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Any diabetes plus coeliac disease?

anna29

anna29

Well-Known Member
Retired Moderator
Messages
4,789
Location
Preston Lancashire
Type of diabetes
Type 2
Treatment type
Insulin
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Cruelty to Animals/Children
Liars/Manipulators/Bullying
Hi, It is time now for me to give my coeliac disease, some new routine, focus and attention. gside The diverticulitis disease [have had this one 6-7 years now , am clued up with this one now!]
It is just the 'coeliac' am still in a thick fog with, need some help and advice.
Am wondering if there are any coeliacs with diabetes out here in the forum to give me some great starting points info and advice too please. Anna.x :)
 
Have a step-son with T1 and step-daughter with coeliac. One of my daughters is wheat intollerant.
My husband and I eat a low carb diet and there is no wheat in our pantry. I have absolutely no need to have wheaten flour as I use almond meal, flaxseed meal, coconut flour, lupin flour etc for any sort of baking. We check all labels for gluten like soy sauce, stock cubes. Husband's daughter has voiced concerns in the past that she finds it hard to get low GI products like bread and crackers and has looked at our diet with curiosity but does not embrace it though she compliments me on cakes and puddings I have created for her when she is visiting.
As you already are a low carber it should not present a huge change for you.
I wish you good health as you become vigilant for the hidden gluten. :wink:
 
Hi Anna
My Son James has coeliac disease and has been gluten free now for 6 years. We found it hard at first, but now manage quite well. His yearly check ups are spot on and has had no ill effects apart from one misunderstanding at a chip shop where we were given the wrong chips and James was really really sick and would not want to go through that again. They did apologise for their error tho and now we are EXTREMELY vigilant.

I assume you are having your monthly quota of gluten free products on prescription and there are numerous products now as of 6 years ago. Are you a member of the Coeliac Society as they have a wonderful Food and Drink Directory with all the well known supermarkets listed.

We do find eating out a problem some times and we are actually off to Spain again on Tuesday for a week and have done a bit of homework on eating out as we have not gone to this part of Spain before.

Hope this helps for now :wink:
 
Hi, have just registered with the coeliac society and am yet waiting for the pack with details and food directory.
Am being re-referred back to my specialist and awaiting appointment for 'biopsies to be taken' again! As they wasnt quite happy with the last one! All they said was something else is possibly underlying whatever that can mean? ! :?
Chips? I cant cope with chips am afraid :( , am glad james recovered as that would have been so awful for him.
Is james on any meds for this or is all controllable via the right diet and foods only. I only ask as I have to use antispasmodic and pain relieving meds for mine.
Have been told when I see the specialist again he will do the paperwork for prescription foods to get.
Am amazed this is what happens! Foods to buy and get by prescription? :shock: never knew or heard of this before! :shock:
Being totally new to this its all a new learning curve. Anna.x
 
anna29 said:
Hi, have just registered with the coeliac society and am yet waiting for the pack with details and food directory.
Am being re-referred back to my specialist and awaiting appointment for 'biopsies to be taken' again! As they wasnt quite happy with the last one! All they said was something else is possibly underlying whatever that can mean? ! :?
Chips? I cant cope with chips am afraid :( , am glad james recovered as that would have been so awful for him.
Is james on any meds for this or is all controllable via the right diet and foods only. I only ask as I have to use antispasmodic and pain relieving meds for mine.
Have been told when I see the specialist again he will do the paperwork for prescription foods to get.
Am amazed this is what happens! Foods to buy and get by prescription? :shock: never knew or heard of this before! :shock:
Being totally new to this its all a new learning curve. Anna.x
Click to expand...

