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Confused by diagnosis

Patricia762

Patricia762

Active Member
Messages
36
Type of diabetes
Type 2
Treatment type
Pump
Its been 11 days since hubby was diagnosed with Type1 Diabetes, they did say at the time that there was a very slim chance he could be type 2 but only time will tell. We went to see the diabetic nurse today and as soon as she saw his Glucose levels from the last 7 days, told him to lower his insulin as they where all below 9, before and after food. What also concerns me is that although his Blood sugar level was 34 when admitted, his ketones where pretty normal (found this out today). I am struggling to make sense of any of this as it was such a sudden on set, even the doctor said it was like he fell off a cliff, all most overnight he became Diabetic, with no symptoms what so ever.
Sorry if this all sounds familiar, but it is new and confusing for me
 
It is very rare for someone to be type one very suddenly without other problems but as you know not impossible.
If I were you I would write down a list of questions you want to know answers too and call the DN either to talk over phone or make an appointment to see.
Or put them on here and I'm sure you will get lots of answers.

The good thing is they found it before any damage done, it is shocking but he might only need insulin in the morning and before bed, it is very early days.
 
uncle said:
It is very rare for someone to be type one very suddenly without other problems but as you know not impossible.
If I were you I would write down a list of questions you want to know answers too and call the DN either to talk over phone or make an appointment to see.
Or put them on here and I'm sure you will get lots of answers.

The good thing is they found it before any damage done, it is shocking but he might only need insulin in the morning and before bed, it is very early days.
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Thank you, i will make sure we have a list of Questions before his next appointment. Thanks for taking the time to reply
 
hi, has he modified hes diet and lifestyle? i am t2 so know very little but ive heard of a honeymoon period where peoples pancreas kick back into doing something for a while after diagnosis, this may explain the lack of huge numbers? although 9 still isnt perfect, i hope this is wrong and he is in fact t2, but maybe worth researching a little when you get a chance, all the best
 
Actually blood glucose levels of 5 and above and below 9 are good. The DN may be being cautious if she thinks your hubby could go into hypo territory if he drops too low. Type 1 is usually sudden onset. Have blood tests been sent off to ascertain which type?
 
He was diagnosed Type 1 because of the sudden onset, he was gravely dehydrated the day he was admitted, although he had not realized he was. He is booked in to have bloods next week, they said today that he did not have his GADs ? checked. Just that when admitted his sugar level was 34 and ketones where ok ..thats all we know
 
Andy12345 said:
hi, has he modified hes diet and lifestyle? i am t2 so know very little but ive heard of a honeymoon period where peoples pancreas kick back into doing something for a while after diagnosis, this may explain the lack of huge numbers? although 9 still isnt perfect, i hope this is wrong and he is in fact t2, but maybe worth researching a little when you get a chance, all the best
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Thank you , i feel all i have done is research and i have read about the Honeymoon period to. In the last 11 days since diagnosis, he has change his diet completely and with time off work he is less stressed
 
i know its awful :( and everything you read says something different :facepalm: this isnt any help but it does get easier in time and all that research will help, hey your both doing great!
 
Andy12345 said:
i know its awful :( and everything you read says something different :facepalm: this isnt any help but it does get easier in time and all that research will help, hey your both doing great!
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Thank you Andy, we can do all the research in the world, but we are just going around in circles..The help and support from others in the same boat is whats helped us the most...huge thank you to you and others on the forum for taking the time to let us know you are out there ready to listen ..Priceless
 
we are always here to listen, remember we have all been where you are now and know exactly how it feels, so please keep asking questions, someone will pass by that knows the answer or at least can share how they dealt with their similar experience
 
I'm a type 1 recently diagnosed (4 months ago) and it is tough on everyone around me - I found I became incredibly grumpy and this put my better half under a lot of pressure.

I also had conflicting symptoms and test results as well, I had keytones but no antibodies in my blood for example... My symptoms and diagnosis also happen very quickly, but this is apparently typical of type 1, almost one day normal the next your not, it will make your head spin!

I too found the whole thing very confusing and difficult to get my head around (still do), there are so many different ways this affects people and I felt very lost with all the information available, you can spend hours and hours reading about it on the web and hardly any of it is fun reading. What I've learned is it is very much a unique to the individual illness and what works for some doesn't work for others... I am finding it easier as time goes by and I am learning about myself and what "I" need to do to make it better, I am sure he will to.


I like the fact you are taking a proactive approach on his behalf, if he's anything like me he'll need the support you are trying to give him - I did and still do! :-)

Hope this helps reassure you and it does get easier to cope with as you walk the wobbly road of diabetes! I'm sure he'll find his own path soon.
 
Patricia762 said:
Thank you , i feel all i have done is research and i have read about the Honeymoon period to. In the last 11 days since diagnosis, he has change his diet completely and with time off work he is less stressed
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I was just going to mention that. Sounds like he's still got some tests to go yet so I expect they'll make the T1/2 decision once they've got more data. In the meantime I recommend testing BG frequently and making notes on anything that might help his team make and decisions, eg symptoms etc.

