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Can someone describe neuropathic pain for me?

Discussion in 'Diabetes Complications' started by PaulinaB, Aug 29, 2014.

  1. PaulinaB

    PaulinaB Type 1 · Well-Known Member

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    I think I'm a similar case. My legs are usually just uncomfortable, the pain cames and goes. If it's really bad, ibuprofen can numb it enough. I stopped gabapentin now and my bg is back to normal.

    Thanks everyone for sharing,this has been really helpful!

    Do you usually find that activity helps with the pain or makes it worse?
     
  2. caulfiek

    caulfiek Type 2 · Newbie

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    Hi, I've got the same thing, like nettles on your feet, or the sandy flips flops on sunburnt feet described earlier. Gets worse at night, stops me sleeping can't go on like this. So my GP has prescribed Cymbalta (60mg per day), my feet seem to have started to get better but .. I feel sick quite alot, my appetite has gone and I have what I can only describe as mild 'bed spins' (if you've every had too many g&ts you'll know what I mean).
    It's early days yet but I think the cure may turn out to be worse than the nuropathy. Will give it a few weeks before reviewing with my GP.
     
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  3. kman

    kman Type 1 · BANNED

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    Sounds like the right thing to do, hope all works out for you. !
     
  4. stuffit

    stuffit Type 2 · Newbie

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    Peripheral neuropophy?
    I would describe it as standing barefoot on a block of ice for ten minutes. The pain may be excruciating. I guess it relates to vascular problems.
    I have already lost all my toes on my left foot and the right foot is suspicious. The major problem is foot or ankle ulcers that can take many months to heal, if at all. I'm not a medical person, just explaining my own experiences.
    Angioplasty appears to be 'maybe' help, but is not the solution. The only solution seems to be avoiding Diabetes Melitus completely, difficult when one already has the problem.
    Perhaps, grin and bear it.
    Hope your pain and discomfort dissipates.
     
  5. Sable_Jan

    Sable_Jan · Guest

    I was trying to figure out if you meant GP or not - though I thought a GO might be some diabetes "professionals"/ specialists might have had those initials. Good old predictive text ;)
     
  6. Bob_k

    Bob_k Type 2 · Newbie

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    Hi
    I know I'm joining this discussion about 12 months late but this is the nearest topic relevant to my concerns about neuropathy.
    About 12 months ago after a night out at Christmas,having had a few too many drinks but not enough to not know what I was doing.I woke
    up next morning .The calf of my right leg felt as if it was in a vice.
    I had this pain for about a week then it went.I then started noticing in work after walking or climbing stairs that I could feel this same vice like pain it was also painfull in my foot.
    17 years ago I had a stent inserted in my left leg ,an artery was blocked so I feared the worst.I went to my GP he referred me to have
    the circulation in my legs checked,everything was fine,so I was refered to a physiotherapist,they sent me for an MRI scan to check
    for spinal stenosis,again this was normal.By now it's around May
    and the pains are getting worse and the distance walked before the
    onset of the pains was considerably less.The physio then sent me for nerve conduction tests,where I was told I had very mild neuropathy
    .He stressed it was only mild and nothing to worry about and the next
    visit to my GP I should mention it.which I did ,he said he would not
    give me any treatment for it until he received the results back.
    Before my visit to the doctors I read up about neuropathy and found
    one of the main causes of neuropathy is diabetes.I had been diagnosed with borderline diabetes in April after routine heart check
    .so I asked my GP should I have a check for diabetes considering I was borderline,he said I was not diabetic as I was only 42 and if I was over 48 then I would be.I was then refered to a neurologist,then my GP decided without getting the nerve conduction tests results back that I should start a course of gabbapentin,which I started on 30 September and worked my way up to 1600mgs a day.I got the appointment to see the neurologist mid October.he hit my leg a few times told it was old age 90 per cent of the time I'm 64 and underlying reasons for the other 10.he sent me for blood tests
    all this took about 10 minutes that included the blood tests.I have never felt so frustrated.He also wanted me to up the gabbapentin to
    3600mgs per day,which I'm now on with no improvement to the pain in my leg.
    I've been back to my GP and told him I don't think the pains are caused by neuropathy.he's basically told me to accept it ,but I can't accept that I could be in this horrific pain for good .My next stop is the pain clinic.
    Does anyone else have these symptoms with neuropathy.?
    I am so dressed out.
    Sorry if I've gone on a bit but I'm at my wits end.
    Rob
     
  7. Bob_k

    Bob_k Type 2 · Newbie

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    Oh by the way I was diagnosed with diabetes 5 weeks ago.
     
  8. JTL

    JTL Type 2 · Well-Known Member

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    Careful with the Gabapentin ...weight appears rapidly from nowhere.Twenty five years of being fourteen stone and within three months of starting the stuff I was eighteen and a half stone.
    I have many pains to do with arthritis of the spine
    Spondylolisthesis benign but very troublesome tumours on my spinal cord tumours on my cauda equina diabetic neuropathic bladder copd ....I'm falling apart ....pain clinic have now put me on Palexia which is helping. I stilltake the Gabba and Paracetamol too.
     
