can someone please relate to this.

[red]

I wondered if anyone can relate to this.

I am really terribly struggling with the diagnosis of diabetes. I know there are a lot of worse things that people have to cope with and I know I might get slaughtered on here for saying this, but its just doing my head in so badly and I dont even totally understand why. I mean perhaps why is becuase there are so many mights, and unknowns and even if you're trying the hardest you can its still doesnt seem to work, and you dont really know how much damage/complications you have or will get.

Like all of us, I have coped with lots of things, and I am by no means weak, but I just wondered if this has/is really mashed up anyone's else's head, it feels like it is tourturing me, yessssss i know there is much worse that people have to cope with, I know and that doesnt make me feel good either.

Lastly, if you have got to terms with this, how did you do it. is there something you can read or understand that will help, I cant really deal with it right now.

 

[cugila]

Hi Red.

An awful lot of us struggled before coming to terms with the Diabetes. I was in denial, rebellion then just plain pig headedness until finally I saw the light, as they say.

There is no simple way to come to terms with this. Just take things one step at a time. Too much information just makes it so much worse. If you're like me you will just shut down and ignore stuff. Just continue to ask the questions here when you need to. Make sure it is one question at a time so that you are able to take in the information. Lot's of questions all at once just will confuse you.

We can help and support you but you have to help as well. Switching off is not an option if you want to get that control and improve your health.

Ken.

 

[deb100]

Hiya
I know exactly where you're at, what I did is... wrote down the mights and then tore them up whilst enjoying a glass of wine. There may be things that might happen but maybe they wont. After almost 10 years I now wonder what the fuss was about, and I'm probably fitter now than i was back then. You'll be fine.

 

[hanadr]

I try to live in a world where I worry about the things that are certain, like fuel bills and so on and leave the uncertain ones alone.
I have a T1 husband to worry about, a daughter, son-in-law and granddaughter that I worry about too. The young ones are all fit and well, so nothing in particular to fret me there.
No time left to worry about me. I just eat right, exercise right and hope it's enough
Hana

 

[sandymaynard]

Hi red,
It is a lot to take in the whole diabeties! It is hard to get your head around! I struggle to understand the whole lot of it!
I have had so much to deal with! I have tried so much to be able to find out everything that there is to know about the condition!
I have worried about everything! It can't be ignored! I am here if you ever need to chat or need added support!
Trust me I am not able to cope fully but I am trying!
Sandy

 

[phoenix]

of course you're not unsusual you have a disease that you think may change your life completely. You may have to alter your diet or lifestyle in a way you don't want to. You may feel why me, or you may blame yourself.
Naturally you don't want to accept it and wish it would just go away (or even better that there was a mixup with your blood test results and the doctor will tell you it was all a mistake.... sometimes I still feel this!)
I know I went through all that and more. It does get easier. For myself it was gaining control and realising that I could still do the things I wanted. I had a huge incentive to live a healthy lifestyle. Personally I have found that knowlege is power, the more I know about diabetes in general and how things work in my own body, the more it seems to help. Yes somewhere in the back of my mind I still worry about possible complications in the future but it doesn't dominate my day to day thinking.

 

[broxiebear1]

i have a great saying WHATS DONE IS DONE THERE IS NOTHING YOU CAN DO ABOUT IT well i was diagnosed 2 months ago and when db nurse asked what i thought about it i told her that i was going to control it as she says some people dont bother and live there lives as normal untill they have a heart atack or stroke . so out went the sugar cakes etc i still eat potatoes but not as many as i did i am not overweight just a few pounds over my b m i i do an active job ,male 52 ,never went to a doctor till i went for a checkup 50year plus mot lol and that was what i found out :|
have had eyes tested there ok nurse has put me on 1 asprine a day and 1 20mg lipitor for my colestral at the moment diet only as my 3 month ave was 6.8 my saying is slightly wrong WHATS DONE IS DONE THERE IS SOMETHING YOU CAN DO ABOUT IT
TAHE CARE . robert.

