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ED & Diabetes

O

Olteanu

Member
Everyone warns about losing your feet or legs, but no one mentions diabetes and ED. I have had type 2 diabetes for about 20 years. ED has been creeping up on me for some years. At Desmond and similar meetings, I was told that it could be cured. I did not realise that eventually it would be permanent. Recently I saw the BBC programme "Men Up" It was an excellent programme and well worth watching if you are in a similar situation. The thought, of living for another 20 years with ED, is depressing. What are your thoughts?
 
Hi there @Olteanu. First of all - I was puzzling over this for a whole few minutes wondering about how big a problem Eating Disorders were for men with Type 2 :D . (Not your fault - the fault of acronyms!) So thank you for the clarifying recommendation of 'Men Up' - a movie about viagra trials in Wales back in the day pre the little blue pill became the popular thing it is today.

I had my second and third years with type two in Sweden, and included with the basic material handed out by the State was a pemphlet on sex with type two, which was my first introduction to Erectile Dysfunction (ED) being a potential thing for men with type two, and vaginal dryness (our equivalent) for women. But no, nothing in Aotearoa/NZ, my home country. But yes, in the USA in the Diabetes Daily Forum at least. So - a cultural thing? I think we can say. Whiich country/culture are you posting from?

I did not get the idea that this could be a permanent thing, because of various treatments? (Including viagra? But I think you are saying that viagra may not work for men with diabetes? At least after a long period of time? ) I hear you re a sexless future being depressing.
 
Having had T1 diabetes for over 40 years and having had really poor control complications sort of come with the territory these days , ED well I’ve had it off and on for a few years tried Viagra and Cialis ( Cialis is better btw) but the heartburn after taking it was unbearable . I’m quite lucky as my partner has dementia so sex is a bit of a non entity really , however I’m a crumbly so it’s not high on my to do list these days, i probably prefer to read a good book these days at least I don’t have to cuddle it after I’ve read it , but seriously , it is a serious problem with long lasting effects! I have heard that there are injections but cant really find out much about them only some old stuff , like most complications it’s all about keeping blood levels in a “ good “ range as I said my ED was off and on I found when my sugars were in a good range coincideed with my “ on”. Additional ED can be a mental vicious circle thinking it’s going to happen before sex etc etc , I found that was helped by an amazingly understanding partner , this was achieved by actually talking about the problem .
 
Ushthetaff said:
Having had T1 diabetes for over 40 years and having had really poor control complications sort of come with the territory these days , ED well I’ve had it off and on for a few years tried Viagra and Cialis ( Cialis is better btw) but the heartburn after taking it was unbearable . I’m quite lucky as my partner has dementia so sex is a bit of a non entity really , however I’m a crumbly so it’s not high on my to do list these days, i probably prefer to read a good book these days at least I don’t have to cuddle it after I’ve read it , but seriously , it is a serious problem with long lasting effects! I have heard that there are injections but cant really find out much about them only some old stuff , like most complications it’s all about keeping blood levels in a “ good “ range as I said my ED was off and on I found when my sugars were in a good range coincideed with my “ on”. Additional ED can be a mental vicious circle thinking it’s going to happen before sex etc etc , I found that was helped by an amazingly understanding partner , this was achieved by actually talking about the problem .
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I too was put off the viagra by the terrible heartburn afterwards which would last a lot longer than the benefits , I think a lot of it is physiological though as I still wake up sometimes with the necessary so I think physically I'm ok , sometimes other things take precedence over sex and you still need the urge , something we can accept I guess as we get older .
 
Nice to know that I am not alone and that it is not my imagination. I am posting from UK. By the time that I had the courage to ask the doctor for some help, I found Tandafil (Cialis) more effective than Sildenfil (Viagra), and had no heartburn with either. I also tried the other two tablets, but with little result. In UK, the normal prescription is 8 20 mg tablets for two months, which I found totally inadequate. At this point, my GP gave up on me and said that there was nothing more that he could do. I was referred to the urology department of the local hospital. There is a cream, which didn't seem to do much. There are injections, but the solution has to be injected at the last moment, which is a bit of a passion killer. The injections were the last thing that the urologist could do for me. So I guess that it is all downhill for me for the next 20 years, if I last that long.
 
AloeSvea said:
Hi there @Olteanu. First of all - I was puzzling over this for a whole few minutes wondering about how big a problem Eating Disorders were for men with Type 2 :D . (Not your fault - the fault of acronyms!) So thank you for the clarifying recommendation of 'Men Up' - a movie about viagra trials in Wales back in the day pre the little blue pill became the popular thing it is today.

I had my second and third years with type two in Sweden, and included with the basic material handed out by the State was a pemphlet on sex with type two, which was my first introduction to Erectile Dysfunction (ED) being a potential thing for men with type two, and vaginal dryness (our equivalent) for women. But no, nothing in Aotearoa/NZ, my home country. But yes, in the USA in the Diabetes Daily Forum at least. So - a cultural thing? I think we can say. Whiich country/culture are you posting from?

I did not get the idea that this could be a permanent thing, because of various treatments? (Including viagra? But I think you are saying that viagra may not work for men with diabetes? At least after a long period of time? ) I hear you re a sexless future being depressing.
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I too thought it was a post about Eating Disorder! I don't have the equipment to suffer from the other thing ;), but am currently really struggling with my eating disorder, which at the moment is all about denial.
 
Olteanu said:
I know I had mine checked when I got alopecia and we’re all normal
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Oh you can definitely be 'normal' in the eyes of your GP if you come back within the normal range; but you might be at the bottom of the normal range, with symptoms, and you will be denied the appropriate treatment. (Testosterone Replacement Therapy)

Happens to men every day. I'd ask what the actual number was; don't just accept their word that you're 'normal'.
 
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