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finger joint fusion: how test BGs, how inject ?

LMAZ

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I have to have the joints in my fingers (and thumbs) taken out due to severe erosive arthritis (per my rheumie, is eating away bone faster than any she's seen; she does not know what type this is)
I test almost twenty times day/night (with alarms set during night) , due to hypo unawareness and other medical conditions which make BGs unpredictable.
With no joints in my fingers, does anyone know HOW I am supposed to test (picking up tiny test strips, inserting into meter), milk fingers for blood? And how do I inject?
I have asked for help from my drs' offices (rheumie's office, surgeon's offices that have therapists, and diabetes educators) and they cannot tell me how I am supposed to do these things without joints (there is no one in household who could do it for me)
Has anyone had their joints fused? (I think the proper term is arthrodesis). How do you do these things? And can you clue me in on how to do other activities that will be impacted? (like dressing, cooking, etc)
I cannot schedule the surgery until I find a way to do the testing and injecting, since that is essential for me to exist. However, the longer I wait for surgery, the more bone is destroyed, and the surgeon has less bone to work with, and thus a less favorable outcome. Thanks, Les PS: Apparently joint replacement is not an option with finger joints because they so often fail.
 
Sorry, no personal experience, but I strongly advise you to get referral to an occupational therapist, either through orthopaedic surgery team or local authority who can assess your ability to carry out various tasks and help you find techniques and / or aids to help. That's UK advice, although your use of "dr's offices" and "diabetes educators" makes me think you're not in UK?
 
Hi LMAZ
You do find other ways to do things ,My right side is 90% useless ,So some experience at needing to Adapt,
You will find you start to use your Mouth and teeth to hold things ,also to jamb things against your body in other places and use extra pieces of equipment ,
ask to see occupational health for equipment and help

Try to experiment Now before your operation with ways you may overcome the loss of use of your fingers I often use my gums/teeth to help draw down the blood from my fingers
Try using Velcro on your hands and things you wish to handle pick up
silly little things like jambing something under your watch strap can help
Kitchen drawers are also good at holding things
Model makers vice can be very useful to hold small things then open things with your mouth/teeth


I can use the Accu check compact plus with one hand with the multi Clix finger pricker
Maybe this newer model one would help you better ?
New Accu Chek Mobile System has
No single tests strips to handle ,test cassette with 50 tests and a finger pricker with a 6 lancet drum
http://www.accu-chek.co,.uk/gb/products/metersystems/index.html

I don't inject so i can not help you with that sorry

Good luck with your operation

Bob

When ever i think i cant do something i watch this

Description is just in case you don't wish to watch
Video shows a man with no arms shooting and loading his gun with his feet :shock:
http://www.youtube.com/watch?v=tlMz2sCDCA4
 
That is absolutely amazing. Do you happen to know if he was born without arms or if he had to learn to use his feet later in life?
 
Thank you all for your replies!
Copepod, you are right , I am not in the UK, I am in the US. I have been to several occup'l therapists, and also hand therapists (you would think that they could think creatively? Think outside the box? And certainly that they have had diabetics, who test and inject , as their patients, right ? Apparently not - or perhaps all these patients had people to do it for them? Which, when my joints are permanently fused, I will not be able to do, as I understand the surgeons to tell me)
Bob, I can't use my teeth, they also are a mess (they do not meet to bite and chew, the jaws are out of alignment (I have two complete rounds of braces, teeth out, palate expanded, etc, as TMJ treatment- still not fixed, after twenty yrs of treatment ( I am approaching 60) = so my teeth can't meet to grip something (and the jaw joints hurt like heck with any pressure ; I am a favorite customer of Gerber baby food)
I asked the therapist to teach me how to use my feet or toes, if that would help me cope without my fingers and use of hands; they looked at me like I was nuts (maybe that is because my neck is in a brace all the time, back also is a wreck, due to bones being misaligned and not staying in place- perhaps due to this yet-to-be-diagnosed type of arthritis or rheumatic disorder?) However, I WOULD learn to do it, if they would teach me, or just HELP me think outside the box for solutions to things that I have to do, esp to remain living independently.
I have used velcro on my fingertips to pick things up, but unfortunately, the other hand/fingers have to be used to take whatever object you picked up, OFF of the velcro, right? (both my right and left hands and fingers are affected)
I have used pliers to add in gripping things (altho my grip strength is not good, and my fingers have trouble bending to hold the pliers - or to open kitchen drawers, etc (but perhaps I could 'install' someting with a loop thru the drawer handle, to pull it open? However,for dextrous tasks like testing, I don't think this would work?)
My insurance does not cover any of the strips made in a cassette with a wheel. I have the OneTouch Ultra, where the individual little test strips come lumped together in something like a film cannister.
Thank you for the tip on the model makers vice; I have been planning to go to a craft store, to see if there were small tools like this (perhaps this would be found in a craft store?)
I think part of my problem is that I have tested and injected for so many years, that I myself cannot think creatively as to how to do it otherwise (esp during the night when one is half asleep, or when one has low blood sugar and a bit fuzzy headed)
Thank you for your good wishes on my operation, it will be the first in a series of operations. (I have never had surgery before, except wisdom teeth - unbelieveable,right?) I am also allergic to many surgical materials and implants, amd some types of stitches, so this will be 'interesting', Les
 
Hi Les

I googled 'Arthrodesis support groups' and came up with a few sites that might help - a very few, I'm afraid! but you might find some help there.

Also worth trying to find out through Google, who is researching it world-wide, at which medical centres. Maybe look at Wikipedia, and try to trace the professors who wrote the papers quoted.

Maybe also try paraplegic or motor-neurone support groups, see if they have any tips for independent living - they tend to be a feisty bunch of people. Or try military re-hab associations.

I only wish I could help more. There's nothing worse than having to be dependent on well-meaning strangers. It makes me want to bite! (ungrateful or what??) And with Type 1, when it's not predictable . . .!

Let us know how you go on.

Viv 8)
 
Hi Les
Only other thing i can think is try a sports Gun/fishing store with
the kind of tools that hold and Tie Fishing flys ect also try
Radio Shack small tools that hold work 3rd hand for soldering work

If i think or find something else will post


Good luck

Bob
 
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