Have you been tested for coeliac as well? Not wanting to be a Debbie Downer, but Type 1 and coeliac tend to cluster - B12 can also be related to coeliac.
I feel your frustration
That should be 'might be in your future', not 'are in your future'
Hi @nessa1970 keep an eye on your thyroid levels too, I was diagnosed with an under active thyroid about 4 years ago and the onset was slow but progressive, energy levels were zapped and lost hair so it was a relief to start taking medication, just something else to be mindful of
Like @Mel dCP said just above, Type1 is an auto-immune disease type and often our immune system remain on hyper alert for many other things that can trigger it to react. So we also have a prevalence for comorbidities that have root cause in a messed up immune system. B12 deficiency is actually one of the most frequent observations within the Type1 population but frequently not properly diagnosed as your case seem to have been. It is related to the same gene defect as triggering your Type1 type, which affects some of your digestive system not to be able to obtain B12 from the food that you eat. A simple B12 or multi-vitamin per day is usually sufficient to get your B12 within appropriate range. And that is actually for another reason an important figure to track for diabetics, as B12 is critical for your neurological system. Increased benfotiamin level (B12 type) has even shown to diminish neuropathy developments in Type1 studies.
Me too! Though only in some really minor spots and they didn't come until after 30 years with the Diabetes Type1. And they stopped spreading after just 5-7 months or so. And yes, vitiligo is observed with a higher frequency versus norm in the Type1 population. And is also an auto-immune type of disease.
