Hello, new here and confused. I've had PCO's since I was 15 (which indicates highly a risk of diabetes) and have been tested over and over for diabetes ever since, it's always been negative. Many years ago, they tried me on Metformin as a way of treating PCO's but they made my legs swell terribly and it was stopped. Strangely enough, I've suffered from leg swelling ever since...
Skip ahead, I'm in my 50's now, and got a call at 8.30 am on my Birthday from a nurse, to tell me I have type 2 diabetes. I was shocked. She talked away but I wasn't taking it in. It was decided by her that I should start on Forxiga 10 mg but she said, if it didn't suit me and gave me UTS's - there was another injectable sugar-lowering drug they could give me - just give her a call. I was given 1 month of Forxiga and told to pick up a pamphlet from the surgery. She was very nice, very chirpy, told me not to worry etc. I was just in shock I think to be called and told that so early and on my Birthday, with the family around that I didn't take it all in.
When I was 10 days from being out of Forxiga, I requested a repeat prescription. My doctors failed to send it to the chemist (despite frequent calls) so I ran out of it for a week and had nothing before I got given the next pack. I tried to do a low-carb diet after reading on here that that may help.
I was fine the first month on Forxiga, however, the second month, I was peeing frequently (several times at night) and got a UTI. It took 7 days to get antibiotics out of my Dr's for it. So, I tried contacting the nurse back, as I wanted to try the alternative med (I cannot remember the name she rattled off) but kept being told she was fully booked. I kept calling and was eventually told 'a different nurse; had space. They got her to call me. I told her what the first nurse had said and said I would now like to try the alternative meds she had offered. My doctors are still not seeing anyone face to face, it's phone only.
She just said "Oh, she offered you an alternative? Yes, I replied. Hmm did she now" was her response. She had a sarcastic tone, I didn't warm to her at all. She agreed to give me the alternative meds and said I had to attend to be shown how to inject it. I attend the appointment to be shown how to do the med injection and be given the meds as discussed. Except, as soon as I walked in, she said she had decided NOT to give me the meds, to get me to fill in a food diary, slung a sugar meter at me, told me I would probably need insulin and to get used to the idea now... every one with type 2 ends up needing insulin and the cells in your stomach that make insulin die, go back in a week. And in the meantime - don't bother taking the Forxiga as it won't hurt not to, for a week!
I've worked out myself how to use the meter, in the last 2 days, my level is pretty much 9.6 whatever I do, tested before and 2 hrs after meals etc. I've been mulling over what this second nurse said to me, that she did not give me the second med to try, that she is telling me I will need insulin without any additional tests (how does she know?) and quite frankly her behavior has worried me. I've called and again asked for a telephone appointment with the first nurse, my doctors didn't ask why and told me to call back tomorrow and they would tell me if she has any spaces. I'm still taking the Forxiga - just in case, she is wrong.
I feel stressed out, confused and worried. I feel one nurse said one thing and now this new one is saying something completely different, which is worrying me (and with no additional testing). I'm also worried that the surgery allowed me to run out of meds. They won't let you re-order until you only have 10 days worth left, then take 20 days to do a prescription, have I got to face this every month for the rest of my life now, chasing meds, constant calls, running out?
Can anyone advise, please? I don't even know if 9.6 is massively high, average, or ok - no one has told me! Thanks
Skip ahead, I'm in my 50's now, and got a call at 8.30 am on my Birthday from a nurse, to tell me I have type 2 diabetes. I was shocked. She talked away but I wasn't taking it in. It was decided by her that I should start on Forxiga 10 mg but she said, if it didn't suit me and gave me UTS's - there was another injectable sugar-lowering drug they could give me - just give her a call. I was given 1 month of Forxiga and told to pick up a pamphlet from the surgery. She was very nice, very chirpy, told me not to worry etc. I was just in shock I think to be called and told that so early and on my Birthday, with the family around that I didn't take it all in.
When I was 10 days from being out of Forxiga, I requested a repeat prescription. My doctors failed to send it to the chemist (despite frequent calls) so I ran out of it for a week and had nothing before I got given the next pack. I tried to do a low-carb diet after reading on here that that may help.
I was fine the first month on Forxiga, however, the second month, I was peeing frequently (several times at night) and got a UTI. It took 7 days to get antibiotics out of my Dr's for it. So, I tried contacting the nurse back, as I wanted to try the alternative med (I cannot remember the name she rattled off) but kept being told she was fully booked. I kept calling and was eventually told 'a different nurse; had space. They got her to call me. I told her what the first nurse had said and said I would now like to try the alternative meds she had offered. My doctors are still not seeing anyone face to face, it's phone only.
She just said "Oh, she offered you an alternative? Yes, I replied. Hmm did she now" was her response. She had a sarcastic tone, I didn't warm to her at all. She agreed to give me the alternative meds and said I had to attend to be shown how to inject it. I attend the appointment to be shown how to do the med injection and be given the meds as discussed. Except, as soon as I walked in, she said she had decided NOT to give me the meds, to get me to fill in a food diary, slung a sugar meter at me, told me I would probably need insulin and to get used to the idea now... every one with type 2 ends up needing insulin and the cells in your stomach that make insulin die, go back in a week. And in the meantime - don't bother taking the Forxiga as it won't hurt not to, for a week!
I've worked out myself how to use the meter, in the last 2 days, my level is pretty much 9.6 whatever I do, tested before and 2 hrs after meals etc. I've been mulling over what this second nurse said to me, that she did not give me the second med to try, that she is telling me I will need insulin without any additional tests (how does she know?) and quite frankly her behavior has worried me. I've called and again asked for a telephone appointment with the first nurse, my doctors didn't ask why and told me to call back tomorrow and they would tell me if she has any spaces. I'm still taking the Forxiga - just in case, she is wrong.
I feel stressed out, confused and worried. I feel one nurse said one thing and now this new one is saying something completely different, which is worrying me (and with no additional testing). I'm also worried that the surgery allowed me to run out of meds. They won't let you re-order until you only have 10 days worth left, then take 20 days to do a prescription, have I got to face this every month for the rest of my life now, chasing meds, constant calls, running out?
Can anyone advise, please? I don't even know if 9.6 is massively high, average, or ok - no one has told me! Thanks
