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Diabetes OCD!

Bucco

Active Member
Messages
35
Type of diabetes
Type 1
Treatment type
Pump
Please tell me it's normal to become obsessed with learning as much as possible about your condition when newly diagnosed! I seem to spend every spare second researching diabetes now.....my wife is threatening to join a support group for people who have partners obsessed!
 
Yes. The info (or lack of info) you are given on causes panic. I was in a state of shock for months.
 
Hi Bucco,

No that sounds exactly like me!! I found out about 6 months ago, and immediately bought a shelf load of books, scoured the internet, read journal papers, found this forum (which has been an amazing help), and could think of little else for a few weeks (still am a bit preoccupied with it all to be honest).

I'm still finding out new things everyday, and consider it every diabetics resposibility to be as informed as possible about their disease (knowledge is power, and all that )

So, no, you sound perfectly normal to me!! My boyfriend thought I was a bit obsessive too at first, but he realise's how important it is to educate yourself, after all, we have to live with this for the rest of our lives.
 
Hi Bucco I think most people think the same as you and that is why they join this forum where they will learn everything they could possibly want to know. I learnt everything I know about diabetes from here. The search facility is a very good way of finding information. To help you in your quest for information, here is some advice we give to new members and hope that it is helpful to you. Ask as many questions as you want as there is usually someone here to help.

 
Hi Bucko,
I am totally with you with the obsessional need to understand diabetes and its management. I love the fact that the internet allows us all to be experts in anything we choose. It is driving my husband mad ! :crazy:
 
Bucco,

Knowledge is Power so there is no harm in learning about a condition you will have for life (unless a cure is found)......research away but be careful as there is a lot of quackery out there on the web!
 
When I was diagnosed, internet didn't exist :shock:

But there is one thing you'll never stop learning about diabetes and best ways of controlling your own... When I started I was on a very strict regime of 2 injections a day, and a strict regime of prescribed carbohydrates per meal and snack... Now I use a insulin pump...

But as Nigel says, knowledge is power... You read adsorb take the ideas that work for you, and look at the others to see if they will adapt to suit your needs..
 
Can I just say that you guys/girls are amazing! I am astounded at the level of support and compassion, care and advice offered I these discussions and forums.... Thank you all.
 
hi Bucco
Welcome to the forum, Like jopar, when I was 1st diagnosed with type 1 diabetes their was no internet and for me and my mum it was very difficult to understand, you will find lots of help from people on this site, and things do get easier to manage the diabetes if you are willing to help your self :thumbup:
look forward to hearing from you and how you are getting on as time goes on. :thumbup:
Kev
 
A few months after I was diagnosed a nurse who lives over the road and is a friend of my wife told me I was being obsessive about my diabetes and that I should stop this stupid diet I was on and just relax and let the professionals guide me, yeah right :lol:

OCD? maybe. Obsessive about reading about diabetes and its care? definitely. You sound perfectly normal to me Bucco, welcome to the club.

By the way, it does all start to make sense and fit into place after a while and the obsession does slow down but as jopar has so wisely said you will never stop learning if you are happy to look for information
 
I was diagnosed with type 2 roughly three weeks ago and I too am obsessed. I think this stems from the complete lack of help given by my doctor, the fact that I can't speak to the nurse until the 9th of March (!) and (mainly) the fact that I am absolutely TERRIFIED.

I need to feel as though I can do something positive to help myself. I've already lost some vision in my right eye (due to a blood clot but was told at the time that I wasn't diabetic) and my circulation sucks.

I'm so grateful that I came here and read about low carb... I think that will probably be the way forward, for me.
 
Yes obsessed and happy.
 
Yep, and being a full-time student diagnosed during summer holiday with a copyright library at one's doorstep doesn't exactly help
 
Bucco for control as a type I nothing beats obsession with testing and understanding! hell I would test once every 15 mins if I thought my poor fingers could take it! as it is every 2 hours has to suffice..
 
I know how you feel! I am the label reading lady! Also, the docs must be sick of me and my million questions! To me, knowledge is the key to coming to terms with new diagnosis!
 
Yep Im the same, learning all the time, and thank god I am.

Im a theatre sister, newly retired, and I had all the old type of advice, ie eat lots of starchy carbs, my type 2 ( diagnosed) steadily got worse despite me almost starving myself, and it was thanks to this forum that I eventually had the C peptide test which showed that I was actually type 1.5 LADA and was put onto insulin, now with careful attention to my diet, fairly lowish carbing, I manage on a split dose of insulin, and my blood readings show an avarage of 6.5 which considering it was in the high 20's in december, must mean I am doing something right... If not for this forum, and advicce, and teaching myself online, I would have struggled so much..... So heres to the 'learning curve' :clap:
 
my first post after lurking in the background for the last 12 months!

Bucco, I am 40 this year and was diagnosed with type 1 almost 12 months ago. I am pretty fit and healthy playing football, golf and guitar in a gigging band so can really appreciate how you feel.

Being obsessive about your condition and health is a good thing - the more you understand about your condition (I say your condition, because you will learn that everyone with diabetes is different), the better you will manage your health and your day to day life. Everyone can give you advice and information, but it will be you testing and taking the insulin to manage your health!

I found a book called 'Your Way' - Joe's Diabetes - helped me massively - it basically helps you to manage the condition and not the condition manage you, giving you lots of useful advice and explaining a lot about the condition and tips for looking after yourself.

I had a fantastic DN and dietician who got me carb counting almost from the start - I drive as part of my job, so good control and methodical testing is a must (you wouldn't drink and drive, so never drive without testing - this was brought home to me in no uncertain terms by a diabetic under care of my consultant ending up in prison for not testing and being involved in a fatal car crash because of a hypo).

Apart from the usual advice, the one thing that I believe has helped me is to have the same breakfast everyday (something I did before being diabetic)! The reason I think it helps is I know exactly the amount of carbs, how much insulin and how my sugars respond, keeping things really tight and it seems to set me up well for the day ahead - on the days when I fancy a change and eat something different, I never seem to retain the same level of control throughout the day??

12 months on from diagnosis and I am living my life as I always have done (with the exception of my testing and injecting) which includes full participation in my sports and music and so on.

Good luck with your journey and great that you have found here - there are loads of great people with lots of advice and support -thought I should join in after lurking here for the last year
 
Really appreciate the help - can't begin tomsaynhow grateful I am for the support and to know that there are lots of other folk out there who have been/are going through the same thing.
 
Hi.
After being in denial the first 6 months gobsmacked and angry over my diagnosis.
I then developed my "new hobby" trowelling through diabetes uk, iddt, and the net hunting for knowledge
to adapt, grow and cope with a new life .
Diabetes never sleeps, nor lets us have a holiday or day off from it ...
Needed the basic facts then the whole book of it to make it my friend n not the enemy as I first saw it !
Does this make sense guys???
Anna.x
 
Have just finished reading Bernstein - I reckon you could condense the whole book into about 10 pages!! Now even more confused, no or low carbs or DAFNE?
 
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