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Any good experiences with Toujeo?

Discussion in 'Type 1 Diabetes' started by Naoglo, Mar 7, 2018.

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  1. Naoglo

    Naoglo Type 1 · Member

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    Hello :)

    I switched to Toujeo today from Levemir. Sounded like a great idea when I spoke to the nurse about it. The main reason for switching is to try to reduce weight gain..and to try to get better control. My HbA1c sits at around 8 and I struggle to get it down despite exercise and carb counting etc
    As I take levemir twice daily, I liked the sound of taking toujeo once a day.

    Unfortunately, I am now reading some BAD things about Toujeo online that are worrying me.. very erratic blood sugars, weight gain, headaches, muscle aches.. now I'm worried..

    I was wondering if anyone has had any good experiences of changing over to Toujeo? If so, what are they

    Thanks :)
     
    • Hug Hug x 1
    #1 Naoglo, Mar 7, 2018 at 9:53 AM
  2. IonutzPopa

    IonutzPopa Type 1 · Member

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    Is this Optinsulin?
     
    #2 IonutzPopa, Mar 7, 2018 at 10:21 AM
  3. Naoglo

    Naoglo Type 1 · Member

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    Its insulin glargine 300 units/ml
     
    • Agree Agree x 1
    #3 Naoglo, Mar 7, 2018 at 10:26 AM
  4. mountaintom

    mountaintom Type 1 · Well-Known Member

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    I changed from Lantus to Toujeo and had no problems.
     
    • Agree Agree x 1
    #4 mountaintom, Mar 7, 2018 at 10:59 AM
  5. Naoglo

    Naoglo Type 1 · Member

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    Thanks Mountiantom.

    I guess people are more likely to talk about bad experiences than good ones. Have you noticed any benefits?
     
    • Useful Useful x 1
    #5 Naoglo, Mar 7, 2018 at 11:16 AM
  6. Cumberland

    Cumberland Type 1 · Master

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    Hi
    I switched to Toujeo
    No problems
    It brought down my high levels and has given me a certain amount of stability no other basal insulin’s worked for me at all whereas Toujeo has done the trick

    Good luck
     
    • Agree Agree x 1
    #6 Cumberland, Mar 7, 2018 at 11:30 AM
  7. ickihun

    ickihun Type 2 · Master

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    Toujeo300 definitely works for me. Fantastically flat when not eating. I can sleep, reassured I'm not rising nor hypoing on it.
    A very good insulin. :)
     
    #7 ickihun, Mar 7, 2018 at 11:56 AM
  8. Naoglo

    Naoglo Type 1 · Member

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    Hi Cumerland,

    Thanks for this! I am feeling a bit better about it now. I know we all respond differently to things but there are LOTS of negative stories out there about it!!

    Time will tell I guess (fingers crossed) :)
     
    • Like Like x 1
    #8 Naoglo, Mar 7, 2018 at 11:58 AM
  9. Naoglo

    Naoglo Type 1 · Member

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    Wow this is great- thanks Ickihun.. I'm defo feeling better about it now :)
     
    • Friendly Friendly x 1
    #9 Naoglo, Mar 7, 2018 at 11:59 AM
  10. Cumberland

    Cumberland Type 1 · Master

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    It’s really a case of trial and error

    I have been on levemir, humulin and insulutard as basal and they had no effect

    Toujeo has been good for me but remember we are all individual what might for one may not work for another
     
    • Agree Agree x 1
    #10 Cumberland, Mar 7, 2018 at 4:35 PM
  11. becca59

    becca59 Type 1 · Well-Known Member

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    What I have found is that it says on box it lasts for 6 weeks after opening. As I am only injecting 9 units a day I obviously don’t get through much. However, I didn’t feel it was effective for that long. Spoke to pharmacist who recommended no longer than 4 weeks and I actually feel it is less effective after 2 weeks. It still works on an even keel, but a higher one and I always end up extra blousing. Anybody else find this?
     
    • Useful Useful x 1
    #11 becca59, Mar 7, 2018 at 4:39 PM
  12. ickihun

    ickihun Type 2 · Master

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    I'm fighting an infection at mo so I'm having higher bgs as the day roles in, due to possible slow digestion and constipation. Pre infection my bgs were steady all day.
    Seeing GP Friday incase I need more antibiotics.
    Sugar coated ibuprofen and buscupan not helping my bgs thou. :(
     
    #12 ickihun, Mar 7, 2018 at 5:01 PM
  13. Abigail18

    Abigail18 · Member

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    Hi,
    I recently got changed from Tresiba to Tougeo as all the others I have tried so far hasn’t worked in stopping the hypos (I even surprised the nurse with how many hypos I had) and the first 2-3 days were great but now I seem to be running a bit high and struggle to get it to go down but hopefully with a few adjustments it will hopefully help. I read up on it before I got it and like you found so many negatives views but I’m hoping they are wrong
    Good luck with it all
     
    • Hug Hug x 1
    #13 Abigail18, Sep 1, 2019 at 6:00 PM
  14. ickihun

    ickihun Type 2 · Master

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    I've been on Toujeo300 for a few years now. Currently having great fbg. Daily bgs are still needing novarapid. Won't increase Toujeo300 in fear of hypos through night in bolus absence as I'm type2 after bariatric surgery.
    Maybe if I return to Metformin I will be able to need less of both types of insulin. We'll see soon.

    Is it just hypos that give Toujeo300 bad press?
     
    #14 ickihun, Sep 1, 2019 at 8:30 PM
  15. Naoglo

    Naoglo Type 1 · Member

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    Sadly Toujeo didn't work out for me.. I put on weight very rapidly so am back on levemir and things have returned to normal .. I didn't really have any better control and still had plenty of hypos so the only benefit for me was one less injection per day- but that's no great hardship..

    Just shows how everyone is different!!

    Good luck to you all.. :)
     
    #15 Naoglo, Sep 3, 2019 at 8:24 PM
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