Confused and distressed

KerenHermon

Member
Messages
10
Type of diabetes
Type 2
Treatment type
Other
I have suffered for a long time with nausea and diahrrea, no remedies have worked and recently had several continuous days where I could not eat or drink anything at all without vomiting. GP took me off my Byetta (Exenatide), which I have been on for several years, and the vomiting stopped. He told me that my blood glucose results were so close to normal that I no longer needed it, then when I went back two weeks later with my blood glucose results which were, obviously, higher, her said they were "reasonable" and suggested I stop taking the metformin as well because of the diarrhea. I asked him to please clarify what he meant by "reasonable", but he ignored that. I contacted the hospital consultant and am due to be put on a new medication but they wait until there is a group ready to start. I don't know how long this will take. With all the meds, my blood glucose was usually between 7 and 10, now its between 12 and 16 and I do not feel well at all. Is there anything I can do apart from waiting for the new drug? I am still taking some metformin, but a lower dose. Thanks.
 

dawnmc

Well-Known Member
Messages
2,431
Type of diabetes
Type 2
Treatment type
Non-insulin injectable medication (incretin mimetics)
Hi Keron, how's your diet? Were you on Slow Release Metformin? Reducing your carbs helps tremendously.
 
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ellagy

Well-Known Member
Messages
1,448
Type of diabetes
Type 2
Treatment type
Non-insulin injectable medication (incretin mimetics)
Hello Keren from another Byetta user! I do hope you sickness and diarrhea clear up for you!
 
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DavidGrahamJones

Well-Known Member
Messages
3,263
Type of diabetes
Type 2
Treatment type
Other
Dislikes
Newspapers
Is there anything I can do apart from waiting for the new drug? I am still taking some metformin, but a lower dose. Thanks.

Welcome to the forum, as someone who had dreadful problems with Metformin to the point where I stopped going to work and never left the house, I know what it's like.

As dawnmc says, lower carbs will have a 2 fold action, it will low BG and reduces the side effects of metformin. It might be just my experience but I'm just on metformin now after 17 years.
 
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KerenHermon

Member
Messages
10
Type of diabetes
Type 2
Treatment type
Other
Hi Keron, how's your diet? Were you on Slow Release Metformin? Reducing your carbs helps tremendously.
I can certainly reduce my carbohydrate intake I think. I seem to have a rampant appetite now either because I'm off the meds or because I just feel upset. Will go to work on that, thank you.
 
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KerenHermon

Member
Messages
10
Type of diabetes
Type 2
Treatment type
Other
Hello Keren from another Byetta user! I do hope you sickness and diarrhea clear up for you!
The sickness is already better, now I just have occasional nausea and am told that the new drug, when I get it, doesn't have the same kind of side effects. Thanks for your reply.
 
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KerenHermon

Member
Messages
10
Type of diabetes
Type 2
Treatment type
Other
Hi Keron, how's your diet? Were you on Slow Release Metformin? Reducing your carbs helps tremendously.
Yes, SR Metformin. Down to 1000mg now instead of 2000mg as before and am able to leave the house with confidence now! I'm going to work on reducing my carbs. Thank you.
 
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Fox1001

Active Member
Messages
36
Type of diabetes
Type 2
Hi, I started on Metformin, which gave me the same symptoms, I changed to Glycazide, and changed my diet slightly, my doc told me I didn't need meds anymore just diet controlled, saw my nurse ( very difficult) and my bs was 13.9, put back on Glycazide, one twice a day and given a new monitor, never really checked my bs, but have been told to, as of 10 minutes ago it was 21.9, oops what am I doing wrong, I have had a severe bacterial kidney infection, and this has damaged my liver, other than that feel fine, just drained, and tired, getting to see a diabetic specialist seems impossible, it does feel like I'm fighting this on my own, hope you get the help you need.
 
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Liam1955

Master
Messages
10,964
Type of diabetes
Type 2
Treatment type
Insulin
Dislikes
Anti-Gay People, Self Centre People, Two Faced People and Bad Language.
@Fox1001 - Hello and Welcome to the Forum :). @daisy1 will provide you with some basic information that all new members receive. Have a read around the other postings on the Threads and ask questions.
 

