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Diabetes feeling the chocolate

Aysh

Newbie
Messages
1
Type of diabetes
Type 1
Treatment type
Insulin
I'm 17 years of age..
I have been diabetic (T1) for 9 and a half years.
I used to have really good control until I became severely depressed which was roughly 3 years ago.

My control is still awful and I'm in hospital with DKA or near DKA roughly every fortnight or so.

I do not Bs readings whatsoever, I don't inject any novorapid I only do my levemir.

I am well aware of all the complications but I feel like I just don't care..


Thoughts ?
 
G'day, by posting it means a part of you does care. A lot of teens seem to have trouble when the hormones kick in in early teens. It makes control a lot harder. It's easy to throw your hands up and say F'it
Hang in there
 
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Hi,

Wow, there's a tittle for a good book right there in the title of your post...

It's a bit of a snake "eating it's own tail" when the control stops. The worst you feel on the highs the less you care..
Like "Man flu" weekends but without the recovery on the Monday morning..

I'm not making light of your problem.. I could be wrong but I sense a "sense of humour" in the title of your post..?
I am going to suggest you use this title & start writing a book.. Yarp! Weird idea? While writing keep your blood test kit handy (by the keyboard) & check your bloods.. Follow your treatment while writing & develops your plotline/characters as you go.. Base it on your life experience, but all the time work on the diabetes management too..!
No one actually needs to read this book, though you could get it published if you so wish...? The book may not even get finished.
It's more an experiment.? Watch the diabetes control improve as the story unfolds.. & with the D more in control, see the dialogue become more up beat too...!

You asked for thoughts.. Just be thankful I haven't cut & paste the first million chapters of "Night of a thousand vet bills" on here for you to trawl through...;)

Good luck!
 
Firstly are you getting the depression sorted out? It will probably make the diabetes harder to control if you don't as depression tends to make everything seem like a huge task and may lead to over eating (which without insulin will lead to very high blood sugars). There are different treatments for depression, e.g. counselling, medication, etc that could be tried.

There are also online forums for people with depression or people you can phone that might be helpful, such as the Samaritans - you can find contact numbers etc on the internet.

I would also talk to your diabetes care team about the issues (or write them down if you feel unable to express them in words). Perhaps they could review your medication and see if there is any other type of regime they could try, e.g. perhaps a mixed insulin may be better at the moment.

Also continue to post on here. I am sure that many people can relate to your frustrations with controlling your sugar levels.
 
I think jack's on the right track. I think you DO care but you're not sure how to ask for help. You've made the first step.

There will be many here who can help you. This is an anonymous site! This is the place for you to find your voice! Unburden yourself safely! Nobody's going to judge you because you're going through tough times.

You might find a lot of old middle aged biddies like myself here, but don't be put off by that because we were all 17 once. Some of use are still quote childish (see a new you in 42 thread :-) ). Granted, we may not have had diabetes, but we have now. We understand the enormity of the daily (nay hourly) battle/grind of living with diabetes. Well it's a battle if you choose to make it a battle. I do choose the battle because it makes me feel alive. Of course there are down days, even weeks, but this online community helps us to get back on our horse and chaaaaaarge!

I'm not sure if there's a section for teens here but perhaps that might be an idea? Eh mods? Listening? But lease don't ban the olds from chipping in ;-).

I also think jaylee's idea was a good one. An alternative would be to begin a blog. I don't know how to go about it but I'm sure you do. The point is you will be faceless and can unburden yourself whilst helping others at the same time.

You have a wealth of experience that others, young and old alike, would be grateful to learn from.

How do we know that what we're going through is not abnormal or unique unless we share our highs and lows?

Ditch the chocolate (unless it's 85%) and pick up your lance. :-)




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Firstly are you getting the depression sorted out? It will probably make the diabetes harder to control if you don't as depression tends to make everything seem like a huge task and may lead to over eating (which without insulin will lead to very high blood sugars). There are different treatments for depression, e.g. counselling, medication, etc that could be tried.

There are also online forums for people with depression or people you can phone that might be helpful, such as the Samaritans - you can find contact numbers etc on the internet.

I would also talk to your diabetes care team about the issues (or write them down if you feel unable to express them in words). Perhaps they could review your medication and see if there is any other type of regime they could try, e.g. perhaps a mixed insulin may be better at the moment.

Also continue to post on here. I am sure that many people can relate to your frustrations with controlling your sugar levels.

