All the insulin units I give myself are what the diabetic nurse tells me to take, she puts them up every time I speak to her.
I don't post very often but I do look around the forum quite a bit.
Well I don't really know where to start as there is so much going on at the moment. So here goes, I went to the doctor for a check up and blood tests a couple of weeks ago, I was with the nurse for 1 1/2 hours as I've been having a lot of issues with my diabetes. My hba1c is 133, my kidney disease has gone to stage 4 and they are talking about dialysis.my sugars are very rarely below 18. I wake up at least 7 times in the night for a wee and if I'm not doing that I'm laying awake with cramps. I've got bad nephropathy in my feet and the worst throbbing in my fingers. My vision is getting worse day by day. I've been waiting for an iron infusion since may. All of this is while im giving myself 48 units of levemir in the morning and 52 at night. Novoraoid is 18 breakfast 11 lunch and 39 with dinner and none of this is making any difference, I can go to bed and my sugars might be 17/18 and I can wake up in the morning and they can be 26+. I eat healthy and have an active job, which I'm slowly coming to an end with that due to the way my health is, as I'm running out of energy and being a roofer things could get complicated.
I've well and truly had enough I'm so depressed with it all, all I do is do what the doctors say and nothing is working, the insulin is clearly not working. The whole thing is really getting to me, I send my days feeling tired and in pain from the cramps. Also I'm scared about my hba1c (133) , my kidneys and my vision, stroke/ heart attack. I feel lost and alone , I'm married but don't want to worry my wife and I feel I can't talk to my mum and dad as my sister died 5 years ago at age 35 due to diabetes.
I've always be a fighter but I'm warn out physically and mentally
All the insulin units I give myself are what the diabetic nurse tells me to take, she puts them up every time I speak to her.
I don't post very often but I do look around the forum quite a bit.
Well I don't really know where to start as there is so much going on at the moment. So here goes, I went to the doctor for a check up and blood tests a couple of weeks ago, I was with the nurse for 1 1/2 hours as I've been having a lot of issues with my diabetes. My hba1c is 133, my kidney disease has gone to stage 4 and they are talking about dialysis.my sugars are very rarely below 18. I wake up at least 7 times in the night for a wee and if I'm not doing that I'm laying awake with cramps. I've got bad nephropathy in my feet and the worst throbbing in my fingers. My vision is getting worse day by day. I've been waiting for an iron infusion since may. All of this is while im giving myself 48 units of levemir in the morning and 52 at night. Novoraoid is 18 breakfast 11 lunch and 39 with dinner and none of this is making any difference, I can go to bed and my sugars might be 17/18 and I can wake up in the morning and they can be 26+. I eat healthy and have an active job, which I'm slowly coming to an end with that due to the way my health is, as I'm running out of energy and being a roofer things could get complicated.
I've well and truly had enough I'm so depressed with it all, all I do is do what the doctors say and nothing is working, the insulin is clearly not working. The whole thing is really getting to me, I send my days feeling tired and in pain from the cramps. Also I'm scared about my hba1c (133) , my kidneys and my vision, stroke/ heart attack. I feel lost and alone , I'm married but don't want to worry my wife and I feel I can't talk to my mum and dad as my sister died 5 years ago at age 35 due to diabetes.
I've always be a fighter but I'm warn out physically and mentally
All the insulin units I give myself are what the diabetic nurse tells me to take, she puts them up every time I speak to her.
Thank you all so much for your kind messages.. I will try and answer them in one message.
I am under the specialist diabetic team at the hospital and was getting weekly phone calls which went on for a few months, but I missed one call and she stopped calling. I rang the clinic and left voicemails but never heard anything back. I haven't seen them since December last year and that includes the kidney specialist..I seen to have fallen through the net as far as the hospital are concerned. When ever I do see my gp or nurse all I ever get is bad news, but nothing ever seems change. Like today for instance, the nurse from my gp surgery called today just to see how I'm feeling and also asked if the doctor had called me at the beginning of the week to talk about my kidneys and what they are planning to do i.e. Treat/medication.. I said no and all she said was, if they haven't rang by 4 on Monday, I've got to call them as it's urgent.well if it's urgent why didn't they call me. Also they are sending a letter to my kidney specialist.
So today I called the the diabetic team at the hospital and asked for an urgent phone call back ( still waiting ).
I've been offered the dapnie course for the last 4 years but nothing ever happens. I don't even know where to start with that.
When I do get to talk to someone ( the nurse today who I feel is the only one who cares ) it's all to much to take in, and when I get off the phone I'm so confused by it all, all I want to do is scream and cry.
I feel it's one step forward and three back.
I did feel a bit better once i put the post up.
I just feel so scared/lost/alone and let down.
My kidney specialist was also my sisters and he told me after she died that he promises me that he will do all can to help me. As he knew what a very slow and painful deaf she had and knew I was there to witness it and was scared that the same was going to happen to me.
Sorry to go on and once again thank you.
