I have learned that the best way to treat a HCP is" I will take that to avisandum" ie "I will take that under advisement". That is I do not blindly believe or disbelieve them, rather I go away and research what is said, and make up my mind depending on what I find. 8)Mongoose39uk said:While I can see your point to some extent I can't say that I always trust GP's
brett said:Good advice for one person is bad advice for another. sometimes though there is very bad advice given which could have serious consequences. sometimes though, questions are asked without complete background info which would have bearing on the answer.
Its a forum, a place for people with one common problem. Diabetes can have a massive impact on health and cause numerous other conditions, which everyone will not have though many will. This forum offers a support system for people to discuss/ask/answer.
should be taken as read that any advice given its just that, and always discuss with you own healthcare pro before doing anything.
Must admit though getting a bit fed up at the mo as there have been alot less supportive, helpful threads of late, resulting in quite heated discussions, which unfortunately I have been Involved in.
Sent from the Diabetes Forum App
The way i heard it was "We all have one, but you shouldn't trumpet it in everyone's face" :lol: :lol: :lol:catherinecherub said:Just remember that opinions are like backsides, we all have one.
Maybird said:I do worry about some not very good advice given on here, I thought the forum was about encouragement and support and mostly it is but there are some very self opinionated members who seem to be hell bent on trying to frighten people into doing what they do as they think their way has got to be the right way
...
So the advice that should be given on this forum should be always check things with your GP or DN before you do it
Dillinger said:Maybird said:I do worry about some not very good advice given on here, I thought the forum was about encouragement and support and mostly it is but there are some very self opinionated members who seem to be hell bent on trying to frighten people into doing what they do as they think their way has got to be the right way
...
So the advice that should be given on this forum should be always check things with your GP or DN before you do it
Isn't the forum about people with diabetes sharing their experiences? There is a lot of encouragement and support but the key thing is most diabetics in this country are doing pretty badly with their diabetes under their current NHS care. I am a Type 1 and it is well documented that 96% of Type 1 diabetics (who get a great deal of support compared to our Type 2 brothers and sisters) fail to get HbA1c's under 6.5% (in old money). Most non-diabetics have HbA1c's under 5.5% and many have much lower than that. That is not an accident; that is a healthy body's preferred state.
In the real world then the advice from our GPs or DN is just not cutting it; the advice here is, in my opinion, far superior to the standard advice I receive under the NHS; and the key element of that advice that helped me the most was 'go low-carb'.
Now, you may be worried about that; and that is fine - it's good to worry and it's good to think. But I humbly suggest that you are on a journey; all of our journeys start with the orthodoxy of diabetes treatment given by our HCPs and all of them must almost inevitably end with the realisation that there is a maximum amount of carbohydrates that you can safely tolerate.
All Type 2's will have different insulin sensitivity and different pancreatic function and that will probably change for the individual over time so I completely agree that one person's 'safe level' of carbs is not going to necessarily work for another person or that same person 10 years down the line.
Where none of us are different though is that we all have a chronic inability to process blood glucose and that inevitably leads to a self evident conclusion.
Even if low-carbing was not the best way to manage diabetes (which it is) there is no harm recommending it as a lifestyle choice because there is no proper documented evidence that it causes health problems; I'm very concerned about my health and I really would not be doing something that put me, or was likely to put me at risk so I'm very sensitive to this.
It goes without saying I hope that no one feels that anyone is forcing people to do anything; I wonder how suggestable someone needs to be to obey unquestioningly instructions on an anonymous public forum?
A forum is somewhere to exchange and discuss ideas; you are essentially saying 'I don't like all these ideas being exchanged and discussed'. Do you see a problem with that approach and using the forum?
By the way what 'not very good advice' are you worried about? If there is something specific I'm sure people would be happy to discuss it with you.
Best
Dillinger
nomistheman said:It's unfortunate that it seems that Diabetes is not as well understood by GPs and Practice Nurses as it should be. I will add that the specialists - Diabetic Nurses, endocrinologists, etc are generally much better.
Yorksman said:Still, they've built a nice new reception area, replacing the original as the purpose built practice is now nearly ten years old. I think they did it so that you could no longer see the Undertakers opposite whilst sitting in the waiting room.
Maybird said:I do worry about some not very good advice given on here, I thought the forum was about encouragement and support and mostly it is but there are some very self opinonated members who seem to be hell bent on trying to frighten people into doing what they do as they think their way has got to be the right way
noblehead said:Maybird said:I do worry about some not very good advice given on here, I thought the forum was about encouragement and support and mostly it is but there are some very self opinonated members who seem to be hell bent on trying to frighten people into doing what they do as they think their way has got to be the right way
Maybird, the forum is and always has been about encouragement and support. The 'opinionated members' you refer to probably mean well but don't put themselves across too well, most low-carbers on the forum don't feel that they need to push their view or shout about their diet and appreciate that everyone is different.... meaning they know too well that a low-carb diet isn't for everyone.
