Lissia
Member
- Messages
- 10
Hi
i understand this, I was diagnosed as having Diabetes several years ago the GP looked me up and down and decided 'fat person must be type 2'
for considerable amount of time, I was placed on type two medication as that’s what was my diagnosis, the problem was none of the type two medications worked I was on Metformin then moved to saxagliptin then placed on gliclazide but my sugars kept on rising, until one morning when I woke up at 34mmol, I was sent to a diabetes specialist who worked at the local hospital, she was a bit puzzled so she asked for some blood tests to be done and she went through my entire history from my teenage years, she also accessed my last 12 years of blood tests and spent hours comparing them and how they changed, after I caught Covid in 2020 my blood sugars got so high at one point I was at 39 as that was as high as my meter went, in reality she thinks it was much higher, however she contacted me a few hours later and with the recent blood results that it wasn’t type two she decided in fact that that I had LADA diabetes, which would only be able to be controlled using insulin, she changed me to basal and bolus insulin immediately and within three hours there was a considerable difference in blood levels.
She was really pleased with this and I asked a few months later why my records still said type two even at the hospital?, she told me that it’s not easy to change a diagnosis of diabetes type even as a specialist particularly when you are treated by injectable insulin anyway.
I asked her to change it simply because I felt that I was being talked down to in hospital regarding my size as my records said type two when in actual fact they were incorrect and I actually had a subform of type 1.
she said the only reason to change a diagnosis would be to enable a change to the treatment schedule but as I was treated via insulin, I was already on the correct treatment there would be no real medical benefit.
When I was in hospital at Christmas I had to constantly correct the staff over my diagnosis, but actually they were very good, also when they realised that I had my freestyle libre2 plus CGM prescribed for free on the NHS they realised that what I said made sense.
The GP records still say type 2 but somewhere on various different records it says type1….irritating and confusing that’s for sure.
So I think the bottom line is as long as you are aware and you are able to correct people in the medical field for example when you go to hospital and they check your details, I think that’s the most important thing.
As irritating as it is because you know the diagnosis is incorrect you are at least being treated with the correct medication.
there is no doubt in my mind that we are not in the minority of people receiving an incorrect diagnosis and that that is unfortunately largely down to medical ignorance..
i understand this, I was diagnosed as having Diabetes several years ago the GP looked me up and down and decided 'fat person must be type 2'
for considerable amount of time, I was placed on type two medication as that’s what was my diagnosis, the problem was none of the type two medications worked I was on Metformin then moved to saxagliptin then placed on gliclazide but my sugars kept on rising, until one morning when I woke up at 34mmol, I was sent to a diabetes specialist who worked at the local hospital, she was a bit puzzled so she asked for some blood tests to be done and she went through my entire history from my teenage years, she also accessed my last 12 years of blood tests and spent hours comparing them and how they changed, after I caught Covid in 2020 my blood sugars got so high at one point I was at 39 as that was as high as my meter went, in reality she thinks it was much higher, however she contacted me a few hours later and with the recent blood results that it wasn’t type two she decided in fact that that I had LADA diabetes, which would only be able to be controlled using insulin, she changed me to basal and bolus insulin immediately and within three hours there was a considerable difference in blood levels.
She was really pleased with this and I asked a few months later why my records still said type two even at the hospital?, she told me that it’s not easy to change a diagnosis of diabetes type even as a specialist particularly when you are treated by injectable insulin anyway.
I asked her to change it simply because I felt that I was being talked down to in hospital regarding my size as my records said type two when in actual fact they were incorrect and I actually had a subform of type 1.
she said the only reason to change a diagnosis would be to enable a change to the treatment schedule but as I was treated via insulin, I was already on the correct treatment there would be no real medical benefit.
When I was in hospital at Christmas I had to constantly correct the staff over my diagnosis, but actually they were very good, also when they realised that I had my freestyle libre2 plus CGM prescribed for free on the NHS they realised that what I said made sense.
The GP records still say type 2 but somewhere on various different records it says type1….irritating and confusing that’s for sure.
So I think the bottom line is as long as you are aware and you are able to correct people in the medical field for example when you go to hospital and they check your details, I think that’s the most important thing.
As irritating as it is because you know the diagnosis is incorrect you are at least being treated with the correct medication.
there is no doubt in my mind that we are not in the minority of people receiving an incorrect diagnosis and that that is unfortunately largely down to medical ignorance..