D
Deleted member 83869
Guest
Hello, haven’t posted on here in a long time, but I just need a little vent/rant.
I was supposed to have my consultant appointment in pump clinic on the 7th, a letter was sent again at the start of this week stating that my appointment had been changed to a telephone appointment, this would be fine but I dropped my phone last week and the speaker on it has broke, so I wouldn’t be able to hear what was being said to me. On the letter was a list of DSN mobile numbers, so I text mine asking if it was possible to change my appointment to email, she just told me to ring the diabetes centre (which again I informed her I couldn’t do, and obviously with the lockdown, I can’t go and get it repaired etc, as money is tight as it is) and she also told me that all DSN would be unavailable after Tuesday (just gone) as they would all be working on the wards, which is fair enough. So I dug out a letter from my last consultant appointment and emailed his secretary, to receive the reply “no diabetes reviews are happening until further notice, unless you are having hypos” I have been having the odd hypo but my issue is hypers! I have been on a pump holiday for 6 months due to the omnipod giving me chronic hives. The 6 months are now up and was meant to be going back onto a pump. I hate pens, I can’t get any decent control no matter what I do, I’m on 42 units of levemir twice a day and if I increase it anymore I hypo, however I didn’t have this problem on the pump. I am so miserable,I have horrible bruises from injecting and I’m pretty sure my hba1c has gone up!
I know there’s not much that can be done during this covid19 but why are people with vulnerable health conditions being pushed aside? Why are only hypos important and not hypers? I’m already on 3 monthly digital surveillance for retinopathy, so really want to get under control and I just can’t do this whilst on pens, which is why I was put on the pump In 2013. When I read the email I just cried because I’m so fed up.
Sorry for the rant, just needed to let off some steam
I was supposed to have my consultant appointment in pump clinic on the 7th, a letter was sent again at the start of this week stating that my appointment had been changed to a telephone appointment, this would be fine but I dropped my phone last week and the speaker on it has broke, so I wouldn’t be able to hear what was being said to me. On the letter was a list of DSN mobile numbers, so I text mine asking if it was possible to change my appointment to email, she just told me to ring the diabetes centre (which again I informed her I couldn’t do, and obviously with the lockdown, I can’t go and get it repaired etc, as money is tight as it is) and she also told me that all DSN would be unavailable after Tuesday (just gone) as they would all be working on the wards, which is fair enough. So I dug out a letter from my last consultant appointment and emailed his secretary, to receive the reply “no diabetes reviews are happening until further notice, unless you are having hypos” I have been having the odd hypo but my issue is hypers! I have been on a pump holiday for 6 months due to the omnipod giving me chronic hives. The 6 months are now up and was meant to be going back onto a pump. I hate pens, I can’t get any decent control no matter what I do, I’m on 42 units of levemir twice a day and if I increase it anymore I hypo, however I didn’t have this problem on the pump. I am so miserable,I have horrible bruises from injecting and I’m pretty sure my hba1c has gone up!
I know there’s not much that can be done during this covid19 but why are people with vulnerable health conditions being pushed aside? Why are only hypos important and not hypers? I’m already on 3 monthly digital surveillance for retinopathy, so really want to get under control and I just can’t do this whilst on pens, which is why I was put on the pump In 2013. When I read the email I just cried because I’m so fed up.
Sorry for the rant, just needed to let off some steam