Epilepsy and type 1 diabetes

Messages
3
Type of diabetes
Type 1
Treatment type
Insulin
Hi I'm new to this forum I've always struggled with my diabetes I was first diagnosed when I was 11 I'm now 26 and I can't remember a time that my diabetes has ever been stable and honestly that's probably due to the fact it's just to much effort to maintain and I don't have the willpower my condition has been made worse when I was diagnosed with epilepsy 9 years ago I feel now they work in conjunction with each other to make my life hell! If my blood goes low it causes me to have a seizure and equally if I go to high again I get seizures and for a unstable diabetic like myself it's very hard to reach a balance. Anybody in the same position? Or have any words of wisdom? I would much appreciate it thanks
 

Jaylee

Oracle
Retired Moderator
Messages
18,232
Type of diabetes
Type 1
Treatment type
Insulin
Hi @Laura Ann Brunskill ,

Welcome to the forum!
I don't have epilepsy. But no doubt others will be along that are, or able to tag in guys they know are..?
But I do empathise with the "spinning out" as a diabetic in my youth...

Going to tag in @daisy1 with a welcome pack.

I don't normally do this. But if you are having trouble finding others with your double condition?
Then feel free to ask elsewhere on the forum. Maybe "T1" or "ask a question.?"
I or any other member of the moderator team would be happy to help!

All the best!

J>
 
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daisy1

Legend
Messages
26,457
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Cruelty towards animals.
@Laura Ann Brunskill

Hello Laura and welcome to the Forum :) Here is the Basic Information we give to new members and I hope you will find it useful. Ask as many questions as you want and someone will be able to help.


BASIC INFORMATION FOR NEW MEMBERS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 235,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:
  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a free 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.

Take part in Diabetes.co.uk digital education programs and improve your understanding. They're all free.
  • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why
  • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.
 
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Messages
3
Type of diabetes
Type 1
Treatment type
Insulin
Hi @Laura Ann Brunskill :)

We have a few members with Type 1 and epilepsy. I believe @zoze_j is one, and @Stephen89

It must be hard managing both conditions. Do your teams liaise?
Thank you for replying in regards to your question I'm pretty sure they don't liase with each other although they are both aware of my struggles they just look after there own perspective interests so my neurologist will increase my meds or indeed change them and the diabetic clinic will just basically tell me not to let my blood get to that state in the first place.
 
Messages
3
Type of diabetes
Type 1
Treatment type
Insulin
Hi @Laura Ann Brunskill ,

Welcome to the forum!
I don't have epilepsy. But no doubt others will be along that are, or able to tag in guys they know are..?
But I do empathise with the "spinning out" as a diabetic in my youth...

Going to tag in @daisy1 with a welcome pack.

I don't normally do this. But if you are having trouble finding others with your double condition?
Then feel free to ask elsewhere on the forum. Maybe "T1" or "ask a question.?"
I or any other member of the moderator team would be happy to help!

All the best!

J>
Thank you very much for that very helpful I appreciate it
 

azure

Expert
Messages
9,780
Type of diabetes
Type 1
Treatment type
Pump
Thank you for replying in regards to your question I'm pretty sure they don't liase with each other although they are both aware of my struggles they just look after there own perspective interests so my neurologist will increase my meds or indeed change them and the diabetic clinic will just basically tell me not to let my blood get to that state in the first place.

If your diabetes is contributing to your seizures, then perhaps that might make your diabetes team focus on helping you eg have you asked if you could get a CGM?

While we're waiting for others with both conditions to reply, you could explain a little about your problems with control. We can't give medical advice, but there are lots of experienced Type 1s here who might be able to offer you suggestions.

What insulins are you on? Do you count carbs?
 

conniecar

Well-Known Member
Messages
284
Type of diabetes
Type 1
Treatment type
Insulin
Hi. I was misdiagnosed with nocturnal hypos in 1977 around the time I became type1. 36 years later my husband said, after I'd had another big seizure during the night, 'I think you're epileptic too.' Turns out I've also got both too. Are you on medication? I'm on Sodium Valproate 6 x 300mg a day, and I've not had one for 4 years. But..... I did gain weight and struggled with everything. I've done my best but diabetes is hard, and people look suspicious when you say you've got both don't they! Do your best and get support from wherever you can. I wanted both consultants in the same room but it never happened . Hope you're settling down and life's getting a bit easier x