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Diabetes UK and reduced carb success

paul-1976

Well-Known Member
Messages
1,695
Location
East midlands
Type of diabetes
Type 2
Treatment type
Insulin
Dislikes
Dishonesty
I thought I'd post my story as reduced/low carbing was the only way forward for ME despite what the current guidelines from the NHS and DUK state.


Around October 2011 I noticed things were ‘Not quite right’ and I was falling asleep at the drop of a hat,my gums were bleeding heavily when I brushed my teeth,I was peeing like a racehorse,boils and abscesses were popping up everywhere and I had more ‘Thrush’ than a songbird chorus with the added nasty complication of ‘Balintitus’,my vision was often blurred,I could drink litres of water but still felt as dry as the desert and had to carry water with me EVERYWHERE which was a right pain. .BUT, I put it down to just getting on a bit and being under stress from another illness in my life.

After a search on ‘Dr Google’ my symptoms were showing consistency with a condition called Diabetes although I wasn’t sure which type as I didn’t have a clue and I asked a friend who was a Type 1 since aged 4 if I could borrow his spare optium xceed meter. Well a random test many hours after my usual breakfast of 2 weetabix came back with a reading of 19. Well this was a mistake surely? Tested again and it recorded just over 20.This can't be right I thought, I’m eating a healthy diet of low fat with heart healthy whole grains,cereals and I don’t take sugar so this MUST be wrong…SURELY?

Well I thought I’d better rule this out with an appointment with a HCP. Well the day came and I got to see the practice nurse who after ordering a fasting blood test and HbA1c asked me in for my results and told me I had something called Type 2 diabetes, my fasted level was over 12 and I had an HbA1c of 7.5% BUT no worries I was told, 7.5% is good control and I should make sure I eat plenty of whole grains,fruit,vegetables,low fat spread,skimmed,milk avoid fatty foods etc. Well this was going to be a piece of cake….wasn’t it?

Well, not quite! Apart from still always feeling hungry and ‘ill’ all the time my sugars continued to get worse. I’d already joined a support forum just after diagnosis and I was advised that something called ‘Carbohydrate’ as the main factor in raising our BG levels. I didn’t know what a carb was to be honest except that I believed they were healthy and I thought to myself “This can’t be right or healthy surely???” (The irony I feel now!)

Anyhow, things continued to get worse and I kept reading the forum and saw there was fierce debates between low carbers and another much smaller group that advocated low GI, low carb-low fat-low calorie and me being confused ended up trying all of them, yet my BG’s continued to climb, I was starving hungry, never felt satiated, was as weak as a kitten and was losing fat AND muscle at an alarming rate. My GP, realising my HbA1c was now 14.1% gave up with all the oral meds he had tried me on which did nothing and packed me off to the Endo who ordered tests which revealed I had Type 1 diabetes although it was a slower onset form and I might get away with Byetta for a while…that failed and Insulin it was to be…by this stage I’d been reading the forums for a while and I noticed something big and that was all the success people were enjoying on a low carb high fat diet,weight loss,normal BG’s,blood pressure,lipid panels the lot and I thought to myself ALL these people can’t be wrong and they’re all eating great grub that we had been told to avoid….I then read a link which told a story of another Type 1 diabetic called Fergus who had transformed his health and reduced his insulin requirement way down on a Low carb high fat regime and I’d also heard about Dr Richard Bernstein,a long term Type 1 diabetic who was fighting fit and advocating the very same through his books and his own lifestyle.

