- Messages
- 10
- Type of diabetes
- Type 1
- Treatment type
- Insulin
This is my first ever post, please help ![Frown :( :(](data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7)
Hi All,
Here goes for a super long post but I urge you to please read and help me with any tips that you may have if you have experienced the same. I am 27 years old, I was diagnosed with T1 in 2012 at the age of 21. I have 3 children. Since becoming diabetic, I have let it take over my life. Last year I developed an eating disorder through trying to lose weight and for around 1 1/2 years I refused to look after myself and do insulin, I would only inject when I was so tired that I knew my blood sugars would be through the roof. I went to the doctors to seek help. I was admitted to hospital 3 times last year for an infection that no body could find the cause of. Eventually I was told but a Dr that it was probably a urine infection because they aren't detected on blood tests. (RIDICULOUS because I had NO symptoms for a urine infection whatsoever). I cannot fault the NHS, they have been amazing but I am at a loss. My last hospital admission was 29th August last year, temp of 40, heart rate 153 BPM. again, no cause of infection, not sepsis. Anyway, I have been signed off from work since October last year due to intense chronic pain in my legs, I have had multiple blood tests done, MRI, CT scan and X-rays. Cannot find the cause for the pain, I have also had a nerve conduction study done and that came back fine (which I am really grateful for). However, that has lead me back to square one. There is no cause for the pain, its so intense my children have seen me screaming into towels, biting pillows and sob daily for months. I am still signed off of work now. About 10 days ago I made the discovery the long acting insulin I was taking (toujeo) is closely linked to Lantus, which has been known to cause pain in the lower limbs. I instantly switched back to my Levimere. I haven't experienced the extreme pain since last Tuesday, however, it came back yesterday and I am devastated. My body is truly exhausted, mentally I am exhausted trying everything I possibly can, researching all I can, eating the right foods, keeping blood sugars stable. I cannot exercise because the pain has caused my legs to weaken. I read tonic water can help but it hasn't. Has anyone else experienced this with Toujeo insulin? Even Lantus? Its ruining my life, when the pain comes, I want to give up and stop fighting, selfish I know but I see no other way out. I cannot afford to get help privately, I have looked but just for a consultation is £150-£250. My children are suffering, I am suffering. If anyone can please help me, even if they have experienced it and can give me some hope that it will go away. I don't know what else to do anymore and I am extremely desperate. Thank you x
Hi All,
Here goes for a super long post but I urge you to please read and help me with any tips that you may have if you have experienced the same. I am 27 years old, I was diagnosed with T1 in 2012 at the age of 21. I have 3 children. Since becoming diabetic, I have let it take over my life. Last year I developed an eating disorder through trying to lose weight and for around 1 1/2 years I refused to look after myself and do insulin, I would only inject when I was so tired that I knew my blood sugars would be through the roof. I went to the doctors to seek help. I was admitted to hospital 3 times last year for an infection that no body could find the cause of. Eventually I was told but a Dr that it was probably a urine infection because they aren't detected on blood tests. (RIDICULOUS because I had NO symptoms for a urine infection whatsoever). I cannot fault the NHS, they have been amazing but I am at a loss. My last hospital admission was 29th August last year, temp of 40, heart rate 153 BPM. again, no cause of infection, not sepsis. Anyway, I have been signed off from work since October last year due to intense chronic pain in my legs, I have had multiple blood tests done, MRI, CT scan and X-rays. Cannot find the cause for the pain, I have also had a nerve conduction study done and that came back fine (which I am really grateful for). However, that has lead me back to square one. There is no cause for the pain, its so intense my children have seen me screaming into towels, biting pillows and sob daily for months. I am still signed off of work now. About 10 days ago I made the discovery the long acting insulin I was taking (toujeo) is closely linked to Lantus, which has been known to cause pain in the lower limbs. I instantly switched back to my Levimere. I haven't experienced the extreme pain since last Tuesday, however, it came back yesterday and I am devastated. My body is truly exhausted, mentally I am exhausted trying everything I possibly can, researching all I can, eating the right foods, keeping blood sugars stable. I cannot exercise because the pain has caused my legs to weaken. I read tonic water can help but it hasn't. Has anyone else experienced this with Toujeo insulin? Even Lantus? Its ruining my life, when the pain comes, I want to give up and stop fighting, selfish I know but I see no other way out. I cannot afford to get help privately, I have looked but just for a consultation is £150-£250. My children are suffering, I am suffering. If anyone can please help me, even if they have experienced it and can give me some hope that it will go away. I don't know what else to do anymore and I am extremely desperate. Thank you x