• Guest - w'd love to know what you think about the forum! Take the 2025 Survey »

Contacts or thoughts

That does sound disappointing @OrsonKartt . Was your private endo able to prescribe insulin for you or do you have to wait for the NHS to agree that you need it?
 
EllieM said:
That does sound disappointing @OrsonKartt . Was your private endo able to prescribe insulin for you or do you have to wait for the NHS to agree that you need it?
Click to expand...

I took the letter from the private endo to my GP who prescribed the insulin.

It’s a small dose , just 6 units. I’ve been taking it nightly for more than a month.

I’m no longer falling over, the scars in my knees are pretty much healed and I don’t have that desperate malaise

I dont know what happens now as one consultant is saying one thing and the NHS consultant is saying another.
 
I’m so sorry. This sounds so incredibly frustrating. I hope that things can get settled…any chance you can see a different specialist?
 
Bcgirl said:
I’m so sorry. This sounds so incredibly frustrating. I hope that things can get settled…any chance you can see a different specialist?
Click to expand...
Thanks for your thoughts.

The more I think about today’s meeting the more I think it was someone pretty much gaslighting me.

The power balance a doctor has is unbalanced with a patient.

I don’t know how this will pan out but I do know I don’t want to be in that situation ever again

I am in a fortunate situation of being able to afford further private consultations and finding a private GP if necessary

It’s more than a bit surprising for me to have to consider this.
 
Melgar said:
Hopefully @OrsonKartt you will be able get hold of those antibody results. Two or more types of antibodies is a confirmation of LADA. They cannot argue with that.
Click to expand...

I do look forward to the results although currently with some trepidation.

The private endo said it wasn’t worth spending my money on antibody testing as he could tell from the c-peptide levels that I was LADA

Hopefully the results will come through and prove that.

Stressful business this Diabeties lark eh?
 
OrsonKartt said:
Thanks for your thoughts.

The more I think about today’s meeting the more I think it was someone pretty much gaslighting me.

The power balance a doctor has is unbalanced with a patient.

I don’t know how this will pan out but I do know I don’t want to be in that situation ever again

I am in a fortunate situation of being able to afford further private consultations and finding a private GP if necessary

It’s more than a bit surprising for me to have to consider this.
Click to expand...
Please ask for a second opinion, you are entitled to that even if it means going back to your original consultant. Or you can find a more sympathetic consultant on the NHS that’s is knowledgeable about LADA. Referral to Kings College Hospital? It’s supposedly a leading centre for adult onset diabetes and suspected LADA
Let me know how you get on.
 
long acting insulin, toujeo usually its a pack of 3 pens with the units your taking 6 per day should have a further 2 months supply (remember need to discard remainder of each pen after its been out of fridge 4 weeks) that should give you a nice wee window of time to get second opinion. glad your healing better and no longer falling over. good luck
 
Speedbird said:
Please ask for a second opinion, you are entitled to that even if it means going back to your original consultant. Or you can find a more sympathetic consultant on the NHS that’s is knowledgeable about LADA. Referral to Kings College Hospital? It’s supposedly a leading centre for adult onset diabetes and suspected LADA
Let me know how you get on.
Click to expand...

Thanks for your thoughts and encouragement!


I really don’t mind going back to my original endo.



Today I’ve dropped the practice an email followed by a phone call . Nothing back yet but fingers crossed.
 
grantg said:
long acting insulin, toujeo usually its a pack of 3 pens with the units your taking 6 per day should have a further 2 months supply (remember need to discard remainder of each pen after its been out of fridge 4 weeks) that should give you a nice wee window of time to get second opinion. glad your healing better and no longer falling over. good luck
Click to expand...
I’ve only been give one pen of Lantus which gives me around 20 days from now to sort this out. Enough time I hope.
 
OrsonKartt said:
I’ve only been give one pen of Lantus which gives me around 20 days from now to sort this out. Enough time I hope.
Click to expand...
ouch. with single pen prescription humalin i was given a few pens in box, with single fiasp was given several vials in a box (which used with echo6 pen) and toujeo came in box of 3 for me. if on your repeat precsription still could try hit the request to give a little bit more time to hopefully sort out.

pretty sure lantus is 4 weeks out of the fridge before should discard. so careful with the 20 days (unless pen was opened 8 days ago).
 
grantg said:
ouch. with single pen prescription humalin i was given a few pens in box, with single fiasp was given several vials in a box (which used with echo6 pen) and toujeo came in box of 3 for me. if on your repeat precsription still could try hit the request to give a little bit more time to hopefully sort out.

pretty sure lantus is 4 weeks out of the fridge before should discard. so careful with the 20 days (unless pen was opened 8 days ago).
Click to expand...

The pen is freshly opened and I might just squeeze another as it’s on repeat but don’t know if the brown stuff is going to hit the fan before that happens

Today I’ve rung emailed and written to the London consultant I saw. Turns out he has written several books on diabetes so I’ve ordered a couple which have decent reviews
 
Today I’ve rung emailed and written to the London consultant I saw. Turns out he has written several books on diabetes so I’ve ordered a couple which have decent reviews[/QUOTE]


I’ve just had an email back from the London consultant. It’s so reassuring when someone actually responds and in a timely manner !

He suggests contacting my GP and telling them how the insulin has improved my well being and finding out if he is willing to continue prescribing. - this is of course a most sensible thing to do and I’ll get right on it …. Best thoughts all
 
OrsonKartt said:
Today I’ve rung emailed and written to the London consultant I saw. Turns out he has written several books on diabetes so I’ve ordered a couple which have decent reviews


I’ve just had an email back from the London consultant. It’s so reassuring when someone actually responds and in a timely manner !

He suggests contacting my GP and telling them how the insulin has improved my well being and finding out if he is willing to continue prescribing. - this is of course a most sensible thing to do and I’ll get right on it …. Best thoughts all
Click to expand...
Fingers crossed for you gl
 
Back
Top