Does this qualify as satisfactory?

[Fenn]

@Fenn, if your A1c has gone from 126 to 61 you are doing something right for you which is definitely satisfactory. If the Dr/Dn is content with how you are managing things take it as a good sign. Don't be comparing yourself to other people - did you expect to be able to compete at Tokyo? Libre and Stabbington normally won't give the same reading, even time adjusted. A1c is different again to either. I have never had an A1c close to what Stabbington or Libre may suggest - out both ways. We are all unique - no whatsit Sherlock - how you function best is no guide at all for how I will manage this. Very bitter experience taught me that.

Thankyou

I’ve been up and down and up again, I’m going to revisit stabbington a little more often and ignore libre estimates from now on. Maybe lower my expectations too

 

[bulkbiker]

Thankyou

Please tell me that someone else read this with wide eyes and an open mouth!

What I quoted was written from memory from what the receptionist said over the phone, I’m sure the confusion was mine not hers

It would be so much better for you to request online access to your test results so you can see them for yourself rather than have to rely on an untrained receptionist for your numbers.
Also you'd be able to see the units they are measured in and do some research yourself on whether you found them satisfactory or not!

 

[Fenn]

It would be so much better for you to request online access to your test results so you can see them for yourself rather than have to rely on an untrained receptionist for your numbers.
Also you'd be able to see the units they are measured in and do some research yourself on whether you found them satisfactory or not!

Thankyou

Spent an hour this morning jumping through hoops to sign up for online patient services or whatever they call it, passport photo, tax bill, nhs numbers, codes from the surgery and hey presto, you cant see any results on their, that’s when I called for help, rather than help me, she told me the info so I’m no closer to doing that

 

[bulkbiker]

Thankyou

Spent an hour this morning jumping through hoops to sign up for online patient services or whatever they call it, passport photo, tax bill, nhs numbers, codes from the surgery and hey presto, you cant see any results on their, that’s when I called for help, rather than help me, she told me the info so I’m no closer to doing that

Have you tried looking under "Patient record" ? Which system do they use at your surgery?

 

[lucylocket61]

Thankyou

So could do better? That rings a bell

I think I read too many successful people here, I need to find some people doing badly lol

You are doing very well for a type 2 diabetic on insulin. Most of the 'sucessful' ones are not trying to deal with avoiding hypos and/or other health issues.

 

[Mr_Pot]

Thankyou

Spent an hour this morning jumping through hoops to sign up for online patient services or whatever they call it, passport photo, tax bill, nhs numbers, codes from the surgery and hey presto, you cant see any results on their, that’s when I called for help, rather than help me, she told me the info so I’m no closer to doing that

A doctor has to authorise your access which might take a day or so.

 

[Jaylee]

Thankyou

Spent an hour this morning jumping through hoops to sign up for online patient services or whatever they call it, passport photo, tax bill, nhs numbers, codes from the surgery and hey presto, you cant see any results on their, that’s when I called for help, rather than help me, she told me the info so I’m no closer to doing that

Hi,

I seem to remember just needing my driving licence for ID & the receptionist gave me a printed username & password at my surgery on a set up account.

On the whole it sounds like your A1c numbers are what they like to hear as an insulin user..

 

[lucylocket61]

@Fenn given your story/journey to where you are today, 61 is "satisfactory" for someone with relatively recently diagnosed Type 1 diabetes.
Many diabetes HCP are afraid that lower HbA1Cs in the 40s and 50s are indicative of lots of hypos so a common target for Type 1 is around 55 and 61 is not far off this figure.

I recommend doing yourself a favour and do not compare your results with those of a very well controlled type 2 who is in remission. As you are learning, Type 1 is a different beast.
(Incidentally, your profile seems to still describe you as a T2 on insulin)

As for the Libre estimate, I do not give much credence to the HbA1C estimate that Libre provides. For some it is close, mine was out by about 20%. It uses a vey different algorithm.

Fenn is not a type 1. They are a type 2 diabetic on insulin. It's different.

 

[Fenn]

Have you tried looking under "Patient record" ? Which system do they use at your surgery?

I tried posting a pic but it says file too large, it seems to be called “Patient access” I have been trying to find it, I did find “test result request” but this asks for date of test, I’ve submitted the request without the date, they will probly think I’m insane as I called earlier lol.

 

[Fenn]

You are doing very well for a type 2 diabetic on insulin. Most of the 'sucessful' ones are not trying to deal with avoiding hypos and/or other health issues.

Thankyou

I didn’t actually know they had different criteria for different folks.

 

[Fenn]

A doctor has to authorise your access which might take a day or so.

Thankyou

Ahhh maybe it will pop up then.

 

[Fenn]

Hi,

I seem to remember just needing my driving licence for ID & the receptionist gave me a printed username & password at my surgery on a set up account.

On the whole it sounds like your A1c numbers are what they like to hear as an insulin user..

Thank you

The tax bill was because passport doesn’t have address and they needed that, I expected to need to visit reception but they sent me the login stuff, COVID maybe.

 

[Fenn]

Fenn is not a type 1. They are a type 2 diabetic on insulin. It's different.

I’m sure this was a response to an early thread re. My nurse saying I was T1 due to my pep result, makes sense in context

 

[lucylocket61]

Thankyou

I didn’t actually know they had different criteria for different folks.

Those on insulin and other hypo risk drugs have the added complication of avoiding lows, so they have to be more careful how few carbs they have.

 

[bulkbiker]

Fenn is not a type 1. They are a type 2 diabetic on insulin. It's different.

I think you'll find that with a c-peptide result as low as @Fenn (once we eventually find the units) that they are a LADA or T1. Hence the insulin and why low carbing only "worked" for a while.

 

[Fenn]

Wow! I’m really not meant to know

“Thank you for your request.

Your test results are marked as satisfactory and
the duty doctor suggests that you should discuss
all your blood results with the diabetic specialist
nurse at your appointment in September.

Thank you”

Miraculously they know about the appointment they had no idea about earlier when I asked them for the date and they made me call someone else.

This was an awful lot of trouble to not get my results lol

 

[Dark Horse]

Thankyou

Please tell me that someone else read this with wide eyes and an open mouth!

What I quoted was written from memory from what the receptionist said over the phone, I’m sure the confusion was mine not hers

Sorry! With hindsight I can see that was far too much detail. The important bit was at the end - for most tests, the normal range is given afterwards so it's worth asking the receptionist for that.

 

[Fenn]

Sorry! With hindsight I can see that was far too much detail. The important bit was at the end - for most tests, the normal range is given afterwards so it's worth asking the receptionist for that.

Nooo I’m Sorry I don’t have the brain cells to understand what you said, I appreciate it, Thank you.