Out went all the low GI cereals,skimmed milk,low fat spread,bread,spuds etc and in came full fat greek yoghurt,blueberries,blackberries,strawberries,real butter, eggs, cream,coconut oil,lard,olive oil,meats,green veggies,salads and bacon,sausages,mushrooms and eggs were back on the menu for breakfast,that filled me up until teatime and I no longer felt the need for lunch and if I got peckish I would nibble on some mixed olives from the deli,or I’d have a few pork scratching or walnuts and I rediscovered mini salamis were handy snacks, too all of which had little or no effect on my BG’s. Dinners are DEAD easy too..meat and 2 veg,chicken salads with plenty of cold hard boiled eggs,roast dinners without the spuds and with some mashed swede,shepherds pie but with a topping of mashed cauliflower and mashed swede mixed together with lots of butter,Indian takeaway without the naan bread and rice but bulked out with spicy lamb kebabs and salad and many other combinations and recipes I’ve learned off the internet have been great!

My meter was showing great results as an upshot of this and at my diabetic review last year my tests revealed my HbA1c was down into the 6’s despite my insulin use being very low on just 2 injections a day, my BP was down and my lipid panel had all improved to a good level despite being told by the NHS that sat fats will push them through the roof..well they were wrong! I have continued since then with this lifestyle,my weight is the best it's been in years and my last HbA1c was 31 (4.9%).
 
Just to add...

I'd most welcome any other experiences from members who found that the mainstream advice from the NHS/DUK failed them but then ultimately found success through low/reduced carb regimes and did you see an improvement with weight,lipid panels and blood pressure by replacing the carbs with natural sat fats...I know this would only be counted as anecdotal evidence but I feel enough of it would be worthy of sending to DUK.(Even if it's been posted elsewhere-just a copy and paste to this thread would be great so they're all in one thread) :)
 
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awesome story mate!

I have also had fantastic success with low carbing as you know

I was lucky enough to find this forum the very first day of diagnosis (Type 2), after reading what people where saying and never having been on a diet in my life it seemed the logical thing to try, i was told i was 5 years away from major organ failure my bg was 24.9 and i hadnt eaten for hours, my cholesterol was 6.8 and bp 250/150 so according to the doctors at the hospital i was ticking bomb, so although LCHF seemed to go against everything i have ever been told, i was scared enough to try something radical plus my wife had been on a low fat diet for 15 years and steadily gained weight, so i gave up all the usual suspects and started on a mission to reduce carbohydrates, id read about 30g a day for carbs being a good number to aim at but to be honest, it seemed a ridiculous target, each day with the help of "myfitnesspal" app i worked on reducing my carbs, my weetabix turned into porridge and eventually yogurt and berries as it is now, at first i just couldnt see a way around bread so carried on with my lunch time sandwiches, giving up potatoes at my evening meal didnt seem to bad and i had started making cauliflower mash which was better than spuds anyway my bg was steadily falling within a fortnight it was 18 then another fortnight spiking up and down but was 12s and 14s my visits to the doctor and nurse were met with disgust over my diet, but i was losing about 4lb in weight a week and bg was reducing so i was quite happy i was doing the right thing, this trend continued and so did my ability to reduce my carbs, the lunchtime sandwich had to go so it turned into salads and cold meats or fry ups in the cafe, id started baking low carb deserts at the weekends which was brilliant and i didnt feel at all deprived and was never hungry because when i was i ate nuts or snacked on cheese, before i knew it i was at 30g of carbs a day and my bg was normally around 4 to 5mmol i had a bmi from the 30s to normal range, id lost a stone in weight a month, i felt completely energised i was training in the gym and going out running to cut this short because you can see the way its going, 11 months after diagnosis im perfect weight, my bp is 105/65 my bg is between 3 and 6mmol my cholesterol is 2.8 with trigs being 0.6 and im training for the london marathon in april,

I believe this is mostly down to LCHF diet and some great advice from the good people of this forum
 
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Hi Paul, are you type 1 or 2? You said you were diagnosed type 2, was it re-diagnosed later?
 
Hi Garr!

