1. Get the Diabetes Forum App for your phone - available on iOS and Android.
    Dismiss Notice
  2. Guest, we'd love to know what you think about the forum! Take the Diabetes Forum Survey 2021 »
    Dismiss Notice
  3. Diabetes Forum should not be used in an emergency and does not replace your healthcare professional relationship. Posts can be seen by the public.
    Dismiss Notice
  4. Guest, stay home, stay safe, save the NHS. Stay up to date with information about keeping yourself and people around you safe here and GOV.UK: Coronavirus (COVID-19). Think you have symptoms? NHS 111 service is available here.
    Dismiss Notice
Dismiss Notice
Find support, ask questions and share your experiences. Join the community »

Been asked to join a trial at local hospital

Discussion in 'Diabetes Research' started by igual88, Feb 23, 2017.

  1. igual88

    igual88 Type 2 · Active Member

    Messages:
    25
    Likes Received:
    34
    Trophy Points:
    53
    Got a phone call from my doctor this afternoon asking if he could put me forward for a trial at my local hospital with the diabetes team , apparently I'm an ideal candidate with the right attitude.
    Assuming that's as a good thing lol.
    Been told to expect a call in next few days with more details etc , all! I know so far is its to do with a potential new treatment drug for T2 who are on metformin.
     
    • Like Like x 2
    • Informative Informative x 1
  2. mist

    mist · Guest

    As long as you don't wake up in a bath tub somewhere in Brazil with a kidney missing in a few weeks..:joyful:

    Sounds good, hope it works out well for you.
     
    • Funny Funny x 9
    • Like Like x 2
  3. sally and james

    sally and james Family member · Well-Known Member

    Messages:
    1,088
    Likes Received:
    1,837
    Trophy Points:
    178
    @igual88 In your position, I would be asking myself if I actually required a potential new drug. If I felt that that my present regime wasn't working and that this might be a chance of improving my life and health, I would consider it, but without a need, I would not consent to being experimented on. Do remember that, even if you are part of the trial, you may be given a placebo, ie a dummy pill. And do remember that the reason why a drug is being tested is because nobody knows really and truly what it does in real life, so you could be putting yourself at risk. Only you can weigh up the risks. Remember also, your doctor is possibly being paid to recruit you.
    Sally
     
    • Like Like x 2
    • Agree Agree x 1
    • Informative Informative x 1
  4. ME_Valentijn

    ME_Valentijn · Guest

    If attitude is part of the (unofficial?) selection criteria, that's a very bad sign :p Treatments should work regardless of attitude, and if they think attitude is important, they might actually be looking for people who they think will say what the researchers want to hear.
     
    • Agree Agree x 6
  5. asparagusp

    asparagusp · Guest

    Yes a couple of days ago there was a programme on BBC 2 wherein eight "patients" were undergoing new drug testing which went wrong. Catch it on player.
     
  6. Type1Bri

    Type1Bri Type 1 · Well-Known Member

    Messages:
    881
    Likes Received:
    876
    Trophy Points:
    153
    The thing is if nobody is willing to take part in research then nothing will ever change!
    To get to the research stage it has had to go through so much red tape already, and it needs people to trial it to make changes in the world.
    The media only report the horror stories of when it goes wrong, not the thousands of trials which have led to development of life saving treatments
     
    • Agree Agree x 4
    • Like Like x 3
  7. sally and james

    sally and james Family member · Well-Known Member

    Messages:
    1,088
    Likes Received:
    1,837
    Trophy Points:
    178

    Yes, but is a replacement for metformin a vital and life saving treatment, or simply a new way of making more money? I would suspect the latter, there's no profit to be had out of Met. The OP is T2, so hardly needs a life saving drug, just a free, health saving diet. I can hear the tills ringing.
    Sally
     
    • Agree Agree x 3
    • Like Like x 1
  8. paulliljeros

    paulliljeros Other · Well-Known Member

    Messages:
    417
    Likes Received:
    429
    Trophy Points:
    103
    As @Type1Bri said, without trials we would never have any new medications. The risks are real, but so are the rewards. I do not know th OP, but maybe "the right attitude" simply refers to such things as interest in improving diabetes, or a willingness to consider alternative drugs that have less side effects than metformin?
     
