Gastoparesis

ickihun

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Hi I’m in Ireland so I’m being treated in Tallaght Hospital which is a teaching hospital. I have a endocrinologist who I’m under for my diabetes and haven’t met a gastroenterologist yet about my Gastoparesis.

My treatment for diabetes is Levemir insulin 22 units per day
&
Novorapid insulin 7 units with every meal

Pantoflux, domerid and maxolon for the Gastoparesis

I’m in constant pain and they’ve given me tramadol but I’ve read that they slow down your digestive system so not the best to take.
I find with tramadol is if I don't walk when on them, it slows down my digestion.
Keeping my walking up whilst on tramadol I don't get constipation. However codeine is far worse and walking doesn't make any difference, I get very bad constipation on anything with codeine in.
I find tramadol very very good for my bulging disc pain. No good for period pain thou.
 

donnellysdogs

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Painkillers can slow down stomach and colon... and walking around definitely helps.

The trouble is with gastroparesis is that you never know whether your bowel motions are going to be one extreme or the other.. there is rarely good middle ground...

Agree with fish choices...

Any choice of veg? Can you mush veg well?

Avoid peas and beans of any kind. Mushy veg like swede, potatoes, mashed carrot is kinder....

Avoid anything leafy like cabbage, lettuce, kale, spinach etc.

Onions/tomatoes are a no-no..

Any fruit with skins unless peeled are no, no's. Tinned peaches in juice ok, custard, yogurt ok.

No citrus.

Hope you get on with stomach emptying test... I'm sure it will prove that you have it but sometimes even that throws up no's... but still have disease!!

Will be thinking of you.

Keep with foods you can find easier...

Are they controlling your bloods ok?

Will they consider you for a pump?
 
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ickihun

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I'm going to stop diet lemonade. See if any improvement in my huge swollen tummy. Had it before starting tramadol but codeine could have kicked it off.
 

donnellysdogs

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I can currently eat food and swell within an hour to a pregnant painful horrible state...
any food... and nausea returned... all this after being so well for almost 7 months.

Even my plastic surgeon commented today... so slim and 40 mins before my appt I had 4 mouthfuls of food.... and hell!!

I hope that something as simple as diet lemonade can be a simple solution for you @ickihun..
 

ickihun

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I can currently eat food and swell within an hour to a pregnant painful horrible state...
any food... and nausea returned... all this after being so well for almost 7 months.

Even my plastic surgeon commented today... so slim and 40 mins before my appt I had 4 mouthfuls of food.... and hell!!

I hope that something as simple as diet lemonade can be a simple solution for you @ickihun..
Do you think it's sinister? I'm begining to worry but due to see if I progress to tier4 on bariatric programme which does endoscope soon. If I don't get to progress I will ask gp to investigate as sometimes stretches skin so much and painful. Very sensitive area. 4yr old elbows me in there when climbing on me but hoping not dangerous when so swollen as he isn't very affectionate due to possible autism.
Should I be taking swollen water balloon like tummy more seriously?
 

donnellysdogs

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I have absolutely no idea on bariatric.

Endoscopes and investigations will give some answers...

I take it you are on a specialised programme pre bariatric from a specialist team?

GP is really rare and mainly linked to vagus nerve damage or T1.

It is a lot more than a swollen tummy...
 

ickihun

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I have absolutely no idea on bariatric.

Endoscopes and investigations will give some answers...

I take it you are on a specialised programme pre bariatric from a specialist team?

GP is really rare and mainly linked to vagus nerve damage or T1.

It is a lot more than a swollen tummy...
Your post is very very reassuring. Thank you. I really have no idea about GP.
 

donnellysdogs

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Your post is very very reassuring. Thank you. I really have no idea about GP.

They could not determine from normal stomach and bottom up cameras whether someone has GP, it has to come from a specific meal test that is timed... the meal test has "extras" in it which are visible when rayed/mri'd...

The other test for slow colonic transit is a few capsules taken which contain different markers in them and then the patient is xrayd on 3rd (and 5th day if necessary). Mine still had 57/60 markers in on my first one 5 years ago... and a slow colon gives chronic constipation. Seriously bad where without morphine drip you find it difficult to pass a 6lb poo out your bottom!! (That was one of mine that was weighed!!)....

Bloating can be down to specific foods or drinks.. It may well be that a fizzy drink could cause bloating... I dont drink them so couldnt say whether the do affect me.

GP is very different for everyone. It is a debilitating disease as it can be so difficukt to stop nausea/vomiting even on a few sips of water. Bloating can occur so quickly after just small butes of food.

I saw Plastic Surgeon yesterday and ate 4 mouthfuls of food before seeing her. I would guess about a 40 minute wait. By the time she saw me I was in chronic pain and bloating was horrendous. Even plastic surgeon commented... as normally I am so lean...

Then bowel movements can be so rare as not eating enough or can be left in colon and not travelling well.. there is very little that will travel well.
Yogurt lollies or ice lollies can be heaven sometimes!!
Then some have to have feeding through nose or through a tube which bypasses the stomach.
Most have chronic pain frequently from stomach/small and large intestines.

It plays havoc with diabetes as it is so difficult to know when or if anything is going to go through your stomach.
Therefore a pump helps enormously as you can turn off/on reduce or increase temoirary basal rate. You havent already got a basal or bolus shot in you to the degree of having injections.

It is difficult as very, very few people realise how little ir anything you can eat. Many doctors try to say that you are also mentally ill... there are some awful cases of nurses even standing in toilets and checking what happens to watch whether you pass a motion....

Some however can keep on minimal foods and cope whilst others unfortunately are very seriously affected... it is a very rare disease and many gastroenterologists have no idea how to help manage it. It has to have care from a tertiary hospital..