purplesally
Active Member
- Messages
- 34
- Type of diabetes
- Type 1
This happened 30 years ago when I was first diagnosed so hopefully it wouldn't happen now...
Went to the GP to get test results (urine test for diabetes!) and was told yes I was diabetic. My parents were given the phone number for the diabetic clinic at the local children's hospital and told to ring tomorrow for an appointment, but told they might not be open that week as it was Jan 2nd. My parents rang as soon as we got in and the DSN couldn't believe what she was hearing and told them to take me in to A&E pronto - my blood was so high on arrival that they told us if I'd had my hot milk with lots of sugar for bed as normal I would probably not have been alive in the morning!
I had been at the panto that afternoon and had sweets and a massive coke so it was a particularly bad day but it's scary to think how close it was.
Then you are always going to fail. That range is practically impossible to stay inside, diabetic or not. It is a target, not a limit.
Being outside a range you have been told to be inside is not a compromise. It's a failure.
I'm told to be between 5 and 7. I am often outside that range. That is not a compromise. That is a failure. You can make all the excuses you like, the damage will still happen.
I'm told to be between 5 and 7.
I was told by the consultant yesterday and not Dr Google that I should ideally keep between 5-8You got told wrong then didn't you! A quick Google and you will find the ranges.
Don't take the lack of knowledge of 1 DSN as your knowledge base going forward.
Agree with this, it is just not possible to stay in this range even if you do everything perfectly - your body is like a random number generator, you don't always know what's going on and it's impossible to predict what will happen.
@NoKindOfSusie it's ok to be outside the range you want, and it's ok to call it a failure. But you have to be able to accept the failures, move on from them and learn from them. There are also degrees of failure. If my blood sugar is 9, it is a little bit high so I'm a little bit disappointed. If my blood sugar is 13, it is catastrophically high and is consequently a huge failure. But having bad blood sugars doesn't make ME a failure. As long as I tried my best and gave it the best effort I could, I never beat myself up about bad numbers. You can simultaneously recognise something is bad, but realise that you couldn't reasonably have prevented it. Then move on and do your best to treat it! If you did make a mistake, then acknowledge what it was so that you do better next time - but don't give up!
Its getting more possible to take the random number generator out though through the #wearenotwaiting movement. I'm currently using a closed loop insulin system as I know others are on the forum, still not perfect but definitely getting there (the not perfect bit is me - not the hardware)
I know people like these closed loop systems but I just can't trust it! In my experience, CGMs are not accurate enough for me to be comfortable with allowing a machine to adjust insulin off the CGM value without my input. I make my treatment decisions using more than just the number - sometimes meter values, how my body feels, my plans for the rest of the day - and often the best treatment decision is not to give or reduce insulin (I often use spontaneous, short exercise sessions as high treatments, and under bolus for upcoming food as a dropping/borderline low treatment). I like to be completely in control of my treatment, so while it may be an improvement for others, I am not comfortable with these new systems and would like to make all decisions myself.
What is your opinion on CGM accuracy and which one do you use?
Being outside a range you have been told to be inside is not a compromise. It's a failure.
I'm told to be between 5 and 7. I am often outside that range. That is not a compromise. That is a failure. You can make all the excuses you like, the damage will still happen.
You're so positive. Carry on
The one guaranteed thing with life is that we will die, yes diabetes probably will kill me off slightly earlier than it would otherwise - but to be honest I've already beaten what the doctors told my parents when I was diagnosed (I only found it out last year when my mum had drunk a little too much lol), they didn't reckon I'd make it to 35 and I'm still going strong with minimal issues (some retinopathy in my lazy eye but it's stable and doesn't need anything doing to it) - and believe me my control has never been perfect.I am personally unable to sit here thinking positive thoughts about something that is probably one day going to kill me,
I can be positive if you like. Yay it is great fun I am loving every minute of it. But that's just stupid isn't it. Completely unforgivably stupid. I am personally unable to sit here thinking positive thoughts about something that is probably one day going to kill me, and it is going to make my life inbetween times a total misery. I can barely work, I can't really go out at all, I can't do anything without the constant knowledge that everything affects it therefore I should really avoid doing EVERYTHING.
What the hell do you want from me.
Ma'am I'm not a dr but am sure a non d will fluctuate outside those values, they're an ideal target, a good aiming point but impossible to maintain ad infinitum.I'm told to be between 5 and 7.
I use Dexcom G5 and find the accuracy to be excellent especially in the first two weeks. I'm currently using out of date sensors which seem to have a reduced lifespan (15 days instead of 20+) but they are still good especially with the recommended calibration intervals. I do test between to check accuracy too.
The closed loop system doesn't just work from the number either - I give it a lot more info and over ride it if I feel necessary but it hasn't happened yet
Ma'am I'm not a dr but am sure a non d will fluctuate outside those values, they're an ideal target, a good aiming point but impossible to maintain ad infinitum.
Perhaps I'm more laid back having had it 33 years and back then we didn't have the tools for close control, I've got some background retinopathy so far.
To move forward I'd suggest a more pragmatic outlook on 'compromise'.
The more you test the more you learn.
Yup, that's correct.Also no other condition asks more of a patient, (@tim2000s I believe that was a quote in your signature, it stuck with me)
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