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DESMOND Course (again)

rab5

Well-Known Member
Messages
842
Type of diabetes
Type 2
Treatment type
Diet only
Dislikes
My Diabetic nurse
Well I got a call from some nurse today rebooking me on a desmond course next Wednesday...... cant wait!!

I dodged the first one as my wife was in hospital. But the strange thing she told was I would not get speaking to my doctor about diabetes until they send a letter confirming I had attended the course...... whats that about?
 
It is called blackmail. The same thing happened to me when I was invited onto a pain management course.
 
I was told that i would have to attend a carb counting course before i got a pump and it would last 5 days, i told the doctor i had been carb counting for 28 years and there was no way was i going. He then got very angry and said there was no pump until i did, i just got up and said we will see about that. I walked to PALS and told them what had happened and they said they would look into it, i waited 3 weeks and got a letter off the hospital manager saying that i would have to have a meeting with them. So on the day i went there was only one person there and she said we have looked at your case and would you do a half day course, i said i no you have been looking into my records and you no you have not got a leg to stand on she muttered a few words. I asked if they had got a letter from my legal team who were going to sue them and put it in the local newspaper, she said she did not no. I agreed to a half day course and by the end of it the person doing the course was over the moon it was over, she started the course off with we have done a study on 50,000 diabetics and this is what we found. I stopped her there and said i was told that every diabetic is different all you are doing is trying to find the middle ground, she said yes every diabetic is different. So we kept going through the different foods and i said that will not work for me and i asked her how long had she been teaching carb counting and she said 4 years as it was a new thing to which i pointed out that i had been doing it since 1979. Near the end of the course the smug doctor came in to ask how it was going and i give the lady her due she said all diabetics are different and that they no their bodies better than anyone, i looked at him and just told him i get my pump next week. He asked who had told me that i said the trusts manager and medtronic, his face was red so i asked did they not send you a letter guess i am getting my pump then. He tried for the next 3 months to make my life hell so i asked the trust to have a meeting with everyone there. We had this meeting and the doctor was lying in the end i had enough and asked him why did you bring me into hospital to try and get the pump to work which he started to raise his voice and started pointing at me so i told him if he kept on shouting and pointing at me i was going to put him through the window. I was asked to wait outside and then called back in and the doctor told me he was sorry about the way he had gone on, i told him it was the others who was under his care and i would not be seeing him again but i did want a copy of the meeting. It was 5 months after i got my pump and i went to a different hospital and the man i saw got my pump under control in 4 weeks. My advice would be to contact Pals and go and seek a legal team. You find there is a new course every year or if you are on insulin they change it when a new one comes out, you find the hospital trusts make deals with different drug companies to use their medication and i am sure i have not seen a copy of you have to go on every couurse they want you to.
 
I was told that i would have to attend a carb counting course before i got a pump and it would last 5 days, i told the doctor i had been carb counting for 28 years and there was no way was i going. He then got very angry and said there was no pump until i did, i just got up and said we will see about that. I walked to PALS and told them what had happened and they said they would look into it, i waited 3 weeks and got a letter off the hospital manager saying that i would have to have a meeting with them. So on the day i went there was only one person there and she said we have looked at your case and would you do a half day course, i said i no you have been looking into my records and you no you have not got a leg to stand on she muttered a few words. I asked if they had got a letter from my legal team who were going to sue them and put it in the local newspaper, she said she did not no. I agreed to a half day course and by the end of it the person doing the course was over the moon it was over, she started the course off with we have done a study on 50,000 diabetics and this is what we found. I stopped her there and said i was told that every diabetic is different all you are doing is trying to find the middle ground, she said yes every diabetic is different. So we kept going through the different foods and i said that will not work for me and i asked her how long had she been teaching carb counting and she said 4 years as it was a new thing to which i pointed out that i had been doing it since 1979. Near the end of the course the smug doctor came in to ask how it was going and i give the lady her due she said all diabetics are different and that they no their bodies better than anyone, i looked at him and just told him i get my pump next week. He asked who had told me that i said the trusts manager and medtronic, his face was red so i asked did they not send you a letter guess i am getting my pump then. He tried for the next 3 months to make my life hell so i asked the trust to have a meeting with everyone there. We had this meeting and the doctor was lying in the end i had enough and asked him why did you bring me into hospital to try and get the pump to work which he started to raise his voice and started pointing at me so i told him if he kept on shouting and pointing at me i was going to put him through the window. I was asked to wait outside and then called back in and the doctor told me he was sorry about the way he had gone on, i told him it was the others who was under his care and i would not be seeing him again but i did want a copy of the meeting. It was 5 months after i got my pump and i went to a different hospital and the man i saw got my pump under control in 4 weeks. My advice would be to contact Pals and go and seek a legal team. You find there is a new course every year or if you are on insulin they change it when a new one comes out, you find the hospital trusts make deals with different drug companies to use their medication and i am sure i have not seen a copy of you have to go on every couurse they want you to.
What a rant! It's just a course, you sit there and listen, maybe you learn something new, even if you don't it's hardly torture.
 
now i have to go for another blood test for this course. Lipids ?

