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Desperate help

Styles23

Styles23

Active Member
Messages
27
Type of diabetes
Type 1
Treatment type
Insulin
Where do I start. I posted one earlier about being pregnant and again had to do own tests and couldn't get a doctors appointment, as my diabetic doctor an only talk on phone it seems. But anyway it was negative. So can someonelse please explain these high mornings and during night time as my doctor does not seem bothered unless I have ketones which I don't. I'm really struggling. I had had nearly 40 units of nova rapid today and still not budging from 14/15 I've told my doctor this on the phone and all she said oh it's probably just a virus. But this has gone on for a week maybe two weeks now going from being perfect like 4/6 in mornings to this. I just want to know what is wrong with my body if there is something. This is the only doctor I have and when can't get an appointment has to call me, but how do they know what's wrong if just on phone :( I don't feel well but just seem the care and attitude I get where I live with NHS is just not cared about :(
 
Styles23 said:
Where do I start. I posted one earlier about being pregnant and again had to do own tests and couldn't get a doctors appointment, as my diabetic doctor an only talk on phone it seems. But anyway it was negative. So can someonelse please explain these high mornings and during night time as my doctor does not seem bothered unless I have ketones which I don't. I'm really struggling. I had had nearly 40 units of nova rapid today and still not budging from 14/15 I've told my doctor this on the phone and all she said oh it's probably just a virus. But this has gone on for a week maybe two weeks now going from being perfect like 4/6 in mornings to this. I just want to know what is wrong with my body if there is something. This is the only doctor I have and when can't get an appointment has to call me, but how do they know what's wrong if just on phone :( I don't feel well but just seem the care and attitude I get where I live with NHS is just not cared about :(
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You need to ring the hospital as should be under consultant care as you are pregnant.
Have you even thought about increasing your Lantus? Also have you read the replies you were given on your other post?
 
CarbsRok said:
You need to ring the hospital as should be under consultant care as you are pregnant.
Have you even thought about increasing your Lantus? Also have you read the replies you were given on your other post?
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I'm not pregnant as home tests came back as negative. I have no care team, all I have is my diabetic GP. I called my local hospital and they can not talk to me unless I have been referred by my gp, I get no help. I've tried for appointments but all she can do is discuss over phone and says only wants to see me if have ketones. Which I don't have ketones all I have is unexplained high. Blood sugars which the doctor does not seem bothered about. I have increased my lantus to original 22 to now it is 30 and have been doing this the past week, and taking my doctors advice. But blood sugars in the morning are still sky high with no explanation. It's really hard as like I said my GP calls me but really dosent seems bothered even when I tell her I'm doing all the stuff she is telling me to do.
 
Perhaps not your body but the insulin or the pens. Start a new pen or cartridge with a new needle for each injection.

Another possibility: Are you eating food that takes a long time to digest and to make the glucose available to the blood? For example: If I eat a high protein meal I have to split the bolus with some at the start of eating and more at two hours and again at four hours. Fat in the food takes even longer. That is how it works well for me. So to avoid the delay caused by protein and fat I eat a meal with less protein and more carbs. But I don't eat an enormous amount so my split injections will be quite small.
 
Ambersilva said:
Perhaps not your body but the insulin or the pens. Start a new pen or cartridge with a new needle for each injection.

Another possibility: Are you eating food that takes a long time to digest and to make the glucose available to the blood? For example: If I eat a high protein meal I have to split the bolus with some at the start of eating and more at two hours and again at four hours. Fat in the food takes even longer. That is how it works well for me. So to avoid the delay caused by protein and fat I eat a meal with less protein and more carbs. But I don't eat an enormous amount so my split injections will be quite small.
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Was a brand new pen last night and brand new cartridge this morning, I change my sites all the time. I change my needle after every injection. This is what I mean it's so unexplained, and I get no advice or help from my doctors.
 
Have you been high all the time for the last two weeks or just at certain times.

I would advise you to get referred to the hospital clinic as they should have more specialised care.

Have you done any basal testing to ensure your Lantus is correct?

Also stress can put your BG up, sometimes seeing high numbers can make you stressed and in turn make your BG worse.
 
dtennant9 said:
Have you been high all the time for the last two weeks or just at certain times.

I would advise you to get referred to the hospital clinic as they should have more specialised care.

Have you done any basal testing to ensure your Lantus is correct?

Also stress can put your BG up, sometimes seeing high numbers can make you stressed and in turn make your BG worse.
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I'm only high, during the night like at 3 in morning and as soon as I wake up, also can be 11/14 before lunch. Then before tea time I'm always low. I have just don't another test from being high all being and have dropped down to 2.7. It's never ending. I have tried hospital clinic, tried calling this morning and they said they can only see me if my doctor refers me.
 
I would try some basal testing as it could be this thats causing the issues. You may not have enough basal, your compensating for this with your NovoRapid and then having crashes like your 2.7 you refer to above..
Try and take it one step at a time.

Try this link for some advice on the testing: https://mysugr.com/basal-rate-testing/

It's not a UK site so you'll need to convert the BG levels mentioned but it could be a starting point.

What time do you take your Lantus at?

Also it might be an idea to try and get referred to your hospital clinic.
 
dtennant9 said:
I would try some basal testing as it could be this thats causing the issues. You may not have enough basal, your compensating for this with your NovoRapid and then having crashes like your 2.7 you refer to above..
Try and take it one step at a time.

Try this link for some advice on the testing: https://mysugr.com/basal-rate-testing/

It's not a UK site so you'll need to convert the BG levels mentioned but it could be a starting point.

What time do you take your Lantus at?
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Thank you, I take my lantus just before bed so around 9pm to 10pm. I've heard about people splitting their doses so some at night time and then in morning. I have been on this insulin for over ten years now I would say, but nothing ever gets reviewed or I never hear about the use of pumps and different insulins.
 
