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Glucose levels in 20's.

Gilzil27

Newbie
I have just joined and am not sure if I am writing in the correct place......

My 78 year old relative was diagnosed 7 years ago with Diabetes Type 2 which has been controlled by tablets. About every 12-18 months or so his glucose levels have become erratic and medication increased/adjusted, satisfactorily. Although GP said he may eventually have to go on to insulin injections as he was on almost the maximum tablets. He was on a strict diabetic diet. His last three HBA1c test results were 8.0, 8.7 (another med added) 6.8.

He has been in hospital some months now following a fracture. When paramedics arrived they did a glucose test showing 19, about 2 hours later in A&E down to 12. This happened before his evening meal on a Tuesday, surgery was to be on the Wednesday afternoon but was cancelled then took place the Thursday morning. I am guessing he did have one meal on the Wednesday after surgery was cancelled, but from Tuesday lunchtime then afternoon snack until surgery Thursday morning, very little food intake.

I don't know what glucose levels were after surgery (obtaining information is like trying to get blood out of a stone) but at some point when I asked a nurse she smilingly told me his levels were normal - AND THEY HAD STOPPED GIVING HIM HIS TABLETS!!!

Not surprisingly soon afterwards his glucose levels rose and to cut a long (six weeks) story short, were very erratic, ranging between the mid-teens and at times into the 20's. The highest I was told, when I asked, was 28. He was back on tablets but when it rose, receiving insulin injections. On one occasion while I was visiting and the nurse said the earlier one had had no effect.

Three days before due to be moved to another hospital for rehabilitation a diabetic specialist said that he was stable at 10. The insulin injections had been stopped and his tablet medication altered. For some time after the move of hospital I regularly asked how his blood glucose levels were and was always told "fine" and alright". I had no reason to think otherwise and eventually stopped asking. He was regaining lost weight, looking well.

Recently over a two week period I thought he looked unwell, and then one Monday when I visited I was alarmed by how unwell he looked. No doctor available, nurses seemed unconcerned. Next morning I phoned and was told he was "worse than yesterday". He had become ill after I visited.

When I next saw him he was in bed, very ill and out of it, had lost much weight (and a slim man), arms skin and bone. I asked to speak to a doctor who told me his glucose levels had steadily been rising since he arrived at this hospital. Through the teens, into the twenties and were now in the thirties. I was horrified.

They had stopped his tablets and he was now on insulin and would be insulin dependent for the remainder of his life. That was almost 2 weeks ago. Glucose levels came down into the teens, before breakfast seems to be holding at 12+ - 13+. occasionally also before bedtime. But increasing into the teens again and very soon afterwards once again into the 20s.

I don't know anything about insulin injections but my understanding is that they started them with four injections per day of 4, then changed this to 3 daily injections of 6, and now three daily of 8.

A consultant spoke to me last week and said he was satisfied with 12+ before breakfast but would like to get the higher levels down to 15. I said 12 - 15 is still high, he replied for a man of my relative's age it is acceptable, the brain needs glucose, which I do realise.

The consultant is only there once a week, there will be a review when he appears this week.

My relative is supposed to be on a diabetic diet but I have strong doubts. I have asked numerous times and am told yes, he is on a diabetic diet.... He has two three course meals a day, lunch and evening meal, both include puddings. I have repeatedly asked them to be stopped but told they are "sugar-free". There are other elderly patients in the hospital with diabetes who as far as I know do not have problems.

So why does my relative have problems? Why are the insulin injections not bringing about a stable condition? Is he insulin resistant and if so why? Could it be something to do with metabolism? Or the meals? As I said, at home he was on a strict diabetic diet.

Any feedback would be greatly appreciated.

Thank you for listening.

Gilzil27
 
You have asked a lot of questions there, Gilzil, and I'm afraid I'm not qualified to answer them.

You do seem to be asking all the right questions of the hospital, however.

First - stress - the fracture and then the surgery, even the stay in hospital - can cause glucose levels to rise.

For the rest of your queries, about stopping/starting medication, wrong diet etc, I think in your position I would put my worries in writing to the hospital, copied to the PCT and his GP, asking for details of treatment and diet and justification for same. Outline your concerns just as you have here.

If you're a very close relative, or if you have (eg) power of attorney, even if it's not activated yet, I think you have every reason to ask your questions and to be given answers. You could even go to the CAB and ask about having him made a Ward of Court, for his own safety. You could also tell the hospital you're going to do this - it might shake them up a bit. But that's last resort, unless things get really desperate - you need to talk to someone higher than ward level first. Maybe go through his GP.

Good luck!

Viv 8)
 
Yes, Viv, a lot of questions. Thanks for your response and suggestions. I am a close rlative and do have Power of Attorney for both Finances and Welfare. I naively thought this would mean I would be kept informed but I am not told anything unless I ask, and then mainly from staff-nurses. I have voiced my concerns to them, particularly about diet, but..... :roll:

I thought the insulin injections would have lowered the glucose levels by now, started about two weeks ago, but perhaps it takes time. I don't know.

I also wonder if they did come down to a range of 12 - 15 if that really is acceptable for a man of 78.

At the moment, I'd be happy if they did come down to that range, and stayed there. It would be a big improvement on spiralling into the 20s. At least no longer in the 30s, but 20s is high.

Thanks again for replying. Also the good luck, here's to some of that. :cry:

Gilzil
 
If you have Power of Attorney for welfare it is as if you are, in fact, the person in question - you should be kept informed at all times, just as you would expect them to keep you informed if it was you they were treating. Treatment should be explained to you and discussed with you.

They are allowing the blood sugar levels to go too high - and as for stopping his medication . . . :shock:

In my opinion - though I am no lawyer - you should get in touch immediately with someone more senior at the hospital or PCT, wave the Power of Attorney at them and demand some action. Check with the Citizens' Advice Bureau as to exactly what your powers and reponsibilities are - or the solicitor who drew up the Power of Attorney.

Viv 8)
 
viviennem said:
If you have Power of Attorney for welfare it is as if you are, in fact, the person in question - you should be kept informed at all times, just as you would expect them to keep you informed if it was you they were treating. Treatment should be explained to you and discussed with you.
Thanks again Viv. Yes I know this, but it is not happening and I'm so weary of tryng and trying to get through to them concerning information. It feels a waste of time and money to have bothered with POA. Although I have required it concerning Finances, but not without problems as banks seem to have a poor understanding of POA.

Visiting today, will see what transpires...... and hoping the glucose levels have come down a bit.

Gilzil
 
You have my sympathies - I am a Deputy for the Court of Protection for one of my relatives.

It took 2 years to get that through - meanwhile paying all my own expenses and some of hers - and then opening a Deputy's bank account was an experience in itself! If it hadn't been that I'd worked in a bank 40 years ago :shock: and knew something of what I was talking about, I'd have got nowhere.

Then they tried to put Business Charges on to the account. I won that one, too! :twisted:

My advice to anyone is - appoint someone to hold power of attorney while you can, then all that has to happen if you are suddenly very ill is to activate it. Glaciers move faster than the COurt of Protection.

Viv 8)
 
To me, I would be asking how you could be getting your relative out of there.....and getting help to do so!!!!!

I would honestly be doing everything I possibkly could to get realitve home asap. It is only my opinion but, even home help meals are better for diabetics than hospital foods on offer. Also, at least a district nurse should be calling if necessary at a standard time each day to give insulin, and it seem to me that you know what are acceptable levels of BG control!!!!

I hope that you can get your relative out asap.....
 
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