1. This site uses cookies. By continuing to use this site, you are agreeing to our use of cookies. Learn More.
  2. Get the Diabetes Forum App for your phone - available on iOS and Android.
    Dismiss Notice
  3. Guest, we'd love to know what you think about the forum! Take the Diabetes Forum Survey 2018 »
    Dismiss Notice
  4. Arrived here after watching The Truth About Carbs? Join the Low Carb Program for meal plans & 10 weeks of simple steps into your new lifestyle.
    Dismiss Notice
Dismiss Notice
Find support, ask questions and share your experiences. Join the community »

Endless Symptoms. Advice?

Discussion in 'Other Health Conditions and Diabetes' started by happydaze, Mar 13, 2018.

  1. happydaze

    happydaze Type 1 · Member

    Messages:
    11
    Likes Received:
    5
    Trophy Points:
    43
    So I've just spent the night at A and E, after experiencing a slow onset of recurring symptoms for the last month or two. These include -

    Severe Joint Pain
    Testicular Pain
    Dry Eyes w/ Vision Problems (possibly retinopathy related)
    Blood Glucose mostly in the mid to high 20s
    Chest Pain/Tightness
    Dizziness
    Swollen Throat
    Hand Tremors
    Poor Cognition
    Neuropathy
    Depression

    These mostly started to occur after a bout of food poisoning, which I believed triggered them. I somehow believed that these symptoms were just my body still fighting off the infection, and that I'd improve. I've not had the best control of my blood sugars in the past, but have seen improvements in the last few years. Have followed a healthy lifestyle (diet/exercise/mindfulness) for a long time.

    After explaining all of this to a Doctor and countless medical professionals, I was not taken seriously and sent home with a double dose of antibiotics without any extra testing or answers as to what's going on. I understand that the NHS is under extreme crisis at the moment, so try to keep a polite and positive open mind when it comes to dealing with them, even though the whole experience was appalling. I constantly get brushed off by medical professionals because I am young (23). I am extremely depressed.

    I've managed to book an emergency appointment with my GP later today as an effort to get my health back under control. My only other option I believe after this is to sell all of my possessions so I can afford to go private...

    Anyone out there who has any advice for me I'd really appreciate it.

    Thank you
     
    • Hug Hug x 3
  2. Brunneria

    Brunneria Other · Moderator
    Staff Member

    Messages:
    15,373
    Likes Received:
    29,312
    Trophy Points:
    298
    Hi,

    When I read your list of syptoms, the thing that popped into my head was Vit B12 deficiency.

    https://www.webmd.com/diet/vitamin-b12-deficiency-symptoms-causes#1

    https://www.nhs.uk/conditions/vitamin-b12-or-folate-deficiency-anaemia/symptoms/

    http://www.health.com/health/gallery/0,,20924065,00.html#the-energy-vitamin-1

    There are also some documentaries on the subject on youtube, if you do a search

    You can get a test for B12 on the NHS (if you can persuade a doc to take you seriously), or you can buy supplements. If you go for self supplementation, then I believe (please do your own research) that the ones that dissolve under the tongue are the most easily absorbed.

    Please bear in mind that I am not qualified to give any medical advice, and that you need to do your own reading on this. :)
     
    • Like Like x 1
    • Informative Informative x 1
    • Useful Useful x 1
  3. happydaze

    happydaze Type 1 · Member

    Messages:
    11
    Likes Received:
    5
    Trophy Points:
    43
    Hi there,

    Thanks for your response. Whilst I do eat meat I also take a high quality multivitamin that includes B12 so if this is part of the problem it would be due to absorption rather than intake. Fortunately I've ordered a full blood test as well as a test for rheumatoid arthritis since this runs in the family (father diagnosed in his 20s)

    After some more testing it turns out I had a lot of underlying infections I was unaware of (stomach, bladder, chest) so this explains the high blood sugars which was making everything else a lot more difficult. Symptoms are slowly starting to slow down as I'm taking some strong antibiotics.

    Being more proactive has helped my mindset a little, and have my eye test coming up soon to get a better idea of the vision issues.

    .
     
    • Like Like x 1
    • Useful Useful x 1
  4. catapillar

    catapillar Type 1 · Well-Known Member

    Messages:
    3,407
    Likes Received:
    2,901
    Trophy Points:
    198
    @happydaze why are your blood sugars in the 20s? Do you give correction doses when you see blood sugars up there? Do you have ketone testing kit?

    Your high blood sugars won't be doing anything to help your depression, retinopathy or neuropathy. Your high blood sugars are probably causing the chest tightness and poor cognition.

    Are you aware of the sick day rules for correcting when I'll or with an infection? Obviously illness can make blood sugars harder to control but there's a reason there are guides on how to correct during illness. You are really risking DKA by not following them.
     
    • Friendly Friendly x 1
  5. happydaze

    happydaze Type 1 · Member

    Messages:
    11
    Likes Received:
    5
    Trophy Points:
    43
    I'm not worried at all about DKA since this has only ever happened to me when I have absolutely no insulin in my body, even just basal manages to keep me clear of ketones despite high blood sugars.

    I was aware of them yes, but found the numbers to keep changing in terms of how much a unit would reduce blood sugar by. Was very confusing as my insulin sensitivity changes quite frequently. On this occasion, extra boluses didn't work when I tried to give correction dosages, still ran high despite extra basal as well. Most likely the infection/stress/dehydration making me insulin resistant, since the more insulin I take the less effective it seems to be.

    Blood glucose is now under better control, and am preparing to start logging everything again to get the full picture of my readings/dosages. This has helped tremendously in the past even though it's quite tedious...
     
    • Like Like x 2
  6. Grumpy ole thing

    Grumpy ole thing Type 1 · Well-Known Member

    Messages:
    201
    Likes Received:
    149
    Trophy Points:
    103
    Hi @happydaze, is there someone who can support you with this? Are you ok with counting carbs, have you been on a dafne course? I find that through the day my ratio's change, also if my numbers are high the ratios don't work the same. Sounds like you're heading in the right direction; good for you. I'm testing a theory about the number of steps I do in a day and my numbers, as an office worker I don't get to move much some days. Good luck x
     
    • Like Like x 2
  7. happydaze

    happydaze Type 1 · Member

    Messages:
    11
    Likes Received:
    5
    Trophy Points:
    43
    Not much support around me at the moment hence I'm being a bit more active on here which is definitely helping. This site is great! So much info and brilliant people here.

    Yes I've been on a course I think they called it BERTIE back when I did it - pretty sure it's similar. Counting carbs doesn't seem to be that effective for me, I tend to have to factor in lots of other things rather than just carbs (fiber, fats, exercise, bg trends and insulin timing)

    Thanks for positive feedback :) Hope your experiment goes well for you, can't go wrong with some steps/movement to get the circulation going!
     
    • Agree Agree x 1
  • Meet the Community

    Find support, connect with others, ask questions and share your experiences with people with diabetes, their carers and family.

    Did you know: 7 out of 10 people improve their understanding of diabetes within 6 months of being a Diabetes Forum member. Get the Diabetes Forum App and stay connected on iOS and Android

    Grab the app!
  • Tweet with us

  • Like us on Facebook