 

[red]

thank you for all of your responses
Red

 

[howie]

i wake up every morning and for a split second i feel like i'm back to normal, until i look over at my bedside table and see my testing equipment, lucozade and an insulin pen, then spend the whole day trying to convince myself it'll be ok. but at 22 there are many years for this to mess my body up.

at least i didn't get this any younger i spose, i am grateful for that.

 

[red]

that is really tough Howie, I really feel for you. Maybe if wont mess your body up though, and you are young and can still have a good life, maybe the complications wont happen for you. they are making advances all the time. Good luck with it and with your music composition.

 

[red]

good for you mate

 

[sugarless sue]

Well done Jan,it's a great feeling being in control isn't it?

 

[cugila]

Terrific story Jan. We are with you all the way. Well done.

Ken.

 

[Spiral]

Those feelings are not that unusual. My diagnosis wasn't a surprise, not with my dad being diabetic and having had gestatinal diabetes in 1997. What really scared me was the complications, I don't want to have those awful complications and I felt awful when I realised what my GP was telling me was that I had a progressive condition which will slowly get worse and will shorten my life. I felt really depressed and hopl,ess for a while.

But I'm very good at the medical model. I work with the medical model so I know that doctors are not always right and that there is more than one way to deal with things. So I looked around until I found something I could work with, and that didn't involve quite so much self blame. I found bloodsugar101 by accident and it offered a bit more hope that I could avoid the complications if I took control of my blood sugar. If I did that, then maybe I wouldn't have diabetes.

I thought that it would be okay, I wouldn't really have diabetes if only I stopped eating sugar and improved my diet by not eating so many (pasta based) ready meals. If I ate properly with fresh and raw, then I woud reverse this diagnosis. I was caring for somenoe and was too knackered to cook properly most of the time and lived off toast. I felt really depressed when my second HbA1c had only reduced from 7.8% to 7%, because I thought I'd worked really hard :? and had lost loads of weight :cry:

Since I found this website I have found the support I needed to get to grips with my blood sugar and I think I have accepeted that I have diabetes, but there are days when it is really hard to stay with the program :? Constantly refusing the lovingly prepared home made cakes that colleagues bring in to work :cry: and on the days before my period starts when I just want to give in to the cravings I have for chocolate and toast and Marmite. And the days I seem to have no control at all over my blood sugar and I can see the average which had gone below 6mmol/L creeping up again :cry: and however hard I try I just can't seem to get my BS below 6, so why bother

I'm going on holiday at the weekend. I delayed sorting it out because I was a bit worried about being a low carb vegetaian diabetic in the land of fish/sheep/beef and deep fried mars bars (Scotland). I will do the best I can while I am away, and any worsening of my numbers will prove to me that I am a diabetic and that eating the right food is very important.

And what is really amazing is how delicious low carb food is after years of hating that health low fat low sugar food and how much better I feel on it Even tho I do still have off days when all I want is toast and marmite and it isn't fair... But no one said life had to be fair :?

This website has been amazing because there are people here who have such great control, reversal of some symptoms and have improved so much in such a short space of time. And they are so generous with their time and advice in responding to questions and our need for support - because this is hard work. I'm begining to think my diagnosis is probably the best thing to have happened for a while because now I don't get headaches so much, I have more energy, my indigestion, heartburn and acid reflux has gone and my teeth don't feel quite so "furry" in the morning!

 

[gbtyke]

I lost a cousin age 16 Knocked off a pushbike, Lost a cousin age 17 knocked off a motorbike. Lost my father age 59 with heart attack, lost elder brother age 59 with heart attack, lost best friend age 28 with some immune disease. One neice at the moment (In her 30's) battling blood cancer. My wifes best friend at the moment being treated for mouth cancer. My youngest son diagnosed type 1 aged 21. I find this diabetes thing a bit of a doddle (even if I do hate needles) as I got late diagnosis at an age when my father and brother were already dead. So as you say you don't know what's ahead - but the complications may not even be diabetes related. Do what you can - ignore the rest.


G.