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Confused.....

Meechablue

Newbie
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1
Hi everyone, would really appreciate some advice.. went to the Doc's with a bad back last week (ongoing issue for months) took blood tests and later that night I got a call from out of hours urgent care to tell me I had a severe underactive thyroid and that I needed to go on meds urgently. Was prescribed levothyroxine 50 which was then upped to 100 by my own GP. Day later got a call from surgery to say I am type 2 which is to be diet controlled to see how it goes. My concerns are that 1. How can I find out how long I have had type 2 and the underactive thyroid? 2. It's going to be a while before I get to see a dietician so apart from cutting down on sugar what else should I do? And more importantly.. 3 on 2 occasions I have woken in the night with a very fast heart rate and a really strange headache. Could this be the levothyroxine or the fact I have cut down on sugar? It's a very scary feeling but does eventually pass. Any advice would be greatly appreciated
 
Hi @Meechablue and welcome to the forum.. I will tag @daisy1 for you so that she can give you the relevant information, although she might not be online until tomorrow. As I understand it you will need to reduce carbohydrate which includes potatoes and rice not just sugary foods. Sorry I cant really help much more as im T1, and theyre very different. I hope you soon feel better.
 

I'm going to go out on a limb here and say that it's more likely to be the levothyroxine than the sugar. As with most prescription drugs, levothyroxine has a comprehensive list of side effects and a recommendation that you talk to your doctor immediately if they occur. In your position, I'd talk to a doctor as soon as possible, maybe even phone 111 for advice if you can't get a quick appointment. While I suspect/hope that you'll get told not to worry, you should get it checked out. Good luck.
 
Any advice would be greatly appreciated
Hi Meechablue,
  1. How long have you been diabetic? Is it important? The important thing is now you know you can take steps to reverse it.
  2. Cutting down on sugar was the first step I took. Later I began to understand carbohydrates (firstly what they were and how they affect us). So cutting down on the sugar is a great first step.
  3. Googled side affects for levothyroxine and headaches and elevated hart rates are mentioned I did not have these side effects when I cut out sugar.
If your concerned about the side effects get in touch with you Dr don't suffer in silence.

You said you waiting for an appointment with your dietician.
The sad truth of the matter is most dieticians follow government guide lines telling us diabetics to eat more carbohydrates which is detrimental to our health. So listen politely when you do have the appointment and then come back here to check if you think you have been give the wrong advice.

The simplest most basic understanding of our condition is our bodies cant handle sugar very well.
But are bodies are well tuned machines when it comes to turning almost every thing we eat into sugar. (not very helpful)

Our digestive system loves to break down carbohydrates which it can turn into sugar at an alarming rate. This is the reason we mostly avoid them and many of us by doing such a simple thing as cutting down on carbs have been able to reverse our diabetes.

Exercise helps to.
 
The doctor is going against the standard advice on increasing the Thyroxine dosage slowly to prevent exactly those symptoms. When I was diagnosed with a defunct thyroid I was taking 50 mgm for some time then I was tested and the dose increased, and it was some time before I reached the required level of supplement - my first reading was very low and the TSH level was about 4000 times higher than normal, so I think that might have resulted from a long period of underactivity.
It might be wise to contact your GP and let them know of the problem, then perhaps you might be put back onto the lower dose until your body adapts.
There is no way to test retrospectively for either problem - your surgery might have some results which they have not told you about, but if they never tested then its just a guess.
Cutting down on carbohydrates should have a big effect on your blood glucose levels, with any luck. You might find that the dietician knows about low carbing but it is not a common discovery from my own experience and reports on the forum. We have to plough our own furrow with this.
 
Any time I had to up my levo, my heart would go bonkers for 2 to 6 weeks, and yes, there were headaches. Do discuss this with your doc, but don't be surprised if they keep upping the dosage anyway; if you're really low they'll want to get your levels up fast, maybe slowing down and doing it in half or quarter tablets at a time would help you, as it is less of a shock to the system. Something to discuss. As for how long... No way to tell, really. I was most likely diabetic for years before diagnosis. Same with the thyroid. I do know I didn't get good bloodsugar control until my thyroid meds were sorted; if they're off, most likely, your bloodsugars will be irregular too. So do take care of both issues!
And dropping sugar is a good first step, but you know... All carbs (brown, white, sweet, savory) turn to glucose once ingested. That means fruit (though berries are okay in moderation), potatoes, rice, corn, cereal, pasta, bread... They're no longer your friend. It's a lot to take in all at once, but you'll be okay, honest. Do yourself a favour and buy a meter and teststrips. Test before a meal and 2 hours after first bite. If the reading is up more than 2 mmol/l from where you started, there were more carbs in the meal than your body could process back out efficiently. That way you learn what is safe to eat and what impacts your bloodsugar too much. It's a lot of testing in the beginning, but after a while you'll know what's what and can do a guesstimate of what's okay. Mostly, just stick with bacon 'n' eggs, salads, leafy greens/above ground veggies, meat, fish, good fats, olives, full fat greek yoghurt, cheese, nuts and seeds. And check dietdoctor.com of you're stumped for meal ideas.
It'll be fine. You can do this.
Jo
 
@Meechablue

Hello and welcome to the Forum Here is the Basic Information we give to new members and I hope you will find it helpful. Ask as many questions as you want and someone will help.

BASIC INFORMATION FOR NEW MEMBERS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 235,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:
  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:
  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.
Take part in Diabetes.co.uk digital education programs and improve your understanding. Most of these are free.

  • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why

  • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.
 
Hi well I had an under active thyroid and one of my symptoms was my heart racing. I had an operation to take only part of the thyroid away and touch wood I'm okay now no thyroid meds. Still type 2 though.
 
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