KerenHermon

Member
Messages
10
Type of diabetes
Type 2
Treatment type
Other
Hi, I started on Metformin, which gave me the same symptoms, I changed to Glycazide, and changed my diet slightly, my doc told me I didn't need meds anymore just diet controlled, saw my nurse ( very difficult) and my bs was 13.9, put back on Glycazide, one twice a day and given a new monitor, never really checked my bs, but have been told to, as of 10 minutes ago it was 21.9, oops what am I doing wrong, I have had a severe bacterial kidney infection, and this has damaged my liver, other than that feel fine, just drained, and tired, getting to see a diabetic specialist seems impossible, it does feel like I'm fighting this on my own, hope you get the help you need.
Thank you. I got to see a specialist by telling the nurse (NOT the GP) that my bg levels were wildly erratic and she got the doc to refer me. On the whole, over the years, it has been better talking to nurses than doctors in terms of getting help and solutions. Hop you get the help you need too,
 

LittleGreyCat

Well-Known Member
Messages
4,255
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Diet drinks - the artificial sweeteners taste vile.
Having to forswear foods I have loved all my life.
Trying to find low carb meals when eating out.
Is there a minimum amount of carbohydrate that I shouldn't eat less than per day?

Zero grams is the absolute minimum. :cool:

You will find plenty of postings here covering this topic; the main thing is to go as low as you can comfortably.

If you can initially get down to 100 grams of carbohydrate a day then that gives you a good baseline to decide if you need/want to go lower.

Very low carbohydrates is probably less than 60 grams per day.

Cutting back drastically on carbohydrates can be a little unsettling at first; think of it as withdrawal from an addiction. Some people have "carb flu" when they cut back on the carbs, others don't. Either way it should soon clear up along with the cravings.
 
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KerenHermon

Member
Messages
10
Type of diabetes
Type 2
Treatment type
Other
Zero grams is the absolute minimum. :cool:

You will find plenty of postings here covering this topic; the main thing is to go as low as you can comfortably.

If you can initially get down to 100 grams of carbohydrate a day then that gives you a good baseline to decide if you need/want to go lower.

Very low carbohydrates is probably less than 60 grams per day.

Cutting back drastically on carbohydrates can be a little unsettling at first; think of it as withdrawal from an addiction. Some people have "carb flu" when they cut back on the carbs, others don't. Either way it should soon clear up along with the cravings.
That was very helpful indeed. Thank you especially for the clarification about the minimum! :rolleyes::happy::D
 

daisy1

Legend
Messages
26,457
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Cruelty towards animals.
Hello and welcome to the forum :) Here is the information we give to new members and I hope you will find it useful. Ask as any questions as you want and someone will be able to help.



BASIC INFORMATION FOR NEW MEMBERS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 210,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a free 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.
 

Daibell

Master
Messages
12,656
Type of diabetes
LADA
Treatment type
Insulin
Hi. I'm sure if you can get the carbs down you will find that you don't need aggressive medication such as Byetta.
 
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Mandy Hexter

Active Member
Messages
33
Type of diabetes
Type 2
Hi Keren, I was diagnosed type 2 earlier this year. The Dr sent me on a one day course where the nurses recommended reducing my carbs and joining this group. I did the 10 week course as shown in daisy1's post and it really helped. It felt like I was able to take control of my diabetes. I found after the 10 weeks I wanted to bring my BG numbers down further and so reduced to very low carb, this is having a very good result but one step at a time. I have my first review tomorrow and I am hopeful that I will be able to control my diabetes just with diet. Good luck and I hope you are feeling much better soon.
 
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chalup

Well-Known Member
Messages
1,745
Type of diabetes
Type 2
Treatment type
Other
I eat about 20 grams per day of carbs. There is no medication that will allow you to eat a high carb diet with no consequences as a type 2 diabetic. Even if you use insulin or an insulin stimulating drug to cover the carbs you will gain weight if you eat to many. Medications can help but only diet will truly control it in the end. The amount of carbs a person can eat and still have good blood sugar control varies from person to person.
 
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lokidog

Newbie
Messages
1
Type of diabetes
Type 2
Hi ,i just had two bad bouts of diarrhea when i saw doctor he said could be metformin and lots of helpful people on forum suggested this .and suggested asking for slow release tablets .
what is also interesting if on metformin and you have diarrhea he suggested stopping tablets till toilet normal as if you get dehydrated the metformin becomes unstable and can make you very ill ,and on that point he did look at me and say but if you do stop that could cause other probs lol .
my case i stopped for two days back to normal so started again all ok .
good luck but dont worry any questions these forums always have someone who has suffered or know so if worried just post .
 
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