There's been a lot in the news recently about the "mindfulness" course approach for depression. It can be obtained on prescription in some areas. I think it has it's roots in Buddhism and is based on meditation. One young lady interviewed said she would never have seen herself meditating before but the course had succeeded where pills hadn't.

Just a thought.



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There's been a lot in the news recently about the "mindfulness" course approach for depression. It can be obtained on prescription in some areas. I think it has it's roots in Buddhism and is based on meditation. One young lady interviewed said she would never have seen herself meditating before but the course had succeeded where pills hadn't.

Just a thought.



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There is something to be said for meditation.. I've done a bit of yoga in the early 80's..
& though I'm not likely to close my eyes & get into a "lotus position" when in a stressful situation.
I do find placing a pyramid with a light or flame at the apex between me & the source of the issue helps...(in a sort of "knowing it's there" opaque vision kind of way.) it can even defuse the "antagonist" I may be facing...
 
Well you could carry on as you are but if you're in hospital every 5 minutes then clearly that approach isn't working.
Why don't you sit down and work out what you want. Write it down. When you know what you want, then you can work out how to achieve it. But you didn't need me to tell you that. You've hit rock bottom. Time to start the long climb upwards. This forum is full of kind (if not slightly mad) people. Yes, @peacetrain I am talking to you. All will help you. Then there are friends, family, docs - the list is endless! One of the most inspirational characters I have read about, is a guy called Aron Ralston. Google him. Then thank your lucky stars you didn't have to go through that! Good luck on your journey!
 
Hi. Depression can be very difficult to deal with. Do you have a local mental health support group near you? I work with Mind in the UK and I know they can provide very good local support for depression amongst other things. You have a long life ahead of you an any damage from diabetes can't be undone so please try to start using the meter and the rapid insulin. You are not alone in needing to do this although it is more intrusive as a teenager. Take care.
 
So it pings up in your alert box. You can then alert several people at once. I wanted to alert you to the fact that I think you're as mad as a barking frog!
View attachment 5004
Pings? What pings? I haven't had any pings? I use my mobile phone... No pings. I just trawl through the posts hoPING to find the threads I'm interested in and those I've contributed to. Will everyone's name be peeinging in my alert box? Too much! Am I able to access my alerts from my mobile phone? I have trouble inserting little emotions too. Viking Woman told me how to do it once and I can do it from my laptop but not my mobile. Can't upload pics either.

Woe is me...



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Agree with what's been said about tackling your depression, have you spoken to your gp about it or your diabetes consultant about how you feel? if not then I strongly suggest you do Aysh, there is help available but you need to make them aware of the problem in the first place.
 
There's been a lot in the news recently about the "mindfulness" course approach for depression. It can be obtained on prescription in some areas. I think it has it's roots in Buddhism and is based on meditation. One young lady interviewed said she would never have seen herself meditating before but the course had succeeded where pills hadn't.

Just a thought.



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You can also get CDs / buy tracks on iTunes to do with mindfulness


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Firstly, well done. You have showed huge courage discussing your problems. I was almost ten years older than you are before I found the strength to talk about mine. Diabetes can take a huge amount away from us, and finding the path to good control is not easy. Below I will explain some of my inspirations which keep me on the straight and narrow. Also, please know that I am not here to judge. I have been in exactly the same place as you with my diabetes control, and know how just how hard it is.

When my control was at its worst, I used two strategies to make me want to change. The first was looking at what I was doing to my family. I had tried to change for myself, and had failed at so many hurdles. So instead I imagined the look on my wife's face 10 years down the line, telling her I was going blind. Trying to explain to my future children how they were losing me.
The second was to personalise the complications, and turn them into an opponent I could outsmart. I am an extremely competitive person, and I hate losing. So I play a constant game against a version of my future self. If I win, I kill him. If I lose, I become him.
He has every diabetic complication I have ever read about. He screams at me through cracked lips, blaming me for all of his misfortune.
I used to fear him. Now I laugh at him. Every time I get a normal blood sugar, I am winning. I look at his hopeless stare, and gloat that I will not wear it myself. I grew tired of bullying myself over diabetes, so I bully him instead. This version of my future self hates me most of all because I will never go through the pain that he feels on a daily basis. His favourite pastime is screaming 'You don't understand my suffering!' Tears pour down from his bloodshot eyes, almost unseeing. I laugh again, and agree. I don't feel his pain, and I don't intend to.

