Diet for anyone with gastroperisis

Sarah69 said:

Thanks for all the info. I don't have all the symptoms of GP but I have the nausea, sick, uncomfortable stomach. The top part of my stomach just under my ribs is very delicate, if I have my arms folded it starts to make me feel sick, I can't bear tight clothes around my stomach. I'm not in any pain. I don't eat very well at the best of times and this is making it so much worse as I'm so scared of being sick. At work on Monday approx 2 1/2 hours of my breakfast of shreddies, I threw up at work which was absolutely mortifying as I didn't have time to get to a toilet. What treatment are people on? I'm on anti sickness tablets but they don't seem to work.

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There is a lot of different meds that people can go on with GP.

Have you had any tests, you do sound to have a lot of the symptoms and diagnosis by a GP feeling is not enough.

You should have stomach emptying timed tests as a minimum and an ultra sound of your gall bladder too.
Minimum. Ideally the up and down cameras too.

The trouble is GP is needing specialist tertiary care as people can end up being tube fed.

This is why things like weetabix arent good and you need specialist advice to keep your stomach working..

21/2 hours and most peoples food would have passed through the stomach. Gallbladder and stomach can interact in similar ways...

It is so important that you have this looked in to more than a gp just giving you anti sick meds. Some people go on to get stomach stimulators etc

I have managed to get improvements with my stomach and colon and now just rely upon Dulcolax but have had a lot of meds along the way and my food has been liquified, tea plate and now up to centre of a small dinner plate. This is working endlessly with my Consultant and also being very, very specific endlessly with foods, monitoring, noting, reporting etc. I still have some bad days but I am in control...

I gastroscopy isnt good enough to test for GP.

It has to be stomach emptying timed test....

It can give some detail but not all the detail for your symptoms.

I really recommend that you look at gastro intestinal failure uk (gift uk) -closed group on FB. Lots of different people with different experiences, different meds etc, different foods to try.

GP is basically down to Vagus Neeve damage and these people have vast experiences.....

Sarah69 said:

Thanks so much for all your info. I can only go by my Dr I don't think I can demand to have tests done, he also mentioned a CT scan but I haven't had anything through for that. I think they are doing one test at a time. Obviously if nothing shows up with this gastroscopy next wed I will be back at the Drs. I don't have much faith in Drs/hospital A few years ago I had chronic hip pain, I was first told it was a trapped nerve by my Dr I must have gone around every dept at the hospital who said it was referred back pain and me arguing that it was coming from my hip only to be diagnosed almost 2 1/2 years later that I needed a hip replacement, my hip was just bone on bone by that time. No amount of painkillers ever helped, I tried everything from paracetamol upto methadone!

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I am so, so very sorry that you are going through this and also had a horrible journey previously and lost faith too. I too have had a (different) journey, where I too lost all fairh in consultants and doctors......

It took my hubby to come with me to every appointment and a very good person to explain how docs/consultants think and react. If I said I was scared (which I was) instead of showing any anger (I was angry from having dreadful experiences) then I would get people like docs on my side. I am still scared (and angry at times) but I explain my fear and scared very, very precisely now. Akwaays with written prooftoo leave tge people to put on my file as a reminder! This advice has helped me enormously. Saying scared gets people to worrk with you, not against you. Anger or harsher tones in vouce does make people take flight... and not help fight with you...

I know for my referral for 2nd gastro pperson, it helped that the gastro person arranged all the tests not fhe GP-. If you havent got a gastroenterologist referral yet, I do think its reasonable request to have a request put in. A gastro will ask for the maiority of tests to be done and then depending those will ask for the specific ones from those tests. It looks like you are having to go singularly one at a time.

It would be a reasonable request to say to GP that you are scared and you reallywould appreciate a referral to a teritiary hospital gastroenterlogist as time is important in diiagnosing illnesses of the stomach and colon.

Dist wise the specialists can only advise but it starts with you. You need to change immediately from weetabix if it makes you sick. Try yogurt. Dont try anything else with it. That way you know yogurt is ok (or not). Same with any food. Try a plain omelette with a dash of cheese if you have to. Dont go mixing foods too much. Even better if you could eat just boiled egg or poached...


Will come back to you tomorrow with list of meds...