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Bad Episode of DKA

Steven_T1D

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Hi all, this is my first post on here and honestly not sure why or what I'm hoping to achieve with it, but I feel like I need to get it off my chest and share it. For the past few months I've been suffering with diabetes burnout and generally not looking after my diabetes as well as I used to. Stupid, I know, but it happens I guess and after the episode of DKA below, thankfully I'm back on top of it all again.

At the end of April, I started feeling sick and wasn't able to eat dinner and shortly after started vomiting. A couple of non-diabetic people I knew were getting a stomach bug around the same time and it would pass after a day or 2, so I naively thought it would be the same for me.

2 days passed and I still had basically eaten nothing and threw up more than I care to remember, but I was starting to feel a bit better - or in hindsight, maybe I was just lying to myself. The next morning I woke up bent over with severe pains in my stomach and gave in and rang the doctor. An hour or so later I was with the GP getting checked over. This was where it all starts getting vague for the next day or so.

After the GP took my bloods, she was straight on to the phone for an ambulance, and I was sent to A&E. My blood glucose was 29mmol/L. I vaguely remember speaking to the paramedics and getting loaded in to the ambulance but not much of the journey. Then when I got to A&E I was straight in to a room and hooked up to lines and pipes every which way. By this stage my blood glucose reading was 32.8mmol/L.

A few hours go by but all I really remember about them is I wasn't allowed to drink fluids and my mouth and lips where painfully dry. My Glucose readings were still in the high 20s and low 30s and didn't seem like budging, so I had to get even more lines in, this time in my neck, and then they moved me to ICU.

The rest of the day is a blur, everytime I shut my eyes, an hour seemed to pass and that night was a rough one. I had some pretty awful hallucinations or visions, and these still freak the absolute life out of me when I think about them- not sure if this is normal for DKA?

Thankfully after a rough night, when I woke up the next morning my blood sugar levels were finally down to the low 20s and high teens. And by lunchtime they were almost back in range, but I still had a lot of Ketones that I needed to get rid of, which took until that night to eventually ****** off. Then I got moved to a general ward.

Few days of waiting to see a doctor and then getting my long acting insulin changed to Tresiba, and I eventually got out and I'm back on top of it all again. Also due to see my Endo again in July and I'm hoping that they will approve a CGM (It's a mission to get one funded through the HSE here in Ireland and I can't afford it on my own)
 
What a horrible experience for you. What fascinates me is how different bodies react to glucose tolerance. About 15 years ago I was teaching a dyslexic child one-to-one when I had to leave the room. I staggered outside and was very sick in a hedge. I knew I had DKA because all my muscles felt as though I had run 10 miles with 40 lbs of sand in my backpack, my breathing was very shallow and I had eye ache.I tested and was 32.6. I always carried a syringe and insulin in a superb Swiss travelling case and I gave myself a large dose of fast acting. I managed to drink some water and went back to my pupil. We had a very scientific chat!
My control at the time was good, but this was sparked off by yet another bug going round the school. I had wondered whether I had not injected earlier that morning. I tested every 2 hours and found by the evening it had come down to 16. Still not good, but I felt it was going the right direction. It wasn't until mid morning the next day that I could eat any carbs, and even then I was extremely cautious. The point I am trying to make is that although this worked for me, clearly it wouldn't have for you. I wonder what level your body had become accustomed to before the barriers came down? Whatever, I'm glad you did the right thing and that burnout has been reversed. Good luck!
Sorry, I meant to say welcome to the forum.
 
Thanks for sharing your story @Steven_T1D . I'm sure it will resonate with many other T1s on here. It's brave to step up and admit mistakes.
Should you start to get signs of burnout again, do say so, there'll be plenty of support from here and maybe you can avoid such a scary situation again.
Welcome
 
Hi, welcome. Sounds terrible :( may I ask, did you stop injecting altogether in the lead up or just intermittent? I have never had DKA but don’t take care of my db as I should, just wondering how neglectful I need to avoid being, very interesting to read a first hand account, I’m sure this will kick me up the back side and maybe will make others like me think, well done, who knows how many your post could potentially help. Thanks for sharing.
 
Thanks for the warm welcome everyone and I'll definitely be straight on to the forum here if I feel burnout starting again.

Hi, welcome. Sounds terrible :( may I ask, did you stop injecting altogether in the lead up or just intermittent? I have never had DKA but don’t take care of my db as I should, just wondering how neglectful I need to avoid being, very interesting to read a first hand account, I’m sure this will kick me up the back side and maybe will make others like me think, well done, who knows how many your post could potentially help. Thanks for sharing.

To be honest, I was only injecting very intermittently. Not sure why, as I know I need to take it, but I just seemed to lie to myself that it wouldn't kill me or hurt me down the road it **** near killed me and I dread to think what long-term damage it's done
 
I'm hoping that they will approve a CGM (It's a mission to get one funded through the HSE here in Ireland and I can't afford it on my own)

As a fellow Irishman this annoys the hell out of me, all our UK NHS cousins must have gone through the same.
The cost benefit is a no brainer on the health system
 
Hello @Steven_T1D

Thanks goodness you're ok and this experience has given you the kick to reverse your situation, it's a frightening place to be in, but it also shows how quickly you can decline too. Please do not hesitate to shout for support if you ever need it, hopefully this will never happen again, grasp this chance.
 
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