Am I the only one who has given up?

WIZARD2013

Newbie
Messages
4
Type of diabetes
Type 1
Treatment type
Pump
Hi I have been a Type 1 Diabetic for 43 years; Keep yr Bs under control. U will b able 2 take the world on. Unless u have an infection / stressed. Lot 2 take on board.
 
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VioletViolet

Well-Known Member
Messages
408
Type of diabetes
Prediabetes
Treatment type
Diet only
WOW! Thank you all for the replies. I was seriously expecting abuse for my post but you have all been very gentle with me for which I am very grateful.

I'm not going to make replies to each reply but hopefully the following will give you all some idea of where I am and how I got here.

I am type 2 diagnosed early in 2015 when I went to the GP because of a toenail infection that the over the counter meds wouldn't shift. The "routine" blood tests showed very high blood glucose (about 14mm/l)

I had not had any of the usual symptoms of diabetes other than sleeping a lot which I put down to boredom!

Anyhow I was put on metformin. 1 a day for a week then 2 a day then 3. The only help from the GP in this time to my reports of bad side effects was "you'll get used to it". By the end of week 8 the side effects were so bad my wife called an ambulance.

As a result I was changed to metformin sr. The side effects were lessened but were still debilitating. I stuck it out for about 8 months. Complaining often to the GP. (Actually the diabetic nurse at the practice). She gave me no practical help and no sympathy at all that I had gone from fit and active to housebound in under a year.

In Dec 2015 I spoke to the doctor about the meds and the side effects. I got a fresh pack of metformin sr. After talking it over with my wife I stopped taking the meds completely.

In under 2 weeks I was fit and active again.

I had a routine blood test in Nov 2016 and was put on folic acid pills as it was low. I asked how my blood sugar was and was told no test had been done for that !! ***? It was a routine diabetic blood test. Ah well another blood test was arranged for early 2017.

This time I got the expected call back next day. My blood sugar was 12mm/l. A different nurse saw me this time and she showed some sympathy for my having given up the metformin and asked me try alogiptin.

I note this should be taken with another med but no other was prescribed. I was also given a test meter to try.

I've not been able to use the monitor as no matter how hard I stab myself I cant get a large enough drop of blood. I've got 3 readings by using blood from nose bleeds all in the range 11-12 mm/l.

During the 4 weeks on alogiptin I was sleeping a lot; over 24 hours on one occasion! I suspect this was more coma than sleep.

Any how that's where I am right now. No meds and returning to fit and active again.

Oh this post is getting very long. Sorry.

It was mentioned in some of your replies that I might be depressed. Well duh! I'm actually bi-polar and have been all my life but was not diagnosed as manic depressive until I was in my 40's. I've been put on "happy pills" 3 times in my life always with the same result.

I stop being depressed but when I go manic I go VERY manic. For example one time I thought a good short cut to get past a traffic jam would be to just drive through that wall. You get the idea; being manic and on happy pills makes me a danger to myself and others.

Other things that stop me having a good quality of life: A broken ankle in 2012 was botched when repaired. I can walk but every step is agony plus the reduced amount of motion gives me a pronounced limp. I'm often short of breath because of constant chest infections. I have difficulty shaking these off due to a low T-cell count resulting from sarcordosis in my lymphatic system. (sorry no cure or palliative meds for that).

As well as those I have food allergies to milk and eggs. Not life threatening but bad enough. That makes meals lots of fun.

There's other stuff that prevents me having what I consider a good quality of life but I'll save that for another time.

Now I'm fully aware of the dreadful consequences of diabetes. Well, along with my refusal to take meds and let the illness take its course I also intend to eschew treatment for whatever comes. I've lived for 63 years so far. Much longer than many. Now while I admit the thought of dying scares the sh*t out of me I have no fear of being dead.

Oh sorry this could get very morbid so I'll draw this post to a close.
Hello I am not really qualified to comment here as I am in the position of trying not to get diabetes rather than living with it.

I just wanted to say that what you said about death struck a chord with me. I don't have that fear either, but I am scared of complications that are totally disabling and remove all quality of life. It would be like your experiences on meds, only far worse. My fear is being physically dependent on others, the grim reaper will find me somehow , some way ;) it's the living death of severe diabetic complications that have scared me into action with diet.

You're already living with enough with complex health issues (you don't need any more!) so I hope you decide to give lchf or something similar a whirl. The people on here are a fabulous and knowledgeable source of support.

Best wishes to you :)
 

Em1981

Active Member
Messages
29
Type of diabetes
Type 2
Treatment type
Non-insulin injectable medication (incretin mimetics)
WOW! Thank you all for the replies. I was seriously expecting abuse for my post but you have all been very gentle with me for which I am very grateful.



It was mentioned in some of your replies that I might be depressed. Well duh! I'm actually bi-polar and have been all my life but was not diagnosed as manic depressive until I was in my 40's. I've been put on "happy pills" 3 times in my life always with the same result.

I stop being depressed but when I go manic I go VERY manic. For example one time I thought a good short cut to get past a traffic jam would be to just drive through that wall. You get the idea; being manic and on happy pills makes me a danger to myself and others.

When you say happy pills, what did the doc give you? Anti depressants are now known to make the manic phase worse. Mood stabilisers can be used such as Depokote. It may be worth a try.

I am sorry you are struggling so much. I can't tolerate metformin well either. I am on a low dose just 500mg of the slow release one. I have been given the Trulicity injection.

I don't know if you would be willing to try a different medication but I do feel that the potential complications from diabetes are scary and maybe if your mental health is better it may feel easier to tackle the diabetes?

I feel like saying screw it today as I feel like rubbish mentally and physically but I have young kids so I have a duty to remain as healthy as possible.
 
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