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Disappointed...

Carbon

Carbon

Well-Known Member
Messages
61
Got results of my hcb1 and in recent years I have been at 50 now I'm 52.... they say don't worry but disappointed with my results..
I also had more blood tests which I'm waiting for call back from gp tomorrow, nurses said I have thiroid problem & lacking in iron too.... seems like a loosing battle.
I've tried hard all year to avoid high sugar levels & test regularly too & do lots of walking. Only good thing is I've lost weight, on positive side.
Anyone else have thiroid problem on top of diabetes?
 
@DCUKMod does

A 2 point rise in a1c is nothing to worry about. Especially if you are low on iron as that may affect results.
 
Hello @Carbon I also have an under active thyroid along with type 1. Personally I don't get worried about variations with the HbA1c, I celebrate successes and ignore failures, seems to work for me ;)
 
Hi @Carbon, like @Juicyj I have an under-active thyroid which was diagnosed at the same time as T1. Apparently it's not uncommon. I've been taking thyroxine for over 30 years and it seems to work for me.

Losing weight's a good thing by the sounds of it, and I agree with @Diakat that a 2 point shift in hbA1c is nothing to worry about. The test is quite a blunt instrument. And if your medical team have discovered thyroid issues and iron deficiency, much better to know about it and get it seen to than live with the results (before my thyroid medication I was permanently tired). Good luck!
 
Hi @Carbon, our lives seem like one battle after another!
As @Diakat mentioned being liw in iron does not help. Getting your doctor sort this problem out sounds
Important as it currently might be preventing you losing or maintaining weight and make you more prone to infection, according to sources like mayo.org - iron deficiency, plus in addition to causes like cycles and diet, less common things like coelisc disease may show up this way, see coeliacUK.org.
And thyoid troubles there to boot !
Please make sure your doctor does no give you short shrift, even uf yiu hpneed several ppointments to sort itvall.
Best Wishes:):):)
 
Carbon said:
Got results of my hcb1 and in recent years I have been at 50 now I'm 52.... they say don't worry but disappointed with my results..
I also had more blood tests which I'm waiting for call back from gp tomorrow, nurses said I have thiroid problem & lacking in iron too.... seems like a loosing battle.
I've tried hard all year to avoid high sugar levels & test regularly too & do lots of walking. Only good thing is I've lost weight, on positive side.
Anyone else have thiroid problem on top of diabetes?
Click to expand...
I'll tag in @Bluetit1802 who knows lots more about anaemia and HbA1c than me.... over to you Daf
 
@Carbon - When I was initially diagnosed I managed a big drop in my A1c at the first test, then gave myself a bit of a talking to, before the next one. Frankly, I realised that to think I could keep replicating large drops just wasn't credible. I'd have to find my level sometime.

On that basis, I allowed myself a range within which I will find my A1c acceptable. I won't say what that range is, because that's only relevant to me. We all have our own running ranges.

In terms of the thyroid issues, there's a lot of that. Lots of folks have it, although more women than men.

Bearing in mind the thyroid gland is at the centre of our metabolism, it's not surprising that if it starts to go a bit off-piste, other things might too. A wonky thyroid can lead to slightly elevated blood sugars, as well as the potential for anaemia being in the mix.

Various forms of anaemia are also common with thyroid problems, as well as some vitamins going off. In particular, I hope you are having your thyroid (TSH, T$ and T3 checked), along with your Vit D, Ferritin, folate and Vitamin B12.

It can take a while to get the thyroid back with the programme again, but the good news is your Doctor is showing soe interest.

When it became clear I probably had thyroid issues, I joined another forum - a bit like this, but for thyroid: https://healthunlocked.com/thyroiduk/posts

There are loads of extremely knowledgeable people over there who have helped me understand things a whole lot better, so please don't feel alone with any of this.

So, to reiterate, Carbon; please cut yourself a bit of slack. There's a fair bit going on in your body at the moment and a score of +/- 2 is very much holding your own.
 
bulkbiker said:
I'll tag in @Bluetit1802 who knows lots more about anaemia and HbA1c than me.... over to you Daf
Click to expand...

All I know is that if there are abnormalities in the red blood cells, which includes anaemia, the HbA1c can be inaccurate. This is also the case with thyroid issues. Depending on various factors, the HbA1c can be falsely high, or falsely low.

However, your rise of only 2 is not of any concern, as long as it doesn't keep on trending upwards on future tests. That is what you need to watch out for. One off-piste result as small as yours is quite meaningless, although I do understand your disappointment. My advice is to get your anaemia (iron deficiency) and thyroid issues sorted.
 
Carbon said:
Got results of my hcb1 and in recent years I have been at 50 now I'm 52.... they say don't worry but disappointed with my results..
I also had more blood tests which I'm waiting for call back from gp tomorrow, nurses said I have thiroid problem & lacking in iron too.... seems like a loosing battle.
I've tried hard all year to avoid high sugar levels & test regularly too & do lots of walking. Only good thing is I've lost weight, on positive side.
Anyone else have thiroid problem on top of diabetes?
Click to expand...
Not as bad as my last hba1c at 75

I've got some work today wish I could get a 52
 
hh1 said:
Hi @Carbon, like @Juicyj I have an under-active thyroid which was diagnosed at the same time as T1. Apparently it's not uncommon. I've been taking thyroxine for over 30 years and it seems to work for me.

