1. Get the Diabetes Forum App for your phone - available on iOS and Android.
    Dismiss Notice
  2. Guest, we'd love to know what you think about the forum! Take the Diabetes Forum Survey 2021 »
    Dismiss Notice
  3. Diabetes Forum should not be used in an emergency and does not replace your healthcare professional relationship. Posts can be seen by the public.
    Dismiss Notice
  4. Guest, stay home, stay safe, save the NHS. Stay up to date with information about keeping yourself and people around you safe here and GOV.UK: Coronavirus (COVID-19). Think you have symptoms? NHS 111 service is available here.
    Dismiss Notice
Dismiss Notice
Find support, ask questions and share your experiences. Join the community »

Any good experiences with Toujeo?

Discussion in 'Type 1 Diabetes' started by Naoglo, Mar 7, 2018.

  1. Naoglo

    Naoglo Type 1 · Member

    Messages:
    8
    Likes Received:
    2
    Trophy Points:
    23
    Hello :)

    I switched to Toujeo today from Levemir. Sounded like a great idea when I spoke to the nurse about it. The main reason for switching is to try to reduce weight gain..and to try to get better control. My HbA1c sits at around 8 and I struggle to get it down despite exercise and carb counting etc
    As I take levemir twice daily, I liked the sound of taking toujeo once a day.

    Unfortunately, I am now reading some BAD things about Toujeo online that are worrying me.. very erratic blood sugars, weight gain, headaches, muscle aches.. now I'm worried..

    I was wondering if anyone has had any good experiences of changing over to Toujeo? If so, what are they

    Thanks :)
     
    • Hug Hug x 1
  2. IonutzPopa

    IonutzPopa Type 1 · Member

    Messages:
    9
    Likes Received:
    3
    Trophy Points:
    23
    Is this Optinsulin?
     
  3. Naoglo

    Naoglo Type 1 · Member

    Messages:
    8
    Likes Received:
    2
    Trophy Points:
    23
    Its insulin glargine 300 units/ml
     
    • Agree Agree x 1
  4. mountaintom

    mountaintom Type 1 · Well-Known Member

    Messages:
    575
    Likes Received:
    411
    Trophy Points:
    123
    I changed from Lantus to Toujeo and had no problems.
     
    • Agree Agree x 1
  5. Naoglo

    Naoglo Type 1 · Member

    Messages:
    8
    Likes Received:
    2
    Trophy Points:
    23
    Thanks Mountiantom.

    I guess people are more likely to talk about bad experiences than good ones. Have you noticed any benefits?
     
    • Useful Useful x 1
  6. Cumberland

    Cumberland Type 1 · Master

    Messages:
    14,461
    Likes Received:
    45,506
    Trophy Points:
    298
    Hi
    I switched to Toujeo
    No problems
    It brought down my high levels and has given me a certain amount of stability no other basal insulin’s worked for me at all whereas Toujeo has done the trick

    Good luck
     
    • Agree Agree x 1
  7. ickihun

    ickihun Type 2 · Master

    Messages:
    13,440
    Likes Received:
    18,374
    Trophy Points:
    298
    Toujeo300 definitely works for me. Fantastically flat when not eating. I can sleep, reassured I'm not rising nor hypoing on it.
    A very good insulin. :)
     
  8. Naoglo

    Naoglo Type 1 · Member

    Messages:
    8
    Likes Received:
    2
    Trophy Points:
    23
    Hi Cumerland,

    Thanks for this! I am feeling a bit better about it now. I know we all respond differently to things but there are LOTS of negative stories out there about it!!

    Time will tell I guess (fingers crossed) :)
     
    • Like Like x 1
  9. Naoglo

    Naoglo Type 1 · Member

    Messages:
    8
    Likes Received:
    2
    Trophy Points:
    23

    Wow this is great- thanks Ickihun.. I'm defo feeling better about it now :)
     
    • Friendly Friendly x 1
  10. Cumberland

    Cumberland Type 1 · Master

    Messages:
    14,461
    Likes Received:
    45,506
    Trophy Points:
    298
    It’s really a case of trial and error

    I have been on levemir, humulin and insulutard as basal and they had no effect

    Toujeo has been good for me but remember we are all individual what might for one may not work for another
     
    • Agree Agree x 1
  11. becca59

    becca59 Type 1 · Well-Known Member

    Messages:
    1,974
    Likes Received:
    2,500
    Trophy Points:
    198
    What I have found is that it says on box it lasts for 6 weeks after opening. As I am only injecting 9 units a day I obviously don’t get through much. However, I didn’t feel it was effective for that long. Spoke to pharmacist who recommended no longer than 4 weeks and I actually feel it is less effective after 2 weeks. It still works on an even keel, but a higher one and I always end up extra blousing. Anybody else find this?
     
    • Useful Useful x 1
  12. ickihun

    ickihun Type 2 · Master

    Messages:
    13,440
    Likes Received:
    18,374
    Trophy Points:
    298
    I'm fighting an infection at mo so I'm having higher bgs as the day roles in, due to possible slow digestion and constipation. Pre infection my bgs were steady all day.
    Seeing GP Friday incase I need more antibiotics.
    Sugar coated ibuprofen and buscupan not helping my bgs thou. :(
     
  13. Abigail18

    Abigail18 · Member

    Messages:
    10
    Likes Received:
    4
    Trophy Points:
    43
    Hi,
    I recently got changed from Tresiba to Tougeo as all the others I have tried so far hasn’t worked in stopping the hypos (I even surprised the nurse with how many hypos I had) and the first 2-3 days were great but now I seem to be running a bit high and struggle to get it to go down but hopefully with a few adjustments it will hopefully help. I read up on it before I got it and like you found so many negatives views but I’m hoping they are wrong
    Good luck with it all
     
    • Hug Hug x 1
  14. ickihun

    ickihun Type 2 · Master

    Messages:
    13,440
    Likes Received:
    18,374
    Trophy Points:
    298
    I've been on Toujeo300 for a few years now. Currently having great fbg. Daily bgs are still needing novarapid. Won't increase Toujeo300 in fear of hypos through night in bolus absence as I'm type2 after bariatric surgery.
    Maybe if I return to Metformin I will be able to need less of both types of insulin. We'll see soon.

    Is it just hypos that give Toujeo300 bad press?
     
  15. Naoglo

    Naoglo Type 1 · Member

    Messages:
    8
    Likes Received:
    2
    Trophy Points:
    23
    Sadly Toujeo didn't work out for me.. I put on weight very rapidly so am back on levemir and things have returned to normal .. I didn't really have any better control and still had plenty of hypos so the only benefit for me was one less injection per day- but that's no great hardship..

    Just shows how everyone is different!!

    Good luck to you all.. :)
     
  • Meet the Community

    Find support, connect with others, ask questions and share your experiences with people with diabetes, their carers and family.

    Did you know: 7 out of 10 people improve their understanding of diabetes within 6 months of being a Diabetes Forum member. Get the Diabetes Forum App and stay connected on iOS and Android

    Grab the app!
  • Tweet with us

  • Like us on Facebook