lbs lighter than last time in January. (Yay!)
Another thing I found out was that the head of the pharmacy department of my local hospital objected to my consultant about my prescription of sitagliptin.
They said that there was no evidence that the drug would bring any benefit to a non diabetic/glycaemic patient.
He attributed his 'hunch' to the science of how the drug worked within the extra insulin I produce.
I'm only the guinea pig here!!
I'll let you know when my tests are happening.
"Reactive hypoglycemia symptoms improve with sitagliptin"
and same thing but direct from the researcher. It's from 2012 and only preliminary so there may be something later
Thanks for that @phoenix, I've not seen that before and I've done a lot of searching! Fascinating!
Can you do the tech thing and put it on the 'Reactive Hypoglycaemia' thread on ask a question forum please, as I have no idea how to!!!!!
I suggest you send your consultant the details of that article that @phoenix found.
He (and the head of the pharmacy dept) may find it very interesting.
Yes, good thought! I will do. I might even give him a phone call through his secretary. Though I would believe that he would have that sort of information already or something similar.
If I can remember the conversation about sitagliptin, he mentioned the pharmaceutical make up and the company's (Merck & Co.) Report on the side effects. This was over a year ago, so memory a bit foggy. But I believe he was well aware of the effects, but I'm just the guinea pig he had a success with.
He repeated his comments on having conversations with other consultants and them not recognising the condition, whilst trying to find other patients with the condition. So far in the North west between Merseyside and Manchester, only nine patients, had been diagnosed as RH. Though he was certain he would find more as he broadened his search.
He also said that RH was unique to every patient he had met and no two were the same. I suppose it must be the amount of extra insulin we produce as to when we hypo. The other patient in my local didn't have late RH, but hypo onset within 2 hours after glycaemic load.
I have been advised to eat more vegetable protein.
I have read around already and I believe I eat enough in my everyday salad with every meal(4), with the added legumes to achieve this.
He was pleased with my ketosis and my BP was normal. Good for my age!!!
No I'm not into green smoothie Brun!! (Yuk!)
Nice post, very encouraging
Had a letter from my consultant this morning,
I will post it word for word,
The names have been omitted to protect the innocent!!!!
Dear Mr Nosher,
Thank you for getting your bloods checked. Your haemoglobin A1c which is the average glucose measurement was 32mmol/mol which is very good. Your thyroid function tests were normal and total cholesterol was 4.8, triglycerides 0.8, HDL 1.42, LDL 3.0mmol/l which are acceptable. I will request your GP to do a cardio-vascular risk scoring and if that indicates that you need to be on a statin to get the cholesterol levels down he will be able to prescribe you that.
The other bloods are fine including your liver function tests and calcium levels. Hence I will advise you to continue on the sitagliptin that you are doing and see you back in the clinic in 6 months as planned.
How does that sound my friends?
Sounds great, well done.
In response to a telephone conversation with my GP. I have been advised to start taking a statin as my risk score is double what it should be!
Don't know if I want to!
Anyone comment please!
I know you like your research so have a look what Jimmy Moore has to say on the subject in youtube. He also has a blog on livinglavida lowcarb. Com and then compare to your risk score.
If your cholesterol levels are acceptable, why would you need to take a statin?? That makes no sense to me, given all the well known side effects of statins.
Cholesterol does confuse me, somewhat.
Are my levels ok?
And if my health is getting better all the time, why now and not 5, 10 years ago?
Thanks for your post.
Your decision mate, but I sure as hell wouldn't. @NoCrbs4Me reflects my opinions on the subject as well. Some people can tolerate them .... but a heap of others can't. Back in your court
I would ask your GP how they calculate the risk score and what the key indicators are to show you have double what it should be. I'd also ask what this means in real terms, ie how likely you are to die as a result of your current cholesterol level. Then you can make the decision in a fully educated fashion as to how they assess risk versus how you do it.
I took statins once for a month or two and I had side effects (muscle weakness). After I spent an entire weekend laying down as I didn't have the strength to be up I stopped taking them. It seemed like it was a few years before I felt close to normal again. I still wonder if the statins were a factor in me getting type 2.
Last year a doctor told me I needed to take statins to lower my cholesterol. Interestingly, it was only after I told her that I had been prescribed metformin by my previous doctor that she suddenly realized that I had had type 2 diabetes, since my blood tests showed non-diabetic blood glucose levels. I told her I wouldn't take statins, so she prescribed a non-statin cholesterol lowering drug. I had no intention of taking this new drug, but I looked it up on-line and found out that it does indeed lower cholesterol, but clinical trials had shown no reduction in cardiovascular events or reduction in risk of premature death. Eventually I saw a doctor that specializes in type 2 diabetes and he said I didn't need any drugs of any kind.
Anyway, according to conventional/current understanding of blood cholesterol levels, your numbers are excellent (supposedly better than mine):
The official recommendations are lower for type 2 diabetics, but you don't have diabetes.
I think I will speak to my doctor again, I don't think I'm already to take them yet. So much is going well at the moment, that I don't need the implications and complications of statins. I've done a lot of researching today, and I am more than certain that in ketosis, you don't need statins, as they affect the muscle tissue that is so important to my health.
Does that make sense?