My mental health isn't great, it hasn't been for a while and all the worry and uncertainty is not helping. If I'm honest there has been a few times when I've felt like giving up. Some times I feel it's not worth taking my insulin or my other medication for my heart and kidneys, because all I do is take them and nothing is helping. It's so draining and I guess there's people on here that has felt the same at some point. Every day it seems to harder to cope with.Hi and thanks for sharing your physical health problems and you do still need to keep persisting that your surgery helps you by getting the right treatment.
Do not forget that A&E are still open and they have to see you and if they should have someone on call to help you.
You never mentioned your mental health except the frustration of not getting seen.
I can tell by your post that you also need to look after your mindset.
There are good options out there, but you have to make the first step. Have a Google about depression and anxiety and the people who are there to help you, it will be local and only too pleased to listen and advise what you can do to get the proper treatment.
Always remember you are not alone and help is out there.
The sooner you do the better the future will look.
I know from experience what it's like to go through getting a proper diagnosis and battling mental illness. I'm still struggling myself and its horrible, but I have had a couple of better days this week and no really bad days.
Please, look after yourself.
Stay safe.
Thank youAbout three months ago I was were you are now!
I had just been made redundant. There was a list of other things all more or less attributed to covid and I'm not exaggerating my brain couldn't cope and what is called a breakdown, my head just cracked and I closed down and it was the most awful moment in my life, I just sat down in the back garden and couldn't move, I couldn't think and I felt like I couldn't go on, I didn't want to face the next minute, I wanted the world to stop, to go back as if life hadn't done this to me. Why? What for? What did I do? Why me? I have an excellent work record. My dream job just dumped me.
I couldn't except what had happened. I couldn't comprehend the experience I was going through, I closed down.
I wanted everyone and every day problems would go away and leave me alone.
I was diagnosed with anxiety disorder because I couldn't stop thinking about how I was going to get through it, I was a failure, I let my family down, I was growing more introvert and on my own.
My anxiety was really bad, I was worried about everything and everyone, my family has a few who have had to shield because of age and underlying conditions, all my children are on the front line, and I have seven grandchildren and lots of cousins, nephews, nieces on both sides of the family, I'm an uncle to about fifteen, I have a large family, and we are close, as this virus continues, im becoming more isolated which is not helping.
So you see, my life ended as such as it was. I had two sides to my brain, my family and my sport. They took away my dream job in sport, and I had nothing to replace it.
One part of my conscious was void, I only had family, and because of covid I couldn't see them! I have struggled so much to get to a point, where now from the despair of not being useful, I now see the way ahead and I have to just hang in there a little while longer and, my life after covid is gonna be a lot better.
I do know what is going on with you and it does seem too much, but the alternative is worse not only for you but your family,.
You do really need to talk to your medical team and get the help like what I got which was unbelievable.
Just talking to someone will help.
Get your brain working, get your health sorted and move forward.
There are a lot of people out there who are worse off. There are a lot of people out there who have asked for help, why not you?
I don't post very often but I do look around the forum quite a bit.
Well I don't really know where to start as there is so much going on at the moment. So here goes, I went to the doctor for a check up and blood tests a couple of weeks ago, I was with the nurse for 1 1/2 hours as I've been having a lot of issues with my diabetes. My hba1c is 133, my kidney disease has gone to stage 4 and they are talking about dialysis.my sugars are very rarely below 18. I wake up at least 7 times in the night for a wee and if I'm not doing that I'm laying awake with cramps. I've got bad nephropathy in my feet and the worst throbbing in my fingers. My vision is getting worse day by day. I've been waiting for an iron infusion since may. All of this is while im giving myself 48 units of levemir in the morning and 52 at night. Novoraoid is 18 breakfast 11 lunch and 39 with dinner and none of this is making any difference, I can go to bed and my sugars might be 17/18 and I can wake up in the morning and they can be 26+. I eat healthy and have an active job, which I'm slowly coming to an end with that due to the way my health is, as I'm running out of energy and being a roofer things could get complicated.
I've well and truly had enough I'm so depressed with it all, all I do is do what the doctors say and nothing is working, the insulin is clearly not working. The whole thing is really getting to me, I send my days feeling tired and in pain from the cramps. Also I'm scared about my hba1c (133) , my kidneys and my vision, stroke/ heart attack. I feel lost and alone , I'm married but don't want to worry my wife and I feel I can't talk to my mum and dad as my sister died 5 years ago at age 35 due to diabetes.
I've always be a fighter but I'm warn out physically and mentally
It seems either you're not taking enough insulin or you're just eating to much carbs in relation to the dose. They have to balance. My advice is to ask about a DAFNE course (Dosage Adjustment For Normal Eating) which will help you to get the ratio right. Re the iron infusion, I'm assuming you've been told you're anaemic? That won't have any bearing on your bs, as its a separate issue.
All the insulin units I give myself are what the diabetic nurse tells me to take, she puts them up every time I speak to her.
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