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Diabetic Maculopathy

Discussion in 'Greetings and Introductions' started by RVW, Mar 17, 2021.

  1. RVW

    RVW Type 1 · Member

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    Hi everyone. i am new to the forum and not sure if i am posting this in the correct place.

    Even though i am new to the forum i`m not new to diabetes, i have been type 1 diabetic for 33 years.

    Recently i had my yearly retinopathy eye screening and my results came back with diabetic maculopathy which has come as a bit of a shock and worry to me.

    So my question to all of you nice people out there is have any of you been through this and is it anything to be concerned about?

    Many thanks, RVW
     
  2. Dark Horse

    Dark Horse · Well-Known Member

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    Are you being referred to the Hospital Eye Service for further investigation or just moitored more frequently in the Digital Surveillance arm of the screening pathway? Do you know if your visual acuity has changed in the affected eye(s)?
     
  3. RVW

    RVW Type 1 · Member

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    Hi Dark Horse, thanks for you’re reply.
    I have got another appointment in 3 months with the digital surveillance team who do my 12 monthly checks for further investigation.
    Not sure about my visual acuity and not sure if it’s in both eyes, i’ll obviously find out more on my next appointment.
    Thanks again.
     
  4. chrisbug

    chrisbug Type 1 · Well-Known Member

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    Hi RVW,
    I'm in a similar position as you are. After my regular annual diabetic eye screening I had been bumped up to 3 monthly monitoring due to Maculopathy being detected, then they pushed it back to 6 monthly screening.
    The people carrying out the screening have never been able to offer any advice/opinions etc.
    The Consultant at the hospital has told me that if no changes occur, surveillance screening will just carry on in this manner, and the only thing that I can do is to try and keep my blood sugars in target, and monitor my blood pressure.
    Maybe it's something to discuss with your GP or health team?
     
  5. Dark Horse

    Dark Horse · Well-Known Member

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    If it's digital surveillance, it means that's there's just a small change which needs to be monitored more frequently. If it resolves, you would be returned to annual screening. If there is no change, you would be brought back into digital surveillance, possibly with a longer interval such as 6 months. If it appears substantially worse, you would be referred to ophthalmology for further eye tests to see if the changes are significant.

    In the mean time, just concentrate on trying to keep good diabetic control.
     
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  6. RVW

    RVW Type 1 · Member

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    Thanks again for the replies, my initial thought was they wouldn’t wait 3 months if it was serious so hopefully it’s just a matter of monitoring it on a regular basis.
    My diabetic consultant has always been happy with my overall control, my last A1c was 6.8% and according to my Libre sensor it is still at 6.8%, i know there’s always room for improvement but i can’t seem to get lower than this no matter what i try.
    Maybe the maculopathy is purely down to being diabetic for so long ‍♂️
    Thanks again for the replies from both of you, it’s good to talk to other people in a similar situation.
     
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