Type 2 originally purely based on my age and weight at the time,after a large deterioration in my levels and HbA1c I was tested for C-pep levels and for GAD antibodies and re-classed type 1 (LADA)
 
Cheers Paul, I'll be checking the thread with interest. I was very low carb before diagnosis, but advised I had to go back to carbs when I was diagnosed. I know there are a few low carb T1s on here. Contemplating the low carb life again. The main thing that concerns me is the low HbA1c ( How stupid does that sound?) after losing my driving job I don't want to put my car licence at risk.
 
what a lovley read had me fasinated as a newbie of 2 month type 2 . if i hadnt of found this site i think i would have been i a mess i showed no symptoms atall my readings were 18.1 the first day i signed in the advice to me was clear low carb all the usual things gone and eat meat fats etc i was not so sure ... within 2 weeks i was down in suger to 6 and lowering and lost 5 ib much to amasment of my dn who insisted i didnt have to give up cake? just under 2 months later i have lost 19 ibs and eating well but i rarley feel hungry , so thanku to all u guys for you help and support id be lost without you all. xxx
 
I've been on both sides of the fence, newly diagnosed type two I put my faith in my doctor, dietician and DSN as I had no reason to question the diet advice believing they knew best.. I was put on metformin and did lose weight and was told I was doing well but my Hba was creeping up at every blood test, was told this was normal and not to worry as the doctor would review my medications. It was only when I progressed onto gliclazide that I was given a meter and test strips, showed some improvement but it was short lived and the glic was increased. It's only when I started to surf the internet and reading the stories of other diabetics on forums like this that the penny dropped. The rest is history off the glic down to 3 metformin, Hba in the fives for the past few years and cholesterol levels improved,.
 
I'll not repeat my full story again as its on other threads already,but basically very similar, followed the dietary advice for years and it made everything worse, was diagnosed last year and found this forum, changed to LCHF and BG's down, Cholesterol down.


Sent from the Diabetes Forum App
 
I've been on both sides of the fence, newly diagnosed type two I put my faith in my doctor, dietician and DSN as I had no reason to question the diet advice believing they knew best.. I was put on metformin and did lose weight and was told I was doing well but my Hba was creeping up at every blood test, was told this was normal and not to worry as the doctor would review my medications. It was only when I progressed onto gliclazide that I was given a meter and test strips, showed some improvement but it was short lived and the glic was increased. It's only when I started to surf the internet and reading the stories of other diabetics on forums like this that the penny dropped. The rest is history off the glic down to 3 metformin, Hba in the fives for the past few years and cholesterol levels improved,.
Exactly the same happened to me. Now feel I am in complete control. My diabetic nurse still keeps telling me diet is wrong, need to keep taking the meds and stop testing as not needed. I just smile knowing how wrong she is but will never change.


Sent from the Diabetes Forum App
 
Thats the good thing about my primary practice doctor and now (suprisingly to me) my DN, they both endorse low carb, said it is working for too many people to ignore.

Now if I can just get rid of the doctor who was insisting that going onto insulin is inevitable for type 2 diabetics I would be really happy. The thought of injecting insulin just so I can eat rubbish turns my stomach.


Sent from the Diabetes Forum App
 
Well all this is quite interesting. Last April my wife was told she was celiac and from that point started to eat only gluten free food. Not to upset her ( she really loved her baguettes ! ) I stopped eating bread and pasta. ^ month later I have lost 5 Kg and HbA1c down from 56 to 48.
 
I've been on both sides of the fence, newly diagnosed type two I put my faith in my doctor, dietician and DSN as I had no reason to question the diet advice believing they knew best.. I was put on metformin and did lose weight and was told I was doing well but my Hba was creeping up at every blood test, was told this was normal and not to worry as the doctor would review my medications. It was only when I progressed onto gliclazide that I was given a meter and test strips, showed some improvement but it was short lived and the glic was increased. It's only when I started to surf the internet and reading the stories of other diabetics on forums like this that the penny dropped. The rest is history off the glic down to 3 metformin, Hba in the fives for the past few years and cholesterol levels improved,.

Same for me - I was on the NHS/DUK diet for 7 years before the complcations were ruining my life. 3 months of low carb & I was well again - & still am well & active after 6 years of LCHF - at nearly 75.
 
