Diabetes think tank

[donnellysdogs]

Going on from Dr Trudi Deakin and from persons being so interested in lowering carbs....

Has anybody ever written to Jane Ellison MP and Parliamentary Under Secretary of State at the Department of health......the minister responsible for diabetes care?

She can be emailed st [email protected]

Perhaps we ought to formulate some emails to lobby her with??

Also:

Http://www.diabetesthinktank.org.uk

They have done a report on Patient Experience and the meeting report is on:
Http://ow.ly/HXBQ9.

Info on this is also available in March 2015 Diabetes Wellness News.

I don't know whether any diabetics on the forum have actually completed the 'patient Experience of Diabetes Survey' (PEDS) lSt year.. But I certainly didn't!!Diabetes UK was supposedly involved with this survey and the Picker Institute.

LSuppossdly the pilot survey teached out to people with diabetes.

Perhaps we should be trying to get involved directly with these schemes and lobbying the Department of Health with appropriaty worded letters and emails about the care, education etc that we get?

 

[tim2000s]

I agree. I think we as a community should also consider asking that medical insurance schemes that some of us participate in should allow pump and cgm funding. They consistent reason given for it not being introduced is cost. Well if we take that away from the government, why shouldn't we be able to get the best care we can?

 

[donnellysdogs]

Depends on the approach to be taken... We have to think of ALL diabetics.. Not just a specific group.. At least thats what I think.

Unless we can get sub committes set up to lobby for certain groups of diabetics??

Essentially though, its the care that we all get

 

[tim2000s]

Given the topic posted by another t1 where their insulin is being restricted by the surgery due to cost, frankly I don't see where the issue is. It should be a blanket approach for all conditions. If you have medical cover, you should be able to use it for what you want, because it alleviates pressure on the nhs, making the treatment on the nhs better as fewer people need to use it.

 

[donnellysdogs]

This is a separate issue though to the NHS. Many diabetics wouldn't even be able to get private medicL insurance here....

I think lobbying needs to take place on the NHS downfalls like T1's being limited on strips or even insulin and T2's having trouble gaining access to any strips.

Personally I don't think that private healthcare issues are the top of the list for lobbying. However majority would get the vote on this...

 

[donnellysdogs]

Thoughts from Dr Trudi Deakin on another post.. Just thoughts on the ways that we could actually get involved assisting more rather than just moaning...

From Trudi...

I do think that people with diabetes can influence policy as current infrastructure is all about involving people living with the condition. I was invited to attend the Think Tank meeting but unfortunately couldn't attend due to other commitments. In some respects committees may take more notice from people living with diabetes than a healthcare professional. I do believe we need to work positively with policy makers and guideline committees as much as possible. The diet-heart hypothesis is so well ingrained that we can only hope for a shift in current thinking by educating and raising awareness. Your stories collectively can help to do this. One case study (n=1) will not have too much impact but n=?? (I don't know how many people are on this forum) could have a significant and positive impact. A campaign delivered diplomatically and professionally could be really effective. We don't want committees to feel threatened and undervalued as this could result in a backlash but working with the decision makers could be a step in the right direction?