When I joined the forum 5 years ago I appreciated the help and advice I received, I started off on low(ish)-carb diet but knew this wasn't sustainable in the long-term so gradually increased my carb level whilst carefully monitoring my bg, through experience, reading and completing a carb counting course I managed to bring my Hba1 down and now have very few high's and low's as I did before, it's all about finding what works for the individual rather than following what everyone else does, as a type 1 I don't see the need to restrict carbs any more than you need to....
As for people advising members on medication and such, it does say in the forum rules that this isn't tolerated and members should always seek the advice of their HCP's, over the years I've seen some shocking advice to the point that the Admin & Mods have had to intervene, if you see anything that concerns you then you should report the post using the triangle or send a pm to a moderator or member of Admin.
As we always say on the forum we are all different and what works for one doesn't always work for another, so do stay around
No I certainly am not saying "I don't like these ideas being exchanged and discussed how how silly would that be as a forum is all about discussionDillinger said:Maybird said:I do worry about some not very good advice given on here, I thought the forum was about encouragement and support and mostly it is but there are some very self opinionated members who seem to be hell bent on trying to frighten people into doing what they do as they think their way has got to be the right way
...
So the advice that should be given on this forum should be always check things with your GP or DN before you do it
Isn't the forum about people with diabetes sharing their experiences? There is a lot of encouragement and support but the key thing is most diabetics in this country are doing pretty badly with their diabetes under their current NHS care. I am a Type 1 and it is well documented that 96% of Type 1 diabetics (who get a great deal of support compared to our Type 2 brothers and sisters) fail to get HbA1c's under 6.5% (in old money). Most non-diabetics have HbA1c's under 5.5% and many have much lower than that. That is not an accident; that is a healthy body's preferred state.
In the real world then the advice from our GPs or DN is just not cutting it; the advice here is, in my opinion, far superior to the standard advice I receive under the NHS; and the key element of that advice that helped me the most was 'go low-carb'.
Now, you may be worried about that; and that is fine - it's good to worry and it's good to think. But I humbly suggest that you are on a journey; all of our journeys start with the orthodoxy of diabetes treatment given by our HCPs and all of them must almost inevitably end with the realisation that there is a maximum amount of carbohydrates that you can safely tolerate.
All Type 2's will have different insulin sensitivity and different pancreatic function and that will probably change for the individual over time so I completely agree that one person's 'safe level' of carbs is not going to necessarily work for another person or that same person 10 years down the line.
Where none of us are different though is that we all have a chronic inability to process blood glucose and that inevitably leads to a self evident conclusion.
Even if low-carbing was not the best way to manage diabetes (which it is) there is no harm recommending it as a lifestyle choice because there is no proper documented evidence that it causes health problems; I'm very concerned about my health and I really would not be doing something that put me, or was likely to put me at risk so I'm very sensitive to this.
It goes without saying I hope that no one feels that anyone is forcing people to do anything; I wonder how suggestable someone needs to be to obey unquestioningly instructions on an anonymous public forum?
A forum is somewhere to exchange and discuss ideas; you are essentially saying 'I don't like all these ideas being exchanged and discussed'. Do you see a problem with that approach and using the forum?
By the way what 'not very good advice' are you worried about? If there is something specific I'm sure people would be happy to discuss it with you.
Best
Dillinger
popsy said:I have been diagnosed T2 for 3 years. To say I knew nothing about diabetes is putting it mildly, I never once suspected that all the stuff going on was the result of soaring blood sugar. On a visit to the doc about something quite other, she said have you had a GTT? A what? Oh, no never. Ok we will book you in for one, meanwhile jump on these scales will you? And I will take your blood pressure too. Result? T2 diabetic, oh ok...what's that about then? I got told the basics, put onto Metformin and made 3 monthly visits and....well you know. I didn't take it seriously, just thought ok this Metformin will take care of that won't it? Um, no. 3 years down the track and I am onto Glipizide and THEN I thought hmmm maybe I had better research this. The search I put in was Diabetec Medication and up came DCUK. 3 hours later I thought it's a bit late, better go to bed :wink: From that day to this I have logged in everyday. 99% of the info I know about diabetes came from you guys. I read it all, all the opinions, all the advice and all the results. So I tried full fat, very low carbs, a bit higher carbs so on.... I found I couldn't have full fat it makes me feel unwell, very low carbs cause me to hypo so through experimentation plus almost obsessive blood prick tests I have a regime I can live with. It's mostly low fat with around 80g carbs a day. Since I was diagnosed I have lost around 15kgs, I take a raft of meds and mostly feel just great even if I do rattle!
What I am saying is that this site has given me the confidence to see just exactly what suits me. How I live is good for me, it won't always be, diabetes is progressive as we all know BUT I am now familiar with my condition and I know what to do if and when it changes. I took every bit of information you guys could give me, I HAD to, I knew zilch. How I live now is due to the stuff I have learned on here plus a little bit from my most excellent doctor.