Well all this is quite interesting. Last April my wife was told she was celiac and from that point started to eat only gluten free food. Not to upset her ( she really loved her baguettes ! ) I stopped eating bread and pasta. ^ month later I have lost 5 Kg and HbA1c down from 56 to 48.

There is a blog by Dr Briffa on the dangers of wheat for many of us. LCHF greatly reduces our wheat consumption.

See
 
I was diagnosed with T2 diabetes in December; my doctor mentioned the Atkins diet in passing, and told me I also needed to lose a lot of weight. I was also given this same information told by my nurse who told me to get information from this site. However both the printed information I was given and that I found on Diabetes.co.uk advised the healthy eating "food plate".

I immediately stopped eating all cake, biscuits, sweets, orange juice, and most of the sugar in my tea & coffee.etc, and stuck to this before Christmas. I lost very little weight (about 2kilos) which then didn't change at all. So having done some web research I then cut out white bread & potatoes and a few other sugary/starchy things to start with, and having read some of the information on our forum, also bought myself a meter, and investigated the Atkins diet (that my husband was rather scathing about for cost reasons!!) and low carb diets in general, and these seem to make quite good sense to me. I next cut out long grain rice and my rye bread and anything else with grains or flour on the "advice" from my meter which is telling me now that my glucose levels are fairly consistently lower. and I've been working my way down to 20-30 grams of carbohydrates a day. My head is far less muzzy, my glucose levels are down, except when I miss a meal, and I've lost another 5 kilos in weight so far.

Even though it's only been a short time, I'm definitely convinced that the dietary advise I was originally given is not right for me!

Robbity
 
Low carbing seems to be working for me, halved my HbAc1 levels since Oct 2013. It may it not for everyone but I'm still sticking to it to see if my good results continue. Best of luck with your experience.
 
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So glad to read positive stories from this site! I refuse th read negative stuff now...it takes the wind out of my sails and makes me head for junk food! I have just had abdominoplasty for repairs from previous surgery, 1.4kg of scar tissue and fat removed....good for diabetes. I'm running a bit high on the bg readings, but the benefits out weigh a bit of disruption. I'm just starting to be able to move around after 10 weeks, so working hard on the diet and relaxation. The relaxation stuff is so much more important than I realized. I am looking at my life style changes as just that, not, a diabetic diet, it helps to mentally dismiss the label and work on healthy outcomes. After all I have asthma, scoliosis, IBS, and high stress, so life style changes help all of me. I am more than diabetes, I am a person with diabetes, not a diabetic!
 
Thought l had menopause due to a comment by the gynno in around 2011. Steadilly got worse after a really bad patch when on holiday then bad cold went to the dr for "the pill".
Few goes of the vampire sucking blood was told start of Nov l was type 2.

lt was a surprise but nothing to get upset over after the last few years stress and also l have done 11yrs night work. So both those things l wondered over the years if l would pay a price for it.
I realise now reading posts here my not a worry/problem is a strange attitude but to me there was nothing to get upset over. l had Andy my new husband. Brian my husband now in spirit and my guardian Angel with theirs as back up helping as well.
l shrugged my shoulders "made a plan" told them all l needed help got diverted to the the main site then the forum and got my help.

First day cut sugar out my coffee...worse it was fructose been on it about 2 years was told it was healthier.....low gi. l dont take sweetener hate the taste
lnitally l cut carbs but still high bloods and hungry.
Then made another plan for the impossible... down to around 30gram/day. and everything stabilised, bg down, weight going down lot of excercise and health going up. And it wasnt hard at all, l thought it would be.

l am not hungry l dont need to scoff snacks occasionally l want one so snack so have seeds or cheese.
l have my health coming back feel fit (bar normal aches that happen to anyone) and raring to go.

Bit ironic that the thing that is so deadly has been the best thing l have had health wise for years given how it has made me improve my life and lifestyle. Either that or l am to stupid to realise how bad it is which is also a possibility :-D
 
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