Have you been told to carry on eating gluten products as James had to wait for a biopsy and was told to keep eating gluten until then,(this would give a true picture of the villi inside) but he was so ill I had to push and push to get him in before Christmas so that he was not suffering so we managed to get him in on 12 December . No meds for this condition just the right foods/diet. If you look on coeliac.org.uk you will see what you are allowed (according to age) on script and how many units per month. James is allowed 15 units, but actually I now just get his bread on script as it took a long time to find one that he liked and my GP does let us have some flour/mix now and then so that we can make pastry and cakes, but I now buy things like pasta, bread rolls, biscuits,pizza bases myself.
If you keep us updated I will let you know of some websites who will give you free samples of things that you could then possibly order on script :)
 
Hi, Thanks so much for your help, tips, advice.
As my head is baffled with all the bumpf on gluten,wheat,rye,oats, etc etc do's and donts....
Am REALLY struggling with eating even 2 slices of light wholemeal bread, I mean I can eat it via my mouth but its the getting rid of it I have severe problems with.
My tummy blows up look like am full-term pregnant and the discomfort is dreadful some days.
I am totally new to this and getting lost in it all, I could really do with the very simple first tips basics of advice.
My [DSN] when she rings me always says remember dont eat what you cant cope or tollerate with. Thats great support and understanding I know, but I now need to start with a routine armed with knowing more and how to shop and where? for nice tasty safe things for both coeliac AND diabetic friendly.
When I have looked it does seem to be more just coeliac friendly. Then I get more lost and dismayed and confused.
I really am standing on the very 1st rung of the ladder with this looking up and its empty space! If you see what I mean? Anna.x :(
 
Anna, we have a little firm on one of the trading estates in Leyburn called the Gluten-free Kitchen. I think they send food round the country. If I find a web address for them I'll let you know.

Viv 8)
 
I know where you are coming from as I felt the same way with James as if diabetes was not enough to cope with but you WILL get to grips with it, and when I shop I shop more for the coeliac side than the diabetes side of things. I shop at Asda, Sainsbury (which have a fantastic gluten free section) and Tesco that all have a gluten free (Free Foods) Section. Also when you really really look you will be surpsied at what (ordinary day to day food) is actually gluten free.

The above supermarkets all have their own brand of cornflakes suitable for coeliacs.
Majority of Walkers crisps are suitable
Genius Wholemal and white bread (Tesco) is nice for sandwiches as well, but James likes Juvela (go on line to see this website) bread for toast which he has on script.
Yoghurts
and numerous other products which is why IT IS A MUST to get the Food and Drink Directory.

And all the above are taken in moderation with carb counting.

Onwards and Upwards Anna :wink:
 
Anna, do you like crackers? The lady opposite me in hospital was coeliac and diabetic and she offered me one of her crackers they were really nice and not too bad carb wise either. They were called Crimbles and you can get them in most supermarkets she said :D Hope that helps a bit.
 
Hi, am 'told' am crackers! by hubby :lol: :lol: :lol:
Yes I do like crackers, have scribbled that one down, will make a list if get any more helpful suggestions and will take it out to the supermarket with me.
I do tend to shop at morrisons, aldi, tescos as we have the big superstores in my home town plus I am watching the pennies as am still hoping to move to a bungalow.
Sainsburys and asda are further out and I dont frequent them as often.
I also can cope a bit better with just a 'handfull' of pasta easier than the breads n cakes. Worked this one out with my diet n routine already. [only have it twice a week with sundried tomatoes, mozzerella balls melted n basil herb fresh]
Anna.x
 
Hi,

I have both coeliac and diabetes too. I must admit lately i've been on and off with monitering my coeliac diet, been a little naughty :shock:

When I am behaved though I tend to find i'm ok with most of the gluten free foods, it does take a while to get used to and its not always fun watching your mates eat the fun things on a night out but you do get used to it.

I think the tescos and asda range of gf foods is really good but I do tend to find you need to go to the bigger stores to get what your looking for.

I don't tend to bake too much but I do have a good recipe for cake if your interested. And we have fun making pancakes as well - it's a nice change to the boring breakfasts :)
 
Anna

You can find gluten free breads, pasta, biscuits, crackers etc in some of the large supermarkets now. Look down the 'Free-From' aisle. They are though, a bit expensive, so if you can order gluten free breads etc through the GP who will write you out a monthly prescription. Some breads come as pre baked and have a use by date on them while others can be obtained as 'fresh baked' and are baked and delivered to pharmacies per order.

While you decide on what to order by prescription, rice cakes are gluten free and can be bought fairly easily.

Lots of food is gluten free but this can be checked out by reading the list of ingredients on food packets. Heinz produces a lot of their canned stuff as gluten free.
 