Styles23 said:
Thank you, I take my lantus just before bed so around 9pm to 10pm. I've heard about people splitting their doses so some at night time and then in morning. I have been on this insulin for over ten years now I would say, but nothing ever gets reviewed or I never hear about the use of pumps and different insulins.
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I would definately see about getting seen at the hospital.

I thought you perhaps took your Lantus in the morning and it may have explained why you started going high in the night. It is more likely to be that your not taking enough, but it really is safer to test that out first before making changes.

Is it possible that you do have some kind of infection hanging around? Or are your injection sites over used and your maybe not getting ideal absorption? This could also explain being high and then suddenly dropping.
 
Not a Type1 so cannot help with you insulin queries.

I really think you need to write to the Practice ~Manager at your surgery and explain that the level of care you are receiving is not enough to manage your diabetes and you would like to be referred to a Consultant.

If you have to go into greater detail then let the Practice Manager know that a telephone call with your G.P. instigated by you and met with disinterest other than wanting to know your level of possible ketones is not best practice and Type1s are entitled to better care than you are receiving.
 
Agree with other replies but would just add that when I was on lantus, it didn't work at all well for me and I had to take it three times per day. Then I switched to Levemir which works well with a morning and evening dose.
The other thing I find is having something like toast in the evening, even though it's sourdough rye, makes my BS high in the night and morning. If I have a bout of unexplained highs I increase my exercise and cut down on any cereal or grain based carbs. In fact go for mostly plant based foods.

It does sound as if your GP is not offering much of a service. Can you write in and ask to be referred to specialist diabetic team. Make a bit of a fuss perhaps - in the nicest possible way.

I had no support for 8 years, just told to cut down on my testing strips and achieve better BS results! Double whammy.. Things are much better with new surgery.

Good luck.
 
Hi styles23, i have just started to split my night time dose from 1 to 2 and can say that overall my sugars have come down a fair bit, I usually take my levemir between 9-10pm and 8 am. It used to be that my night time levemir would be running out the following day at about lunch time, which then I had to keep having correction doses throughout the afternoon, I would suggest you speak to your dsn to see what they think,
 
Padders91 said:
Hi styles23, i have just started to split my night time dose from 1 to 2 and can say that overall my sugars have come down a fair bit, I usually take my levemir between 9-10pm and 8 am. It used to be that my night time levemir would be running out the following day at about lunch time, which then I had to keep having correction doses throughout the afternoon, I would suggest you speak to your dsn to see what they think,
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@Styles23 has not got a care team, including a DSN and has to rely on a disinterested G.P. as per this post

http://www.diabetes.co.uk/forum/threads/desperate-help.79961/#post-893206
 
Hi there,

Just wanted to say that it's really not acceptable that you aren't under a consultant if you are thinking of or trying to get pregnant. Your GP needs to refer you a.s.a.p if you are trying or thinking of. I live in Edinburgh where I got pre conception advice and had to be seen regularly before even trying, also you need to be on a higher dose of folic acid than normal pre pregnancy. Is there another doctor you could see at the surgery? I don't know you history or background so apologies if I seem a bit nuts! I had a baby last year (I'm type 1) and the hospital wanted to see me every other week to check diabetes control. Hope you get sorted soon!
 
Lou28 said:
Hi there,

Just wanted to say that it's really not acceptable that you aren't under a consultant if you are thinking of or trying to get pregnant. Your GP needs to refer you a.s.a.p if you are trying or thinking of. I live in Edinburgh where I got pre conception advice and had to be seen regularly before even trying, also you need to be on a higher dose of folic acid than normal pre pregnancy. Is there another doctor you could see at the surgery? I don't know you history or background so apologies if I seem a bit nuts! I had a baby last year (I'm type 1) and the hospital wanted to see me every other week to check diabetes control. Hope you get sorted soon!
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I'm not trying for a baby, and want one just yet. But the treatment I'm getting at moment makes me so worried if I do become pregnant and they just seem not to care. I have spoke to my actual hospital and thy have said they can not refer me to the hospital clinic unless my GP has referred me. It's so hard when people say about all the help they get. And I only get an appointment like every 6 months, and when I'm ill I can only get phone calls from my GP , as she's to busy with appointments. It is outrageous really but that's how it's always been with me. Since I turned 18 the clinic that I did go see kind of just left me to it, and I explain myself a million times and no one understands when I say that but they really did. I have arranged for an appointment in two weeks time to try and sort my blood sugars out. Touch wood today they are much better than yesterday. I always have good control and never had any problems so just worries me when I do have the odd high blood sugar, it doesn't help that I google every symptom
 
Hi @Styles23, I'm not going to offer insulin advice cos the others on here are much more experienced than me. You say you have a GP appointment in two weeks, when you go explain to her that you feel you diabetes needs have changed and because of this you would like a referral to the hospital diabetes team. You are entitled to a second opinion. Meanwhile there must be a practice nurse at your GPs so ask for an urgent appointment with her as you can't see the GP for 2 weeks. It can be a back door way of seeing the doctor earlier! If that doesn't work or you get worried, start phoning the out of hours doctor at night when your readings are high. I know its a terrible thing to say but sometimes it's the only way to get action. Sue xxxx
 
Hi and welcome. You do have a right to be referred to the db clinic if your diabetes is out of control and you are on insulin. I don't think you have mentioned your BMI? If you have a lot of excess weight you can get into an insulin spiral where insulin resistance buildsup thru the weight. I'm only guessing but let us know. In the meantime I would severaly reduce the carbs to try to get some control back. I assume you are carb-counting with the Bolus?
 
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