Losing weight's a good thing by the sounds of it, and I agree with @Diakat that a 2 point shift in hbA1c is nothing to worry about. The test is quite a blunt instrument. And if your medical team have discovered thyroid issues and iron deficiency, much better to know about it and get it seen to than live with the results (before my thyroid medication I was permanently tired). Good luck!
Click to expand...
Thank you... Bless you xxx
 
kitedoc said:
Hi @Carbon, our lives seem like one battle after another!
As @Diakat mentioned being liw in iron does not help. Getting your doctor sort this problem out sounds
Important as it currently might be preventing you losing or maintaining weight and make you more prone to infection, according to sources like mayo.org - iron deficiency, plus in addition to causes like cycles and diet, less common things like coelisc disease may show up this way, see coeliacUK.org.
And thyoid troubles there to boot !
Please make sure your doctor does no give you short shrift, even uf yiu hpneed several ppointments to sort itvall.
Best Wishes:):):)
Click to expand...
The nurses said I may be given tablets to sort it but having gp call me tomorrow sometime. Thanks for your advice
 
Bluetit1802 said:
All I know is that if there are abnormalities in the red blood cells, which includes anaemia, the HbA1c can be inaccurate. This is also the case with thyroid issues. Depending on various factors, the HbA1c can be falsely high, or falsely low.

However, your rise of only 2 is not of any concern, as long as it doesn't keep on trending upwards on future tests. That is what you need to watch out for. One off-piste result as small as yours is quite meaningless, although I do understand your disappointment. My advice is to get your anaemia (iron deficiency) and thyroid issues sorted.
Click to expand...
Thanks so much for your advice... hope to get it sorted, yes. Waiting on gp call tomorrow to see what will be happening.
 
DCUKMod said:
@Carbon - When I was initially diagnosed I managed a big drop in my A1c at the first test, then gave myself a bit of a talking to, before the next one. Frankly, I realised that to think I could keep replicating large drops just wasn't credible. I'd have to find my level sometime.

On that basis, I allowed myself a range within which I will find my A1c acceptable. I won't say what that range is, because that's only relevant to me. We all have our own running ranges.

In terms of the thyroid issues, there's a lot of that. Lots of folks have it, although more women than men.

Bearing in mind the thyroid gland is at the centre of our metabolism, it's not surprising that if it starts to go a bit off-piste, other things might too. A wonky thyroid can lead to slightly elevated blood sugars, as well as the potential for anaemia being in the mix.

Various forms of anaemia are also common with thyroid problems, as well as some vitamins going off. In particular, I hope you are having your thyroid (TSH, T$ and T3 checked), along with your Vit D, Ferritin, folate and Vitamin B12.

It can take a while to get the thyroid back with the programme again, but the good news is your Doctor is showing soe interest.

When it became clear I probably had thyroid issues, I joined another forum - a bit like this, but for thyroid: https://healthunlocked.com/thyroiduk/posts

There are loads of extremely knowledgeable people over there who have helped me understand things a whole lot better, so please don't feel alone with any of this.

So, to reiterate, Carbon; please cut yourself a bit of slack. There's a fair bit going on in your body at the moment and a score of +/- 2 is very much holding your own.
Click to expand...
Thanks so much I appreciate your feedback & will ask gp tomorrow
 
Carbon said:
The nurses said I may be given tablets to sort it but having gp call me tomorrow sometime. Thanks for your advice
Click to expand...
Hi, treating the iron deficiency with tablets is only half the answer. My doctor points out that finding the underlying cause is the other half. He says some causes are straight-forward but others are potentially quite seroius. Treating the symptoms, blood test results withiut considering the underlying cause may allow a serious condition to continue. He investigates all patients with iron deficiency, and he says the appearsnce of the blood cells can disguise low folate or B 12 conditions as well.
So please, if my GPis anyone to go by, do not let your GP ' patronise' you into just taking the tablets with no other investigation.
Having said that a relative of mine with ( properly investigated iron deficiency) was advised to take her iron tablets on alternate days as the absorption of iron over time was shown in research to be absorbed better.
Best Wishes
 
kitedoc said:
Hi, treating the iron deficiency with tablets is only half the answer. My doctor points out that finding the underlying cause is the other half. He says some causes are straight-forward but others are potentially quite seroius. Treating the symptoms, blood test results withiut considering the underlying cause may allow a serious condition to continue. He investigates all patients with iron deficiency, and he says the appearsnce of the blood cells can disguise low folate or B 12 conditions as well.
So please, if my GPis anyone to go by, do not let your GP ' patronise' you into just taking the tablets with no other investigation.
Having said that a relative of mine with ( properly investigated iron deficiency) was advised to take her iron tablets on alternate days as the absorption of iron over time was shown in research to be absorbed better.
Best Wishes
Click to expand...
Thanks for your input when doctor calls today I will ask about this... yes.
I'm still concerned that I woke up two weeks ago with pains on my right hand lower side.... which is what I went for, so hard to even get to see gp now.... they have system where you have to be called back & assessed before getting an appointment.
Still very tired.... but have a 9 hour shift to get through today too.
Appreciate you advise, thank you.
 
Had under active thyroid many years before the type2.Take a pill,no biggie.Not to worry,as long as you go after the problems,it will work out.Just overwhelming while you get it all fixed.
 
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