• Guest - w'd love to know what you think about the forum! Take the 2025 Survey »

Feeling so down

Matteo1980 said:
Must be,yeah,but they seem to be unapproachable,since whatever my GP recommend,that simply doesn’t work at all. That is why i am hopeless.
Click to expand...
Yes, I cried all the way through my appointment because I felt such despair, I think and I still had to ask 3 times for a change in medication. I was previously taking co-codamol but that didn’t help at all..
 
Hello Matteo1980,
I'm sorry to hear, you have such hard time with pain. If all other suggestions here does not help, then I would like to offer a straw of hope still...could it be, you have got gout? Gout could be so painful, that one can't even lay down with a light sheet on. You can have a blood-test to determine if it is gout.

" Gout: This is a form of arthritis where crystals from uric acid form in your joints and cause intense pain. You often feel it in your big toe, but can get it in your ankles, feet, hands, knees, and wrists, as well."

This was found on:
https://www.webmd.com/arthritis/uric-acid-blood-test#1

and I thought it looked a bit like your own description...
The reason why I suggest gout is, that it belongs to one of those nice "add ons" you have bigger chance of getting, when you have gotten T1...:depressed:
 
Elaine p said:
Yes, I cried all the way through my appointment because I felt such despair, I think and I still had to ask 3 times for a change in medication. I was previously taking co-codamol but that didn’t help at all..
Click to expand...

For me,I think Naproxin and Amitriptyline together what was working. On 26th next GP appointment,just can’t wait to ask for them again!
 
mike@work said:
Hello Matteo1980,
I'm sorry to hear, you have such hard time with pain. If all other suggestions here does not help, then I would like to offer a straw of hope still...could it be, you have got gout? Gout could be so painful, that one can't even lay down with a light sheet on. You can have a blood-test to determine if it is gout.

" Gout: This is a form of arthritis where crystals from uric acid form in your joints and cause intense pain. You often feel it in your big toe, but can get it in your ankles, feet, hands, knees, and wrists, as well."

This was found on:
https://www.webmd.com/arthritis/uric-acid-blood-test#1

and I thought it looked a bit like your own description...
The reason why I suggest gout is, that it belongs to one of those nice "add ons" you have bigger chance of getting, when you have gotten T1...:depressed:
Click to expand...

Thanks for your reply! Actually,my movement is not limited at all,it rather an ache in my knees. What i found interesting on internet it can be caused by muscle loss in thighs,buttock. The weaker muscles putting bigger pressure on lower joints,causing pain. Maybe that is my problem. I have had blood test for neuropathy,i have to ask about the result my GP...
 
Matteo1980 said:
Thanks for your reply! Actually,my movement is not limited at all,it rather an ache in my knees. What i found interesting on internet it can be caused by muscle loss in thighs,buttock. The weaker muscles putting bigger pressure on lower joints,causing pain. Maybe that is my problem. I have had blood test for neuropathy,i have to ask about the result my GP...
Click to expand...

Nice to hear you are still able to move, without too many problems.
I'll keep my fingers crossed, that you will find a fast and good solution to your problem - I dare claim, we are all with you in our thoughts...
 
mike@work said:
Nice to hear you are still able to move, without too many problems.
I'll keep my fingers crossed, that you will find a fast and good solution to your problem - I dare claim, we are all with you in our thoughts...
Click to expand...

Thanks a lot for kind words,my best wishes to you too!!
 
Elaine p said:
You could try one of the NHS walk-in clinics if the pain is really bothersome, they might listen to you if the dr isn’t?
Click to expand...

My next appointment is on this friday,i promised to myself not to leave till they sent me to a specialist!! This is around the 13rd time i am going to GP with this issue....a bit tiring and enough.
 
That sounds like a positive attitude- good luck to you, hope you get some resolution x
 
Matteo1980 said:
I’ve been diagnosed with T1,this june. However,i experienced its sympoms 1,5/2 years back,so there was time for the cmplications to develop in the background. Since i am out from the hospital(been in for 1 week after diagnosis), i started experiencing burning sensation and numbness in my foot. There is an unbearable pain in my knees,which is always getting worse as soon as i go to bed. Unbelievable,but more pain is coming when i am resting them. Unfortunately, I cannot sleep normally because of this pain. Maximum 1 hour sleep and then 2-3 hours literally crying :( I was at doctors by several times and tried many painkillers,but nothing helps. I take every evening 2 Nytol pills to get some sleep. The real problem is,this affects my mood also and I care much less with BG level and proper insulin doses. Sometimes i do not care at all. Not to mention working,how harder is that!? I am a grill chef,so standing almost all day on my painful legs. However,knees hurt less while walking or standing. I have a serious fatigue,i feel tired all the time, i want to sleep every minute. Just am unable to work properly,it is a nightmare now. I have to ask for extra break time all the time,and running in the staffroom to get some sleep on the sofa. Such a miracle,at work on the sofa,the pain is less bothering. So this is my life at the moment,and do not really see any light at the end of the tunnel. Anyway,I wish you all the best!
Click to expand...
 
Matteo1980 said:
My next appointment is on this friday,i promised to myself not to leave till they sent me to a specialist!! This is around the 13rd time i am going to GP with this issue....a bit tiring and enough.
Click to expand...
Hi Matteo, just checking in to see how you are feeling? How did the doctor’s appointment go? x
 

Hello Brian and welcome to the forum, I notice you are newly diagnosed, it would help if you create a new thread as it would get more visibility from members and help you with some support, let me know if you need help with it ?
 
Juicyj said:
Hello Brian and welcome to the forum, I notice you are newly diagnosed, it would help if you create a new thread as it would get more visibility from members and help you with some support, let me know if you need help with it ?
Click to expand...
Thanks Juicy those links are so helpful, I really appreciate you proving them for me.
 
Matteo1980 said:
I was taking from june till end of september. Then i started neglecting BG,since the unstoppable pain. I have unsatisfiable hunger for sweets,so this really ruins the levels. A weekly average 11,5,was 7,5 before. But honestly never noticed any effect on long term insulin. Used to have lantus before,doctor said levemir is going to be better. Have to take 11units morning and evening. But no better result,at all!
Click to expand...
Please do not neglect your BG and diet. Higher BG likely is worsening the pain. Substituting something else when you have the craving for sweet may work, such as nuts and your favourite cheese and eat this until you are so stuffed there's no room for sweets.
 
Matteo1980 said:
However Elaine,I wish you to ged rid of pains in a very short time!
Click to expand...
A friend of mine introduced me to some herbs called DAMIANA which I inhale through a dry herb vaporizer apparently they are quite new, I have never heard of them until now but inhaling the vapor of the herbs have really eased my pain..
 
Back
Top