Hi,
Some of you have very kindly corresponded with my daughter in the past and helped her with many of her issues. Her name on here is Diabetieschild. I figured it was time for me to have my own logon.
She is 14 and was diagnosed with type 1 when she was 9. I am also diabetic, type 2 and have my own issues which I will save for another day!
However Zoe is having a truly terrible time since just before Christmas and I am tearing my hair out. I try hard not to be a neurotic mother but I just dont know what to do for the best any more. I would really appreciate your ideas and suggestions
Zoe has been struggling with the whole hassle of diabetes, not wanting to do her readings etc etc. All of which her care team said was normal behaviour for a teen and would pass. Just before Christmas she got the nasty cold that has been going round and her readings rocketed, with fluctuating ketones. Things got a bit worse so on the holiday Sunday we made a trip to casualty to get her checked over, but by then her reading had dropped from H1 to 5 and they sent us home.
Since she has returned to school her readings are running at over 20 most of the time. Her ketones are fairly high most of the time and of course she is totally miserable. I have been in regular touch with her care team and I am kind of feeling that they think I am over-reacting but things are just not getting better.
Her insulin regime was NovoRapid before each meal - 11 units, 9 units, 11 units, followed by 34 Levermir at night time. These doses have been going up steadily over the last year because of the other struggles we have been having - her HB1ACs have not been good for a year now. On those doses she is hungry the whole time. We do struggle with her diet as she doesnt eat much fruit or vegetables, she is the original carb kid.
Finally on Wednesday they decided that we may be giving her too much Levermir, particularly as she was having an occasional hypo in the middle of the night and we dropped it down to 30 and they told me to use some common sense with the rapid. We are getting a few lower readings but its still not good. Today she was 9 when she woke up, which is a vast improvement on 24, but all afternoon it was between 20 and H1
I really do not know what else to try. I know we have to improve her diet, but shes not really in the right state of mind to start attacking that. I suggested she log on here and talk to you all, but she is so miserable that she doesnt want to do that either.
She looks awful, and is starting to be afraid to eat because she know it will make her high.
A little bit of me feels that I should maybe even cut back on the rapid - it may take a couple of days, but I think all it is doing is making her hungry. Is my instinct right? I think I am going to have to call the team again tomorrow but I thought you are the people that know most about it.
I would be very grateful to hear your thoughts
ZoesMum
Some of you have very kindly corresponded with my daughter in the past and helped her with many of her issues. Her name on here is Diabetieschild. I figured it was time for me to have my own logon.
She is 14 and was diagnosed with type 1 when she was 9. I am also diabetic, type 2 and have my own issues which I will save for another day!
However Zoe is having a truly terrible time since just before Christmas and I am tearing my hair out. I try hard not to be a neurotic mother but I just dont know what to do for the best any more. I would really appreciate your ideas and suggestions
Zoe has been struggling with the whole hassle of diabetes, not wanting to do her readings etc etc. All of which her care team said was normal behaviour for a teen and would pass. Just before Christmas she got the nasty cold that has been going round and her readings rocketed, with fluctuating ketones. Things got a bit worse so on the holiday Sunday we made a trip to casualty to get her checked over, but by then her reading had dropped from H1 to 5 and they sent us home.
Since she has returned to school her readings are running at over 20 most of the time. Her ketones are fairly high most of the time and of course she is totally miserable. I have been in regular touch with her care team and I am kind of feeling that they think I am over-reacting but things are just not getting better.
Her insulin regime was NovoRapid before each meal - 11 units, 9 units, 11 units, followed by 34 Levermir at night time. These doses have been going up steadily over the last year because of the other struggles we have been having - her HB1ACs have not been good for a year now. On those doses she is hungry the whole time. We do struggle with her diet as she doesnt eat much fruit or vegetables, she is the original carb kid.
Finally on Wednesday they decided that we may be giving her too much Levermir, particularly as she was having an occasional hypo in the middle of the night and we dropped it down to 30 and they told me to use some common sense with the rapid. We are getting a few lower readings but its still not good. Today she was 9 when she woke up, which is a vast improvement on 24, but all afternoon it was between 20 and H1
I really do not know what else to try. I know we have to improve her diet, but shes not really in the right state of mind to start attacking that. I suggested she log on here and talk to you all, but she is so miserable that she doesnt want to do that either.
She looks awful, and is starting to be afraid to eat because she know it will make her high.
A little bit of me feels that I should maybe even cut back on the rapid - it may take a couple of days, but I think all it is doing is making her hungry. Is my instinct right? I think I am going to have to call the team again tomorrow but I thought you are the people that know most about it.
I would be very grateful to hear your thoughts
ZoesMum