So thank you for all you varied and diverse diabetics. Thank you to Andy12345 whose comments are always given with passion and an overwhelming desire to help other people. Thank you Whitbyjet, catherinecherub and all you regular posters who have changed my life and helped me to understand that although my health isn't perfect it IS my health and for the first time in my life I can be exactly what I am supposed to be...In Charge Of Me!
Definition of Forum:
fo·rum
1.
the marketplace or public square of an ancient Roman city, the center of judicial and business affairs and a place of assembly for the people.
2.
a court or tribunal: the forum of public opinion.
3.
an assembly, meeting place, television program, etc., for the discussion of questions of public interest.
4.
the Forum, the forum in the ancient city of Rome.
The bottom line I suppose is take what you need and discard the stuff that maybe won't be so helpful. I would have been crazy to take the first advice I came across and chuck out the rest, life is all choices, it's what we are made up of every single day. Our choices are what make us what we are aren't they?
Maybird said:popsy said:I have been diagnosed T2 for 3 years. To say I knew nothing about diabetes is putting it mildly, I never once suspected that all the stuff going on was the result of soaring blood sugar. On a visit to the doc about something quite other, she said have you had a GTT? A what? Oh, no never. Ok we will book you in for one, meanwhile jump on these scales will you? And I will take your blood pressure too. Result? T2 diabetic, oh ok...what's that about then? I got told the basics, put onto Metformin and made 3 monthly visits and....well you know. I didn't take it seriously, just thought ok this Metformin will take care of that won't it? Um, no. 3 years down the track and I am onto Glipizide and THEN I thought hmmm maybe I had better research this. The search I put in was Diabetec Medication and up came DCUK. 3 hours later I thought it's a bit late, better go to bed :wink: From that day to this I have logged in everyday. 99% of the info I know about diabetes came from you guys. I read it all, all the opinions, all the advice and all the results. So I tried full fat, very low carbs, a bit higher carbs so on.... I found I couldn't have full fat it makes me feel unwell, very low carbs cause me to hypo so through experimentation plus almost obsessive blood prick tests I have a regime I can live with. It's mostly low fat with around 80g carbs a day. Since I was diagnosed I have lost around 15kgs, I take a raft of meds and mostly feel just great even if I do rattle!
What I am saying is that this site has given me the confidence to see just exactly what suits me. How I live is good for me, it won't always be, diabetes is progressive as we all know BUT I am now familiar with my condition and I know what to do if and when it changes. I took every bit of information you guys could give me, I HAD to, I knew zilch. How I live now is due to the stuff I have learned on here plus a little bit from my most excellent doctor.
So thank you for all you varied and diverse diabetics. Thank you to Andy12345 whose comments are always given with passion and an overwhelming desire to help other people. Thank you Whitbyjet, catherinecherub and all you regular posters who have changed my life and helped me to understand that although my health isn't perfect it IS my health and for the first time in my life I can be exactly what I am supposed to be...In Charge Of Me!
Definition of Forum:
fo·rum
1.
the marketplace or public square of an ancient Roman city, the center of judicial and business affairs and a place of assembly for the people.
2.
a court or tribunal: the forum of public opinion.
3.
an assembly, meeting place, television program, etc., for the discussion of questions of public interest.
4.
the Forum, the forum in the ancient city of Rome.
The bottom line I suppose is take what you need and discard the stuff that maybe won't be so helpful. I would have been crazy to take the first advice I came across and chuck out the rest, life is all choices, it's what we are made up of every single day. Our choices are what make us what we are aren't they?
Yes I do agree that we should take what we need from the forum and make our own choices but some people are very undecided as to what they should be doing and are willing to try anything that is suggested that works for others
I weigh it up and decide if it is for me or not and I certainly discarded the advice I was given suggesting I should change my low fat diet for a high fat one as they had done. That really shocked me that someone could suggest something that could actually be harmful for someone to change .. a high saturated fat diet is not recommended for anyone these days and could be even more harmful to those whose diet is a vital part of their treatment but that may not be enough to stop some from doing it.
That is why I think when it comes to diet advice on here people should be careful in what they say and how they say it and should always make the point that it works for them but may not be suitable for everyone. That is why I say sometimes it's best to check with the professionals as you do not want to do anything that could be harmful to you
Maybird said:That really shocked me that someone could suggest something that could actually be harmful for someone to change .. a high saturated fat diet is not recommended for anyone these days and could be even more harmful to those whose diet is a vital part of their treatment but that may not be enough to stop some from doing it.
Just found this on the forum good advice and just what I am saying
To all members
When giving out ANY information regarding diabetes, whether it's medication, foods or from your own personal experience. please ensure that you check and check again that the information you have posted is correct. As giving out misleading information or quotes (unintentionally) could put another diabetic in real danger. If in doubt, don't post.
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