If you are anything like me, you gave your demons a voice a long time ago. They don't want you to know that you have a voice too, and it can be so much louder than theirs. Diabetes has been your enemy for too long, but now you have already taken the first step in taming it by posting here. It is an ongoing process, and you will have good and bad days. If you can, start taking pride in your results. Any diabetic with improved control is a shining beacon to others. Start testing again, and taking your insulin. It won't be easy, but over time it will make you feel better. Insulin is required for every cell in your body to function properly. Without it, your body will be exhausted.
Your blood sugars will probably be high to begin with. Don't blame yourself for this. Instead, try to work out how to change things. Every time your control improves, say 'I did this.' You blame yourself for your failures. I am here to remind you that you are responsible for your successes too.
Finally, wanting to change is one thing, but you need to know how before you can change. I struggled for many years with my diabetes, until I came across the idea of a low carbohydrate diet. I would suggest you watch this video, it explained more to me than any diabetes specialist ever did.
The very best of luck to you, keep posting, and let us know how you are getting on :)
 
Firstly, well done. You have showed huge courage discussing your problems. I was almost ten years older than you are before I found the strength to talk about mine. Diabetes can take a huge amount away from us, and finding the path to good control is not easy. Below I will explain some of my inspirations which keep me on the straight and narrow. Also, please know that I am not here to judge. I have been in exactly the same place as you with my diabetes control, and know how just how hard it is.

When my control was at its worst, I used two strategies to make me want to change. The first was looking at what I was doing to my family. I had tried to change for myself, and had failed at so many hurdles. So instead I imagined the look on my wife's face 10 years down the line, telling her I was going blind. Trying to explain to my future children how they were losing me.
The second was to personalise the complications, and turn them into an opponent I could outsmart. I am an extremely competitive person, and I hate losing. So I play a constant game against a version of my future self. If I win, I kill him. If I lose, I become him.
He has every diabetic complication I have ever read about. He screams at me through cracked lips, blaming me for all of his misfortune.
I used to fear him. Now I laugh at him. Every time I get a normal blood sugar, I am winning. I look at his hopeless stare, and gloat that I will not wear it myself. I grew tired of bullying myself over diabetes, so I bully him instead. This version of my future self hates me most of all because I will never go through the pain that he feels on a daily basis. His favourite pastime is screaming 'You don't understand my suffering!' Tears pour down from his bloodshot eyes, almost unseeing. I laugh again, and agree. I don't feel his pain, and I don't intend to.

If you are anything like me, you gave your demons a voice a long time ago. They don't want you to know that you have a voice too, and it can be so much louder than theirs. Diabetes has been your enemy for too long, but now you have already taken the first step in taming it by posting here. It is an ongoing process, and you will have good and bad days. If you can, start taking pride in your results. Any diabetic with improved control is a shining beacon to others. Start testing again, and taking your insulin. It won't be easy, but over time it will make you feel better. Insulin is required for every cell in your body to function properly. Without it, your body will be exhausted.
Your blood sugars will probably be high to begin with. Don't blame yourself for this. Instead, try to work out how to change things. Every time your control improves, say 'I did this.' You blame yourself for your failures. I am here to remind you that you are responsible for your successes too.
Finally, wanting to change is one thing, but you need to know how before you can change. I struggled for many years with my diabetes, until I came across the idea of a low carbohydrate diet. I would suggest you watch this video, it explained more to me than any diabetes specialist ever did.
The very best of luck to you, keep posting, and let us know how you are getting on :)
How eloquent! I want to cry.


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I'm 17 years of age..
I have been diabetic (T1) for 9 and a half years.
I used to have really good control until I became severely depressed which was roughly 3 years ago.

My control is still awful and I'm in hospital with DKA or near DKA roughly every fortnight or so.

I do not Bs readings whatsoever, I don't inject any novorapid I only do my levemir.

I am well aware of all the complications but I feel like I just don't care..


Thoughts ?
Hi Aysh

Thanks for posting. That took courage and vision.

Diabetes units are getting their own counsellors these days, to talk about depression. They have realised that depression and diabetes often go together, and make each other worse. And they need to be treated together, by people who understand both conditions. If you are in London I can point you to a hospital group that can help. If not you may find your own hospital diabetes unit can give you the support you need.

All the best, x

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