Have you been tested for coeliac as well? Not wanting to be a Debbie Downer, but Type 1 and coeliac tend to cluster - B12 can also be related to coeliac.
I feel your frustration
@nessa1970 - frustratingly, people with one AI condition tend to develop more over time.
I sort of knew this, but had a great discussion with an Endo about it several months ago, as he worked his way through the ginagerous list of AI conditions I had just been tested for. That testing was on the basis of some symptoms, but more specifically my family history littered on both sides with AI conditions.
The Endo was astonished that thus far, I have dodged every bullet, but his parting shot suggested it was a matter of time.
My take on AI conditions is it's best to get a diagnosis as early as possible and get going on whatever treatment/maintenance protocols are available to keep things in a decent place.
That should be 'might be in your future', not 'are in your future'awful things that are now in my future.
Since diagnosis 20 years ago, I’ve developed serious allergies - oilseed rape pollen, hair dye, and most recently red meat, then white, and now dairy. I’m now being investigated for lupus, another AI condition.
Hi @nessa1970 keep an eye on your thyroid levels too, I was diagnosed with an under active thyroid about 4 years ago and the onset was slow but progressive, energy levels were zapped and lost hair so it was a relief to start taking medication, just something else to be mindful of
type 2 get those
non diabetics get those
I think you can be born with that kind of anemia? There are B12 injections and B12 sublinguals, 1st works better than the 2d.
You can cure the cystitis. Many women have gone before you and conquered this. Several times even.
What do you mean by fibro? Fibrocystic breasts? Fibroids in the uterus? Fibromyalgia?
Like @Mel dCP said just above, Type1 is an auto-immune disease type and often our immune system remain on hyper alert for many other things that can trigger it to react. So we also have a prevalence for comorbidities that have root cause in a messed up immune system. B12 deficiency is actually one of the most frequent observations within the Type1 population but frequently not properly diagnosed as your case seem to have been. It is related to the same gene defect as triggering your Type1 type, which affects some of your digestive system not to be able to obtain B12 from the food that you eat. A simple B12 or multi-vitamin per day is usually sufficient to get your B12 within appropriate range. And that is actually for another reason an important figure to track for diabetics, as B12 is critical for your neurological system. Increased benfotiamin level (B12 type) has even shown to diminish neuropathy developments in Type1 studies.I got diagnosed with autoimmune b12 deficiency lately and fibro I also have interstitial cystitis, I was wondering how many other people since being diagnosed with type 1 seem to get other medical issues? I feel like my body is giving up on me. All I’m thinking is .. “ What’s Next”...
Like seriously
Me too! Though only in some really minor spots and they didn't come until after 30 years with the Diabetes Type1. And they stopped spreading after just 5-7 months or so. And yes, vitiligo is observed with a higher frequency versus norm in the Type1 population. And is also an auto-immune type of disease.I have vitiligo, which is also an autoimmune disease. I've seen some stuff saying it's more common if you have type 1 diabetes, although I don't know how solid the evidence is. There's a history of thyroid problems in my family too, so I should probably keep an eye out for that.
Ooh @Robinredbreast I have Lichen planus too. What a pain in the neck (mouth) that is.
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