Welcome to the forum!
 
Woollyfuller said:
I'm a type 1 recently diagnosed (4 months ago) and it is tough on everyone around me - I found I became incredibly grumpy and this put my better half under a lot of pressure.

I also had conflicting symptoms and test results as well, I had keytones but no antibodies in my blood for example... My symptoms and diagnosis also happen very quickly, but this is apparently typical of type 1, almost one day normal the next your not, it will make your head spin!

I too found the whole thing very confusing and difficult to get my head around (still do), there are so many different ways this affects people and I felt very lost with all the information available, you can spend hours and hours reading about it on the web and hardly any of it is fun reading. What I've learned is it is very much a unique to the individual illness and what works for some doesn't work for others... I am finding it easier as time goes by and I am learning about myself and what "I" need to do to make it better, I am sure he will to.


I like the fact you are taking a proactive approach on his behalf, if he's anything like me he'll need the support you are trying to give him - I did and still do! :)

Hope this helps reassure you and it does get easier to cope with as you walk the wobbly road of diabetes! I'm sure he'll find his own path soon.
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Thank you so much for taking the time to reply, hubby is having good days and bad, thank you for recognizing how its also hard on the spouses, our lives change to..the good thing is i have lost 5lbs eating low carbs..lol. We will find a way through this that suits hubby, got to say it has made us stronger than ever
 
Loobles said:
I was just going to mention that. Sounds like he's still got some tests to go yet so I expect they'll make the T1/2 decision once they've got more data. In the meantime I recommend testing BG frequently and making notes on anything that might help his team make and decisions, eg symptoms etc.

Welcome to the forum!
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Thank you for the welcome, you have all been such a support. We are writing down everything and today we are trying out a return to work schedule and are running 2hrs behind the rest of the world. Its is helping hubby gain his confidence back
 
Hi there. It is difficult isn't it? I was diagnosed 5 weeks ago and similarly was told I had T1 with a very slim chance of T2. I was put on insulin twice daily (novomix 30) but had to reduce to once a day. I started at 10 units in the morning and 8 in the evening, this gradually reduced to 4 in a morning. I was then taken off the insulin and put in Gliclazide twice a day as they believe my pancreas is still able to produce some of it's own insulin. I've had lots of tests and am due back to see the consultant in October, but am still unsure as to whether I am T1 or T2!
I've read so much that my head I swimming and I'm so confused! There are so many schools of thought.
It's great that you are giving home so much support. I don't think I would be able to get through this without the support of my husband.
 
Drummer mum said:
Hi there. It is difficult isn't it? I was diagnosed 5 weeks ago and similarly was told I had T1 with a very slim chance of T2. I was put on insulin twice daily (novomix 30) but had to reduce to once a day. I started at 10 units in the morning and 8 in the evening, this gradually reduced to 4 in a morning. I was then taken off the insulin and put in Gliclazide twice a day as they believe my pancreas is still able to produce some of it's own insulin. I've had lots of tests and am due back to see the consultant in October, but am still unsure as to whether I am T1 or T2!
I've read so much that my head I swimming and I'm so confused! There are so many schools of thought.
It's great that you are giving home so much support. I don't think I would be able to get through this without the support of my husband.
Click to expand...
Yes i have heard of the honeymoon period where you can produce some of your own insulin for a while..its a minefield out there, i have reduced hubby`s carbs and his glucose levels tell me how much carbs he can have in his next me taking in to account what his activity level might be like after eating...best advice i have been given, let your body tell you
 
Patricia762 said:
Yes i have heard of the honeymoon period where you can produce some of your own insulin for a while..its a minefield out there, i have reduced hubby`s carbs and his glucose levels tell me how much carbs he can have in his next me taking in to account what his activity level might be like after eating...best advice i have been given, let your body tell you
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should have read ..next meal
 
Hi. It can be difficult diagnosing between T1 and T2. The two tests for T1, GAD and c-peptide, can help. Is your husband normal weight? If so then T1 is possible but it may be early stage in which case tablets may help for quite a while. If he is overweight then T2 becomes possible. In either case controlling the diet should help. This means keeping the carbs down and using a glucose meter to check blood sugar
 
Daibell said:
Hi. It can be difficult diagnosing between T1 and T2. The two tests for T1, GAD and c-peptide, can help. Is your husband normal weight? If so then T1 is possible but it may be early stage in which case tablets may help for quite a while. If he is overweight then T2 becomes possible. In either case controlling the diet should help. This means keeping the carbs down and using a glucose meter to check blood sugar
Click to expand...
Hubby dropped 4st in a matter of weeks, so i would say he is now under weight, he was on 10 insulin morning and night but the diabetic nurse dropped it down to 8 twice a day yesterday. I must admit i expected him to have higher Glucose levels today, but instead its the opposite..he has been between 4 and 6all day, i have increased his carb intake tonight
 
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