  9. Bob_k

    Bob_k Type 2 · Newbie

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    Hello.JTL.
    Thanks for your comments.I think I want to get off Gabapentin as soon as possible
    .I don't like the idea of taking that amount of tablets long term.
    Also you say about weight gain,although I've lost about 5 pounds
    in the 5 weeks since being diagnosed with diabetes I've been living
    like a monk.normally I would have lost a stone maybe.once I start
    getting back to eating more usual I could possibly balloon.
     
  10. Tim55

    Tim55 Type 2 · Well-Known Member

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    Hi Bob k

    I have had similar experiences, my initial problems started with a painful knee, followed by a developing numbness in my fingers and toes - like you get when you've been out in the snow too long, and I found I couldn't bend my toes over the edge of a swimming pool.

    By the time I decided i really ought to see the Doc it had got quite bad and I fell once or twice as I couldn't really tell where my feet where...

    He asked if I felt as if I was wearing socks and gloves, even when I wasn't, which actually summed it up pretty well.

    He told this was referred to as "sock and glove syndrome" and probably meant I was diabetic and suffering from peripheral neuropathy.

    Blood tests confirmed diabetes, initially feared to be late onset type 1 but it responded well to Metformin and LCHF so he decided it was Type 2.

    From reading the thread on here entitled "Help in dealing with Neuropathy" I cam across Alpha Lipoic acid and Vitamin B12 supplements, which are apparently routinely prescribed in Germany, but not over here.

    I have found these to help me and others have reported the same thing.

    It has cropped up again in the thread "Neuropathic pain"

    Both are worth a read I think, hope you find a solution, as I know how unpleasant it can be.
     
  11. JTL

    JTL Type 2 · Well-Known Member

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    This is how I lose weight and keep it off.
    http://www.dietdoctor.com/lchf
    Not just lose weight but lower bad cholesterol and raise good cholesterol. Lowered my blood pressure too meaning I'm on less medication and am much healthier.
     
  12. NotSoSweet2

    NotSoSweet2 Type 2 · Well-Known Member

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    Sorry I had to giggle at your description with that profile pic. And I know its no laughing matter but you described it so well! :)
     
  13. techman

    techman Type 2 · Newbie

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    I had mechanical neuropathy many years before I was diagnosed with diabetes, unfortunately for the past 7 years I have had Charcot and quite a bit of surgery to try to correct it (all failed). My neuropathic pain is like many described here, i always describe mine as having boiling water poured over your feet and all the nerve endings firing off at once. Gabapentin and various pain killers are currently working for me as well as trying to stay busy at work. Hope you get on ok.
     
  14. Raz47

    Raz47 · Newbie

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  15. Raz47

    Raz47 · Newbie

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    I've been a diabetic for twenty-five years. I've suffered from severe neuropathy in my feet as a result of diabetes. For years, it's kept me up most nights with horrible cramps and pains, and since it's caused by damaged nerves, there was nothing I could do.
    One of my clients in the medical field made me a pair of insoles with silver ion fabric. Within three days, my pain lessened and within a week, it was almost gone.
    For three years now, I no longer have to cope with neuropathic pain, and I sleep without waking up to unbearable pain.
    I wear these silver ion insoles in my shoes and slippers, and couldn't imagine my life without them.
    Thanks silver ease.
     
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  16. SuNuman

    SuNuman Type 2 · Well-Known Member

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    Yes my husband had this done. He’s not diabetic but terrible pains and burning in his leg. He said it was a needle that shocked him. X
     
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  17. SuNuman

    SuNuman Type 2 · Well-Known Member

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    I wasn’t allowed in with him. :( x.
     
  18. iz1

    iz1 Type 2 · Newbie

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    My neuropathy is getting worse since 2011. I have frozen shoulder on both, low blood pressure, faint once a month, very dizzy, tired, sleepy, nauseous, weakness, pain on my arms, biceps muscle pain besides my foot pains. When it first appeared I was going inside water and didn’t feel the cold water up to my ankle. One time my left three fingers went numb for 6 months. I use max dose lyrics with lots of side effects. I also have retinopathy, my eyes don’t see well under sun light. I have laser treatment and injections on both eyes. My condition is not getting better. Type 2 with insulin but still my h1a is 11.
     
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  19. Erin

    Erin Type 2 · Well-Known Member

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    Pins and needles effect, sometimes electric sensation (hands and feet esp.), but increased by back posture and pooh strain and constipation (sepsis maybe); as I have not been tested for this and it came upon me suddenly in 2018 post vaccine, post antihypertensives, post lithium med reduction, I suspect it may be lithium withdrawal; getting better with exercise;
     
  20. Erin

    Erin Type 2 · Well-Known Member

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    Sorry to repeat my reply post; I forgot to add yet another possible cause if diabetic neuropathy is excluded: clonazepam withdrawal. After taking it for 35 yrs. at the same dose, I may actually be having withdrawal similar to other neuropathies. One of the most frustrating things in medical diagnosis must be the similarity of symptoms for totally different disorders.
     
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