I asked at the time I was told they couldn’t sell them to me anymore and she said yes. My GP won’t write a private prescription for free so it just jacks the cost up it’s already too much to pay but what can people who’s CCGs aren’t funding FS libre do?
If you know which CCG has made the decision I think there is a complaint procedure, I just googled and found a complaints page for Fareham and Gosport CCG, that was just random, they came top in the search, but I assume others will have a similar complaint process.
My feeling is that writing to your MP might be a good option. Whichever direction you chose, you could explain how useful it has been to you, in reducing hypogylcemic and hyperglycemic events, and your average blood glucose, or whatever it's done. If you google your ccg and freestyle libre you should find a document outlining their decision, most of the reasoning given is pretty naff, of the ones I've seen. So it would be worth asking why there has been no consideration of the long term benefits that better control brings, in the decision making process, as there almost certainly hasn't. I think that might be legitmate ground for complaint.
It might also be quite interesting, if you are using MDI to point out that this is lower cost treatment than a pump, but that pumps are usually given to people with poor control, and if people on MDI can improve their control then they are less likely to need pumps, so why has this cost saving not been considered?
These are just ideas, if you can think of any other things they should have considered then obviously include them.
Then explain you can no longer buy them at boots, and that getting them from Abbotts is too expensive, and impossible anyway, and ask them to contact the CCG to find out when the decision will be reviewed.
I used to work for an MP, so this is based on my experience, of one, who was very good with casework, but they're all different and they all respond in different ways. I wrote a couple of letters to my own, who was completely and utterly useless, she lost her seat.
If your MP is useless then don't waste your time, just write a letter of complaint to the CCG, maybe copy it to NHS England, or something.
It's just pressure, they will have to give in in the end, because it's an absurd situation that some areas are offering it, and some aren't when the benefits are so obvious, but the decision making seems to have been so poor, in the ones I've read, it's really worth challenging them.