Awww thanks, for all your great suggestions, my ' list ' is starting to grow a bit longer now thanks to you ALL...
Am aiming to go to the supermarket this wednesday and buy in some suitable coeliac/diabetic products and foods.
To be honest I am letting myself be guided and led by your suggestions, as its a double whammy thing for me to tackle.
Diabetes is and was one thing, but with the coeliac and diverticulitis too its become so much harder in knowing what to do.
Thank you ALL for your help and support, I would be truly 'lost' without your guidance and suggestions.
Much love and thanks. Anna.x :D
 
hi

i am type 1 diabetic on an insulin pump and i am coealiac as well.

like other people in the forum i have also registered with the coeliac society and i find their food directory very helpful but saying that i got used to it pretty quickly and isnt it true that we eat the same food all the time? we have a number of meals/products and we rotate and as soon as we familirize with what is gluten free and where it is in the supermarket then it is easy.
I would recomment Genious bread. I rather pay for my food that have it on prescription as i love that bread and sainsbury's white bread rolls with seeds. i like corn pasta rather than rice paste... i do not eat biscuits, cakes, etc.... normally, only as a treat from time to time. I got my own toaster, side of the kitchen where only gf food would be put on (I am luky with a shape L Kitchen and the rest of the family use the toaster on the other side so no bread crums contamination). Once you set a rotine tyou will be laughing!

What I find tricky is the lack of understanding of some pple and eating out is a pain, especially in places you do not know. Wher I live i know what I can eat int he restaurants int eh area and the Italian restaurant I go to they are happy for me to bring my GF bread/pasta and make the same dishes for me!

IN Spain, I recomment MERCADONA. It is a brilliant supermarket as everything that is gluten free is labelled SIN GLUTEN. Sausages, etc... that int he UK will have glluten are GF in SPAIN!! It is brilliant!

I use good creams for my hands as I wash them many many times a day as I have cross over with gluten foods for the rest of the family.

The beginnign is a shock and I felt it was unlucky but i was relieved to know because I soon started to feel better. I know people think I am fussy but I do nto care, I say, I am diabetic and coeliac and if you poison me I will be sick in exactly two hours with terrible effects. They take me seriously then.

Good luck!!!
 
gluten free bread in Spain is not very nice and more expensive. take your own and freeze it!! I always do that now!

Also in France, althought the French GF section in both Spain and France is very good but a lot dearer. I love the white little cakes with choc inside!

take care
 
Hi Anna

How are you getting on with your gluten free foods?

I am also Coeliac and type 2!!

I will admit I found it all too hard to accept both conditions but am slowly moving in the right direction now... eating low carb, and enjoy all the fresh fruit n veggies... I tend to test myself a lot when having a new food to make sure my body tolerates it but it is different for each of us as we are all individuals..

Any help I can be, give me a shout... :)
 
Hi...
Am actually going to see my consultant TOMORROW ...
How strange you have posted this tonight :shock: :shock: :shock:
PLUS today in the post came a renewal subscription for the coeliac uk membership ! :shock:
I had bowel surgery 2 weeks ago and was rang up this monday from the hospital - my consultant wants to see me in his clinic tomorrow...?
Will post the results of the appointment here tomorrow.
I am finding I just CANT tollerate ANY breads, pastry, certain potatoes even, root veggies also, onions kill me! Also oils, spices, creams are too much too .
Am sticking to very low carb lots of small vegs, fruit, eggs, creme fraiche, and handmake ALL my own meals in tiny portions.
I find I have to eat very little in order to cope with the digestion of foods.
Am hoping whatever is causing me all my digestive problems coeliac plus severe diverticulitis can be more manageable for me.
As am struggling yet! Its tooo painful and gets me down at times. :(
I find I learn QUICKLY as get ill with the wrong things instantly as the food digests it reacts instantly...
Plus I do have to continue to balance my eating with my insulin shots the best that I can.
Anna.x
 
Hi I am a type 1 diabetic and coeliac too. Find it very difficult when eating out as lot of places don t understand about gluten free food. Being a coeliac is also an auto immune disease like diabetes. The symptoms are weight loss anaemia tiredness high sugars. Anyone with these symptoms I would suggest getting tested for coeliac disease. It can sometimes take doctors ages to diagnose this.
 
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