    • Like Like x 5
  9. sally and james

    sally and james Family member · Well-Known Member

    Messages:
    1,088
    Likes Received:
    1,837
    Trophy Points:
    178
    Only the OP can make up his/her own mind, but if someone tried flattering me by telling me I had the "right attitude", I would be suspicious.
    Sally
     
    • Agree Agree x 2
  10. ME_Valentijn

    ME_Valentijn · Guest

    A trial should have a protocol published or posted online beforehand. Then you can see what they're up to, and how they're planning to go about it :p
     
    • Agree Agree x 1
  11. Is this to trial a new drug in addition to the metformin you are taking or instead of it? As you have only been diagnosed and on met for a few weeks, I find this weird. Good luck with whatever you decide to do.
     
    • Like Like x 1
  12. noblehead

    noblehead Type 1 · Guru
    Retired Moderator

    Messages:
    23,618
    Likes Received:
    19,618
    Trophy Points:
    278
    Agreed.

    Good luck with the trials @igual88 , keep the thread updated on your progress.
     
    • Like Like x 3
  13. igual88

    igual88 Type 2 · Active Member

    Messages:
    25
    Likes Received:
    34
    Trophy Points:
    53
    Evening peeps, think I should clarify the ( right attitude comment) my doc who knows me very well , knows I'm willing to be a test guinea pig as the NHS has literally saved my life on 6 occasions.
    Family are all connected to emergency services one way or anouther. And I hope this can. Be my way to help.
    I've done 4 trials in the past, non diabetes related, also been a rescue corpse , casualty, walking wounded at crisis training mass casualty events.
    Was even crazy enough to let a trainee dentist loose on me once, that was how shall I say an experience.......
    As and when more info unfolds if possible I will update as detailed as the trial allows assuming I accept.
     
    • Like Like x 4
    • Winner Winner x 4
  14. Snapsy

    Snapsy Type 1 · Well-Known Member

    Messages:
    2,552
    Likes Received:
    2,738
    Trophy Points:
    198
    Sounds really interesting, @igual88 - all the best with the trial!

    :):):)
     
    • Like Like x 4
  15. Pramod85

    Pramod85 Doctor · Member

    Messages:
    10
    Likes Received:
    1
    Trophy Points:
    43
    People should join the clinical trials for the benefit of future generations
     
    • Agree Agree x 2
  16. Lamont D

    Lamont D Reactive hypoglycemia · Master

    Messages:
    12,717
    Likes Received:
    15,744
    Trophy Points:
    298
    Having been a guinea pig with a paper written about my eOGTT tests with a drug, doing fasting tests and tests for intolerance to foods.
    I have learnt from that personal experience and it changed my lifestyle approach to food. Along with the knowledgeable support and advice I received from this forum.

    You have to have an open mind about what they are trying to achieve even if it sounds daft.

    Good luck with your tests!

    Best wishes
     
  17. videoman

    videoman Type 1 · Well-Known Member

    Messages:
    192
    Likes Received:
    98
    Trophy Points:
    68
    After doing ,I think 6 trials regarding Diabetic research which I found informtive;I would jump at it if I were you
     
    • Like Like x 1
  18. Mr_Pot

    Mr_Pot Type 2 · Well-Known Member

    Messages:
    4,309
    Likes Received:
    1,979
    Trophy Points:
    178
    Your advice is about a year too late but I would like to hear from @igual88 how he got on.
     
    • Agree Agree x 1
  • Meet the Community

    Find support, connect with others, ask questions and share your experiences with people with diabetes, their carers and family.

    Did you know: 7 out of 10 people improve their understanding of diabetes within 6 months of being a Diabetes Forum member. Get the Diabetes Forum App and stay connected on iOS and Android

    Grab the app!
  • Tweet with us

  • Like us on Facebook