HI everyone , I was diagnosed type 3c march 2023, it's been a nightmare ever since.
Gastro specialist, liver specialist 2 different diabetic teams I was 80kg last March and now fluctuating between 92kg and 97kg
After seeing the diabetic team linked to the liver team they've told me I need to loose weight but won't prescribe injectables like victoza as they aren't licensed for "type 1's"
I am struggling with mobility as I had an accident 3 years ago and broke all my ribs- 5 of them have fused with nerves between them plus ascites and odema from pancreas issues.
I feel like I'm going round in circles, trying to loose weight - just had a phone call from diabetic nurses who I asked if I could try a high protein low carb diet was told no because I need insulin with meals containing carbs, yet they've repeatedly told me if I don't eat carbs in a meal I shouldn't take any insulin.
Has anyone tried a vlcd or Aitkens type diet whilst having 3c?
The additional weight is adding to my issues and causing everything combined to really effect my mental health.
Tia to anyone who can offer any insight, advice or even just reads my post
Hi
@christmasfairy1
This may not be helpful, but Im in the sameish boat. So - you are not alone
Diagnosed December 2023, weight gain into the same range as you, liver unhappy, mobility issues - im waiting on hip surgeries x2. ive been told all the injectables for weight loss can cause pancreatitis so not good for us 3c's, and the metformin makes my liver numbers go up.
I have been trying to swim, but it makes be sooooo hungry!
I've been trying to make small changes including low carb breakfast. Usually quiche at the moment, I try and make a big batch on sundays.
Im greatful that I am a candidate for surgery, and that my mobility should increase eventually, although the swimming is mentally difficult to drag myself to, I come out with a smile, and some pain relief which is nice. There are also a group of friendly regulars too, most of whom are a similar shape as me, which is reassuring. This swimming has also increased my general fitness and lung capacity, and reduced breathlessness after going up stairs which is positive.
I agree, this all takes a toll on the mental health - I want to be doing 'normal' things, and feel a bit useless.
I'm at a point where I can see that the insulin itself is increasing my weight - as I was warned it would, and I think I need to focus on trying to reduce my intake/portion sizes of 'pointless' carbs eg white rice, rice noodles etc, and reduce the snacking. If I can find the self control...
Anyway, enough about my grumbling.
Do you think walking in a pool would be an option for you to start? And maybe a dip in the spa at the end if they have one? They might be gentle enough to count as exercise, and maybe help reduce some of the aches and pains.
It is really hard discussing diet with health professionals. Many of them seem to be trained on that 'food pyramid' thinking which involves a lot of carbs. There should be some really good posts/forums on here about eating lower carb - can anyone point us to them?
Best of luck Christmas Fairy. I think the main piece of advice I can offer is to find some support people. Whether on here, or in person at a diabetes group. People who have and are probably still walking the diabetes path. A few tips, and the odd stern look when we could be doing better, can do wonders.