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An interesting viewpoint on trying to delay/prevent onset of Type 1 Diabetes

tim2000s

tim2000s

Expert
Retired Moderator
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8,936
Location
London
Type of diabetes
Type 1
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Other
Some of you may have seen this in the CGM in the Cloud group on facebook. It seems that a few people have taken the #wearenotwaiting ethos to trying to reduce the likelihood of onset of T1 after a trialnet marker check. The story is quite interesting, but I must state, it's a non-medically overseen trial that has been undertaken by a few members of the public.

It certainly makes for interesting reading and also raises a number of questions. I think it's worth a read, but at the same time, you should make your own mind up:

http://preventt1d.org/how-to-prevent-type-1-diabetes/
 
Quickly skimmed through it to see how long it took to find something like this:

"So we upped our supplement game again, stretching the wallet a bit"

Seems to be a standardised approach nowadays, throw money at it until it's fixed!
 
very interesting combo of supplements.
Thanks Tim.
I think, if I had a child at risk of T1 I would be looking at this in detail.
 
Brunneria said:
very interesting combo of supplements.
Thanks Tim.
I think, if I had a child at risk of T1 I would be looking at this in detail.
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I think we'd look at all avenues to prevent our children becoming diabetic.

I wonder where in the mix (if at all) this so called "cocktail" could counter the alleged stress element as a cause of T1D?
 
@GrantGam1337

Isn't it one of the parental duties to try to provide children with low stress environments?
And isn't it one of life's inevitabilities that stress happens? Just like sh$t happens?

Besides, stress is a major factor in a lot of immune issues, diseases and conditions.
And yes, nutrition can help to boost the immune system, while malnutrition can depress it.

To claim that the link above should be some kind of magic wand seems rather unrealistic.
 
Brunneria said:
@GrantGam1337

Isn't it one of the parental duties to try to provide children with low stress environments?
And isn't it one of life's inevitabilities that stress happens? Just like sh$t happens?

Besides, stress is a major factor in a lot of immune issues, diseases and conditions.
And yes, nutrition can help to boost the immune system, while malnutrition can depress it.

To claim that the link above should be some kind of magic wand seems rather unrealistic.
Click to expand...
Indeed it is @Brunneria.

The point I intended to put across, was that no potion (cocktail of supplements) can override the stress factor that we all are susceptible to.

Have I worded my post in such a way that it sounds otherwise?

Edit to add - until we know just how much of a factor stress plays in the cause/increased risk factor of developing T1D, supplements may just be an expensive form of trial and error.
 
GrantGam1337 said:
Indeed it is @Brunneria.

The point I intended to put across, was that no potion (cocktail of supplements) can override the stress factor that we all are susceptible to.

Have I worded my post in such a way that it sounds otherwise?
Click to expand...

No, you haven't, but the article isn't in any way addressing that aspect of T1 prevention. That would be a whole other approach.
 
The article is basically looking at ways to reduce markers and antibody counts, so you could infer that the event that caused the change that resulted in production of these antibodies had already happened.
 
I've a feeling that focusing on stress is probably only one piece of the pie @GrantGam1337 . Once you have the genetic/epigenetic predisposition to T1, there are a multitude of factors that could precipitate the disease. Stress may be one factor that plays a part by triggering an immune response, but many of us are of the opinion it was a virus that affected us as the timelines seem to point back to that.

Of course, most of us will never know how far down the path to T1 we were before these incidents, and it's quite possible that the reality is that the incident (stress, virus, other) pushed us over a cliff, on the edge of which we had been teetering for some time.
 
I'm going with the 'pushed us over the cliff' angle @tim2000s : D I think that things start to go,wrong way before we realise that anything is up. In retrospect, it's easy to look back and find an event around the time of diagnosis to blame.

Thank you for that interesting reading :) I can see the logic behind a lot of that, but I'm slightly dubious about some elements of the cocktail of supplements, but it's good to,see such a well-presented information page showing all that detail. Fascinating :)
 
I'm intrigued by whether, as an existing T1, it's worth trying a few of the supplements and seeing what happens, in the vein of #wearenotwaiting. Just because!

The one thing that I found disconcerting is the amount of supplements that they are taking daily. If you read down the page further there's also an interesting little snippet:

There are a couple other things I was considering doing based on the research I found in delaying Type 1 Diabetes…
  1. Doing multiple daily injections after high-carb meals to prevent blood sugars going over 140. Research shows that blood sugars over 140 will kill beta cells which we need to protect in order to prevent the onset.
  2. There is also other research that suggests having a low basal or diluted insulin administered daily can help with management of keeping blood sugars under 140.
At this point, since neither my non-T1 D daughter nor myself are going over 150 for more than a few minutes, it doesn’t look like we need to do this now but I was open to it when things looked a bit bleaker. Again, anything to prevent Type 1 Diabetes.
Click to expand...

Which suggests that what this article is really saying is, "We've just managed to turn it into much slower onset, but the reality is that we aren't really preventing T1". Now if they managed to completely remove the antibodies, that would be a whole diffferent ball game.
 
tim2000s said:
I've a feeling that focusing on stress is probably only one piece of the pie @GrantGam1337 . Once you have the genetic/epigenetic predisposition to T1, there are a multitude of factors that could precipitate the disease. Stress may be one factor that plays a part by triggering an immune response, but many of us are of the opinion it was a virus that affected us as the timelines seem to point back to that.

Of course, most of us will never know how far down the path to T1 we were before these incidents, and it's quite possible that the reality is that the incident (stress, virus, other) pushed us over a cliff, on the edge of which we had been teetering for some time.
Click to expand...
Indeed it is just one piece of the potentially HUGE pie; my rationale for focusing on the stress element is due to it being a factor which is not addressed in the article.

Interesting reading all the same, once again pushing for the answer we're patiently waiting for:)
 
@tim2000s Yes, I like to have an open mind but I wasn't wholly convinced. As you say, it could just be delaying the diagnosis - which is good, of course, but not true prevention.

I take Omega 3, ALA, B vits, etc and I've noticed that I've needed less insulin since starting the ALA.
 
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