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Disappointed :(

G

Gaston 2

Member
Messages
6
Type of diabetes
Type 1
Treatment type
Insulin
Hello,
Took us ages to plan and get pregnant with my son (3 years+). Have been working so hard to tighten control so can try for baby no2. My son is now 2.
Since January have been obsessive about bloods. Have reduced from 9% to 7.2% but Dr wants me at 6.5%. My average reading last week (on diasend) was 6.4mmol. So frustrating as I thought I had it. However, hypo awareness is terrible now and needs work. I dont wake in the night now before 2.7mmol. Got to pedal backwards now to increase blood sugars, reduce insulin ratios and start again a bit. Will be reassessed in three months. Just really sad because I have been working so hard for a long time and I really thought I had done it this time
Am 36 so time is ticking feel sorry for myself which i know is ridiculous. Just wanted to share with an audience who would understand. Feel jealous of ladies who dont have all this planning and hard work
 
Have you tried using a Libre to monitor your levels? It might help you spot where you are going out of range so you can fix quicker?
 
I have done the trial but cant afford it - my local authority havent made a decision yet on prescribing but they are aware that I want it! Thank you for your reply x
 
Gaston 2 said:
I have done the trial but cant afford it - my local authority havent made a decision yet on prescribing but they are aware that I want it! Thank you for your reply x
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Fingers crossed for you all round.
 
Hi @Gaston 2 I really do sympathise with you, it's so hard to keep a balance when you are being placed on such a tight parameter.. so going to be controversial if you fell pregnant then is it really such a great hardship that you are not right in the zone ?? The reason we are given this advice is because of potential for complications but then this is a slight risk anyway, but with a healthy pregnancy already under your belt then you know it's achievable. I cannot even begin to imagine what my control was like when at 23 weeks I found out I was gestational so who knows, how long, how high etc etc but daughter was induced early and was and is healthy, full t1 came suddenly 3 years later and I stopped at 1 but would of loved the chance for no. 2, however it is what it is and we are k with that. My advice is you are already trying hard enough, it shouldnt be stressful and if it happens then it happens and you will be supported if it does, which I hope it does, best wishes.
 
@Juicyj I often think this! I dont know if I am too much of a wimp. You are absolutely right that it shouldnt be stressful. You give very good advice, i felt loads better reading your message x thank you x
 
Gaston 2 said:
@Juicyj I often think this! I dont know if I am too much of a wimp. You are absolutely right that it shouldnt be stressful. You give very good advice, i felt loads better reading your message x thank you x
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As a mum to another mum, go with your intuition and do what you feel is right, a doctors opinion can rule your life but they don’t live with this you do, best wishes Gaston and good luck x
 
I feel your pain. Lots of hugs.
T1 for 48 years here, my (healthy) children are 23 and 26.

I lost hypo awareness for both my T1 pregnancies, I simply can't afford to keep my HbA1C much below 7 without losing awareness. During my first pregnancy I was found wandering the street with bare feet because I went low during an afternoon nap. My poor husband woke to me having a seizure in the night and thought I might be dead. During my second pregnancy, which I got through without hospital visits for hypos, I had friends and family round to visit in the afternoons because I didn't trust myself to be alone with my 3 year old. I bought my first mobile phone just so that my husband could always phone me to check that I was OK.

No cgms were available then, but they are now, and I believe it's possible to jig the libre (xdrip or some such?) so that it can deliver hypo alerts. Alternatively, maybe your clinic could set you up with a dexcom, which definitely has alerts.

For my second pregnancy, I got my blood sugars where I wanted them before "asking permission" from the clinic. In fact, I was so sure that they were where I wanted them that I had to go back to my clinic a week after "getting permission" to say "oops, I'm already pregnant". .

My T1 mother had two babies pre glucometers.... (Though her first pregnancy, much much too soon after an extremely late T1 diagnosis, ended with a stillborn baby .)

Good luck, however you decide to handle this. Hypos are such a <insert your favourite swear word>. It sounds as though your blood sugars are basically there, but you've got to work out a scheme for dealing with the hypos. More hugs.
 
I've deleted this post because it was an accidental double posting.
 
Hi @Gaston 2 . I'm out of my depth here being a bloke but I just wanted to try and offer some reassurance.
Firstly is the doctor requesting a 6.5 HbA1C a GP or a specialist. I think someone specialising in diabetes would offer more practical helpful advice.
As I see it you , like all of us need to be happy, comfortable and in control. Can understand GP wanting you at 6.5 but what will the cost be to you? Added stress, hypo unawareness, more stress on your family life.
7.2 isn't that bad ( I don't know how important in pregnancy) and if you are less stressed, regain hypo awareness and ultimately a bit happier then surely that's the way to go. Pregnancy ( he assumes ) must be extremely stressful. Why compound that with extra diabetes management.
Apologies ladies if I'm out of order here.
 
How terrifying, for you and your husband. It’s awful isn’t it. And, you have really summed up the problem RE asking permission! I think that’s the part that grates the most. I have been trying since February with little feedback and now got to wait another three months for another hba1c. Romance is dead! Thanks for ur reply x
 
You don’t sound out of order or out of your depth!
It’s my consultant. I think a lot is based on WHO recommendations regarding risk and congenital abnormalities (hate this terminology for so many reasons). 6.5 is seen as the magical figure and we all know how much arbitrary figures mean to the medical world (gah). Thank you for ur reply xx
 
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