Whats that about
 
whats that about?
Although unfortunately it appears that the content of the course is rubbish, the idea of getting people to go on a course before talking to the doctor is not unreasonable. I encountered this years ago when I had a different health problem. I was told that it made no sense for the GP to try and tell everything to each individual, over and over, from the basics up. (Imagine the poor GP trying to explain in ten minutes abut carbs, protein and fats, bg meters, A1c tests etc etc!) Much better to get a group of patients with similar problems together and educate them all in one go over several hours. In the process of which we also had the opportunity to meet kindred spirits and feel we were not alone. IMO we could do with more of this kind of thing in the NHS.
 
What a rant! It's just a course, you sit there and listen, maybe you learn something new, even if you don't it's hardly torture.
IT was torture as i was suffering from mental health problems at the time and also it would have been 5 days of sitting there not taking any of it in. If i would like to rant this would not make my top 10 of topics and now i have had a kidney and pancreas transplant, the damage that the diabetes had done over the years was on know course. Its kind of you do not have diabetes but you do have nerve damage and pain that will not go away, you lose your balance because of your nerve damage, your feet and hand go numb because of nerve damage, you cannot get out of bed due to pain, your bladder and bowel have been damaged by diabetes, your mental health needs to be sorted and you cannot be the father that you want to be because of your diabetes. Please if you know of any course either could you please tell me it because i have a team of 7 consultants who cannot, but its just a course.
 
So I did the course...... and for me it was a bit of a waste of a day...

We started with two instructors, after a couple of questions from me they brought in a 3rd person who was supposed to explain 'things' to me. it didnt go well. at 54yrs old I was probably the youngest person there and I was aware that I didnt want to disturb the class. However I did manage to get the following written on the board....
Dr Jason Fung.... the Diabetic Code
www.diabetes.co.uk
Dr David Unwin
www.dietdoctor.com


Weird things that they said......
The work that prof Taylor was doing was described as a starvation diet bordering on illegal!
Once your pancreas Beta cells stop working they cant be fixed...that we as diabetics have lost about 40% function in our beta cells that wont come back
Statins save lives and its dangerous to say otherwise
Losing weight quickly is dangerous
Cals in Cals out is scientifically proven and there is no argument amongst dietitions about this fact!

I could go on.........

Right at the end on a very quiet one to one with one of the nurses...she said..... 'whatever it is your doing, keep at it, but just be careful you know your own body" . I thought that was a very nice thing to say" . I felt it was a nod to me that I was doing the right thing........

I will not be repeating the exercise I can assure you . :)
 
The instructors should be retrained so they are up on the latest research such as the Newcastle Diet, but PROPERLY understand the results and what it means - what you experienced sounds like they have heard small snippets of recent findings and then performed Chinese Whispers with each other, until they came out with all that nonsense!
 
IT was torture as i was suffering from mental health problems at the time and also it would have been 5 days of sitting there not taking any of it in. If i would like to rant this would not make my top 10 of topics and now i have had a kidney and pancreas transplant, the damage that the diabetes had done over the years was on know course. Its kind of you do not have diabetes but you do have nerve damage and pain that will not go away, you lose your balance because of your nerve damage, your feet and hand go numb because of nerve damage, you cannot get out of bed due to pain, your bladder and bowel have been damaged by diabetes, your mental health needs to be sorted and you cannot be the father that you want to be because of your diabetes. Please if you know of any course either could you please tell me it because i have a team of 7 consultants who cannot, but its just a course.
My goodness, with all that to endure / cope with, no wonder if you suffered from mental health problems! Who wouldn't? Well done for having survived. Yes, I can see that you would have to be very lucky to find a course or meet fellow patients who shared your very extreme and horribly difficult history.

I used to work on a renal unit and I remember being told that when patients had transplants they did find themselves in a situation a little bit like yours, (but not so severe). Before the transplant they had terrific loving support from a whole medical team, and found friends among fellow dialysis patients, some of whom they might see and spend hours with maybe 3 times every week. After, they were supposed to be just normal people and feeling themselves SO lucky to have had the successful transplant. Even with follow-up appointments they saw much less of staff and patients. Some of them never managed to make the transition, and even stopped taking their drugs so as to lose the transplanted kidney and go back to their old way of life on dialysis.

I suppose the only kind of "course" that might, just might, be helpful for you would be a general pain management course, or perhaps a therapy group? I do hope you are getting some one to one psychological support in all your grief. You certainly deserve it, and you must sorely need it.
 
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