CATMAN1970
Newbie
- Messages
- 4
- Type of diabetes
- Type 2
Thanks Guzzler. Sorry for my late reply, still coming to grips with this site.There are members who suffer with Fibro, there are also members who have CFS. I am sure they will get in touch when they see your post.
In the meantime I will tag @daisy1 who will swing by and give you some really good information and useful links. Welcome to the forum.
I was diagnosed with fibromyalgia in 2002 and diabetes about 4 years ago. I take amitriptyline to help with sleep and dihydrocodeine for pain although I can only take it at night as it causes drowsiness. I also take codeine and naproxen. I also take meds for an underactive thyroid. I also have osteoarthritisHi. I've recently been diagnosed with type 2 diabetes and was diagnosed with Fibromyalgia in October 2015 with Fibromyalgia. Has anybody else got this dual diagnosis?
My main issues are chronic fatigue and pain. I was originally diagnosed with Chronic Fatigue Syndrome back in 2009. I can no longer work due to my health. Can anybody relate?
Many thanks
Phil
Hi. I have fibromyalgia too and fatigue pains and insomnia is my biggest struggles. The prediabetes is new to meHi. I've recently been diagnosed with type 2 diabetes and was diagnosed with Fibromyalgia in October 2015 with Fibromyalgia. Has anybody else got this dual diagnosis?
My main issues are chronic fatigue and pain. I was originally diagnosed with Chronic Fatigue Syndrome back in 2009. I can no longer work due to my health. Can anybody relate?
Many thanks
Phil
Out of interest, do you take paracetamol with your codeine?I am now. I've adjusted my diet considerably now. I'm on Gabapentin and Codiene for the Fibro.. The pain and fatigue have become a torment. My sleep is real bad too as I often thrash about, esp'ly when the pain is real high.
What an inspirational lady. We're so lucky to be able to walk,bake and look after our families and grandchildren. I can only hope that I could be so stoical if I was in her situationDiagnosed with fibro back in 2009.. T1 for decades before that. Low carb practically all my adult life .. 30+ years..
Have had bouts of chronic fatigue, depression but due to chronic intolerance to medications .. I dont have any of the usual drugs... although I have tried them...
For me, a gym refereal with a one to one coach was superb. My dogs have always been my reason for getting up each day. Have progressed so mych since getting my large puppy last year that I have now been asked to train as a dog training instructor...
also joining activity groups was brilliant. Yes, huge effort but so rewarding...and also had double mastecomy and other sugnificant stomach/colon probs.
Finally, last year I met a very, very disabled lady. She couldnt eat for 3 years-survived on Ensure. Has a really rare form of dystonia, surgeons bungled ops and completely unable to feed or wash or do anything for herself.. cannot grasp a glass of water...
No bowel, colon or bladder.
But this lady never stops laughing and giving joy and inspiration. She has 6 sets of carers each day and a nurse at 2-3am each morning... yet she never moans about anything..
She beyond anybody or anything has inspired me...
She cannot weight bear at all, cannot get up or go to bed without ceiling hoist and carers... yet she has found ways to take superb photos..
From her friends there are people that will do anything for her to help her and care for her... and theres some that want every gadget she has for themselves... ie her wheelchair, her van....
Fibro is an illness of mind and muscle and both have to be addressed. Quality of life can be improved....
I've shown a picture of van insides... people think she lucky to have van... but I would rather them appreciate the rest of her life and what a beautiful lady she is inside and out.
Never give up getting up and battling on. This lady was aldo left bed bound for 2 years as carers wouldnt get her up. It didnt destroy her... she fought... and so should all of us...
Just never give up...
Last photo is her fantastic photography. Her hands are permanently clamped in a fist, so imagine what it takes for her to do this...
What
What an inspirational lady. We're so lucky to be able to walk,bake and look after our families and grandchildren. I can only hope that I could be so stoical if I was in her situation
The human mind is extremely powerful. She is indeed a fantastic inspiration @donnellysdogs .
So many now want the right to die in similar circumstances. I think pain levels can change a persons thinking, especially if that pain threshold isnt working properly.
We are all different but also our tolerance levels too.
Your friend is lucky to not have to bear unbearable pain which her mind cannot process or cope with.
I don't now if I could be so happy? I hope I never have to find out.
A one in a million, for sure.
Poor woman.
God bless her.Dystonia gives the worst painful spasms that could be tolerated. When her first toe started to go in inverted she thought it was chronic cramp. Then every toe, her ankles, her fingers, bladder, colon. Only by the grace of god is she still here having been in ICU for 5 weeks etc and constant failed operations-one by a rogue surgeon.
Anybody suffering TMJ for a little while -ask them to think of having that all your life.... another surgeon getting you in to do an op and going on tge table... then coming round and the op not done...the anaethetist stopped it. She hadnt been told that there was a 75% failure rate... and her face could be totally paralysed.
This lady has syringe drivers of pain meds constantly. She still doesnt moan.
Getting oesophagul spasms continually and initially not being able to get a spray that she could push or use...
Pain.... she has more pain than anyone of us could ever imagine.
She cant swallow tablets like codeine etc or paracetomals.
She uses joy and laughter as her pain management biggest tool..and her canine partners dog...she has no support from family at all. No parents, just carers and friends.
She lives with more pain than anybody could imagine...
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