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Appalling ignorance about diabetes in NHS

Hi I’m T1,

A few years back before the advent of CGMs I was being treated in hospital with an anti-VEGF injections.
Prior to the procedure (mix of D types). we are BP checked & finger prick tested.
Nurse clocked me at around 4.6mmol.
Now I carry hypo treatment.
I also know how many grams of fast acting carbs can raise me..

I reassured her I had a bag of “Jelly babies.” (Also carry my meter. Used to test mine against the NHS one & it was close..)
She instructed me to eat half the bag & she’d see me in an hour?
I told her I’d have 2 JBs & she can test me in about 20 minutes..

To be fair 1 JB would have knocked me in their recommended generous zone.

(Which was anywhere between 5.5 & 14mmol? From memory..)
 
To be fair, they are trying to do something about the lack of knowledge. The problem is Time for any Change. Throughout the medical profession, there simply is not enough time to read and absorb new protocols.
Unfortunately some will forever remain with past guidance, we have to be ready to try to educate them. https://www.nice.org.uk/guidance/ng28/
 
Rosie9876 said:

Thank you for the Leeds Hospital leaflet. Yes, it's pretty much my experience. I think they mean well, but the ignorance is staggering.

My diabetes had been under control, but it no longer is. I wonder if the harsh antifungal IV treatment damaged my pancreas. I know it damaged my kidneys. I was down to nearly requiring dialysis when they changed the treatment. Unlike CKD, accute injury to the kidneys can improve, and mine did somewhat, although I still have problems.

I appreciate they had to try aggressive options, because my sepsis was very rare and with a very high mortality rate (as high as 65% according to Google!). So I am grateful to be alive, but frustrated that I can't get my BG under control again. It usually goes into double figures even after a very low carb meal and stays high for many hours - as much as 6 some of the time. I keep hoping it will settle, but it hasn't so far.
Click to expand...
How long since your treatment finished? With diabetes it can take a long time to get back to equilibrium.
 
Rosie9876 said:
I am perhaps unusual for a Type 2 diabetic, as I am not overweight. Indeed when I lose weight, my arms and legs are like sticks but there is little change to my middle. I suspect I have visceral fat around my organs, which is the problem, and regular dieting in my case isn't the route to fixing it. I think the term for this is a TOFI - thin on the outside, fat on the inside (around the middle). I controlled my diabetes with a low carb regime, but that isn't working anymore, for some reason.

Edited by mods to remove quote
Click to expand...
Maybe there are exercises that help to remove visceral fat? Or maybe it's another type of insulin resistance.
 
Rosie9876 said:
Unfortunately, no. My BG is going very high, and staying there, despite my doing everything that worked previously. I am trying to keep my spirit up but it's hard.
Click to expand...
Have you tried Berberine? Care needs to be taken as it interacts with other drugs and herbs.

Effects of berberine on glucose-lipid metabolism, inflammatory factors and insulin resistance in patients with metabolic syndrome - PMC

Effects of berberine on glucose-lipid metabolism, inflammatory factors and insulin resistance in patients with metabolic syndrome were investigated. Eighty patients with metabolic syndrome treated in Linyi Central Hospital from January 2017 to ...
pmc.ncbi.nlm.nih.gov pmc.ncbi.nlm.nih.gov
 
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