Anxious, worried just need to vent my feelings plz

[Shar67]

Well as I have yet to be seen by a diabetes specialist, I can say the level of care us non existent here, too many people not enough staff

 

[donnellysdogs]

You do not have to be with your local hospital....especially when you move you can keep your care where it was before moving.

I've just recently moved again but this time against my wishes really I am moving hospital because I found that when I had a recent operation that having diabetes care at a separate hospital was not good.. I love my last consultant and nurses at my old hospital but currently unable to drive as well and need a hospital closer that could have access to my diabetes notes etc if I end up having more operations...

Its so hard to know what to do nowadays. I know a local diabetic nurse with T1 and she will not go to our local hospital... But a 50 mile each way journey and time off for hubby to take me is too much as well.

When you have other illnesses to impact on diabetes I think from my point of view and my experience from my last operation that care is better when under one roof...

From what I heard from my GP (who is supposedly caring for T1's) and from my community DSN today it is getting to be a standard 18week waiting just to be seen if you move hospitals nowadays... They ate absolutely inundated which is why my GP Practice for 12500 patients is trying to stop referrals to hospital...

 

[kesun]

I am working really hard on what I eat and drink, I only drink water or no added sugar squash rare cup of tea with sweetener, no sweets biscuits, cakes, bread, have very rare boiled potato have brown rice yet my sugars are seldom in single figures my insulin has been upped again

Something I found very hard to come to terms with is that "good" carbs such as brown rice and wholemeal bread raise my blood sugar. Since you're in insulin I assume you've been prescribed a meter and strips? I suggest you systematically test your blood for every kind of carb you consume. Or if like me you prefer drastic measures, try cutting out absolutely all carbs and assuming that lowers your blood sugar either stick to that diet or reintroduce carbs one at a time, testing each to see whether your blood can tolerate it.

I know, proteins also raise blood sugar, but not nearly as much as carbs. For me, Dr Bernstein's book was a saviour in this regard.

I'd also press the medics for a diagnosis: it's too easy for them to pigeonhole you by age, but adults do develop T1 or LADA, and as well as those and T2 there's a whole list of monogenic (MODY) diabetes types, some akin to T1 (insulin insufficiency) and some to T2 (insulin resistance), as well as other rare types you can read about here.

However understanding the professionals (and some are very far from that!), the only person who really cares about your diabetes is you, and you're the person who can take control of it.

Good luck,
Kate

 

[Immy1961]

You do not have to be with your local hospital....especially when you move you can keep your care where it was before moving.

I've just recently moved again but this time against my wishes really I am moving hospital because I found that when I had a recent operation that having diabetes care at a separate hospital was not good.. I love my last consultant and nurses at my old hospital but currently unable to drive as well and need a hospital closer that could have access to my diabetes notes etc if I end up having more operations...

Its so hard to know what to do nowadays. I know a local diabetic nurse with T1 and she will not go to our local hospital... But a 50 mile each way journey and time off for hubby to take me is too much as well.

When you have other illnesses to impact on diabetes I think from my point of view and my experience from my last operation that care is better when under one roof...

From what I heard from my GP (who is supposedly caring for T1's) and from my community DSN today it is getting to be a standard 18week waiting just to be seen if you move hospitals nowadays... They ate absolutely inundated which is why my GP Practice for 12500 patients is trying to stop referrals to hospital...

Seems where I am living now the main hospitals are cardiff

 

[Immy1961]

Seems where I am living now the main hospitals are cardiff

Main hospitals are cardiff and newport the other hospitals ie prince Charles just offer satellite clinics and as such don't really give full departments. I do appreciate the fact that I will be seen it is just a sad state of affairs that they do not offer very much support to not only newly diagnosed people which means you have to learn by your own mistakes, one nurse told me that your not a proper diabetic until you have a hypo or two, this she said just after telling me how serious a hypo could be. Which was not very comforting, at the time of my diagnosis I was quite unwell but as soon as I was able too and off the syringe driver I began to ask questions but was frequently told ' don't get too fixated on numbers ' again not very comforting. I want to take ownership of my health but to do that I need the information I need the questions answered.

 

[donnellysdogs]

They do tend to take the softly softly approach nowadays. Not like inducing you with a hypo before you left hospital and taking you to see amputees 30 years ago. I'm sure when they get to know you that they will be more open and approachable.
A nurse I saw today said tome "I wish all my diabetic patients were like you"..... But the trouble is there was no softy softy approach given to me. I got told I would die early, get a medal at 25 years, get complications, because thats a T1 life....So from that approach and no internet to speak to other T1's I was told enough to scare the pants off me and to learn how to do things. I've never been on Dafne course or seen a dietitian and over 30 years...
You can learn to carb count etc yourself, there is a good online course from Bournemouth hospital, goodbooks to read and you can really show that you are capable of doing and understanding everything but need their support....