GP didn't diagnose hyperglycemia

vrealdeal

Newbie
Messages
1
Sorry if this is in the wrong thread. From reading this website about the condition I believe I had reactive hyperglycemia as I was working out at the gym every day for about 3 years but I had gradually increased my intake of mass gainers and food to bulk up a bit. I was burning about 1,000 calories per day so needed to top up. I believe the increase in carbs which was quite substantial resulted in me getting this condition. It started when I began to feel a little dizzy and anxious one day for what I believed was no apparent reason, a fight or flight sensation. Quite terrifying. I didn't know what it was and the condition seemed to occur without any prior warning. I could be sitting at my desk working and suddenly I would jump up in terror and found myself dizzy, like losing power and panicking over what appeared to be my body having a serious attack of something which at the time I did not know. After a short few minutes of the attack I would be okay. At the time of the attacks I took a blood sugar readings (got a meter thinking I was diabetic) and it varied from 1.9, 2.5, 3.9. All below what I know to be approx 4.5 as average for non-diabetic. Anyhow, after lots of tests on heart and scans nothing was found. My GP failed to find my problem and I researched on the web day and night and came to the conclusion of it being this condition. I don't train at the gym anymore and my diet is healthy and varied, with lots of fresh food and mainly water as drink. I do moderate exercise. The hyperglycemia has subsided to virtually zero and I don't suffer the panic attacks anymore. I used to wake up in the night with heart palpitations but not anymore. I can go for hours now without eating and feel okay whereas before I would have a problem after 3 hours where I'd have that scared feeling again. I would say I am 99.99% okay now. No problems for the last 2 years. My GP has concluded all tests. The mind terror though from this condition, especially when my GP couldn't diagnose it was extremely shocking to my well-being. I wouldn't wish it upon anyone. I know I shouldn't confuse my Google search with a doctors medical degree but I was desperate and needed an answer.
 

Lamont D

Oracle
Messages
15,939
Type of diabetes
Reactive hypoglycemia
Treatment type
I do not have diabetes
Sorry if this is in the wrong thread. From reading this website about the condition I believe I had reactive hyperglycemia as I was working out at the gym every day for about 3 years but I had gradually increased my intake of mass gainers and food to bulk up a bit. I was burning about 1,000 calories per day so needed to top up. I believe the increase in carbs which was quite substantial resulted in me getting this condition. It started when I began to feel a little dizzy and anxious one day for what I believed was no apparent reason, a fight or flight sensation. Quite terrifying. I didn't know what it was and the condition seemed to occur without any prior warning. I could be sitting at my desk working and suddenly I would jump up in terror and found myself dizzy, like losing power and panicking over what appeared to be my body having a serious attack of something which at the time I did not know. After a short few minutes of the attack I would be okay. At the time of the attacks I took a blood sugar readings (got a meter thinking I was diabetic) and it varied from 1.9, 2.5, 3.9. All below what I know to be approx 4.5 as average for non-diabetic. Anyhow, after lots of tests on heart and scans nothing was found. My GP failed to find my problem and I researched on the web day and night and came to the conclusion of it being this condition. I don't train at the gym anymore and my diet is healthy and varied, with lots of fresh food and mainly water as drink. I do moderate exercise. The hyperglycemia has subsided to virtually zero and I don't suffer the panic attacks anymore. I used to wake up in the night with heart palpitations but not anymore. I can go for hours now without eating and feel okay whereas before I would have a problem after 3 hours where I'd have that scared feeling again. I would say I am 99.99% okay now. No problems for the last 2 years. My GP has concluded all tests. The mind terror though from this condition, especially when my GP couldn't diagnose it was extremely shocking to my well-being. I wouldn't wish it upon anyone. I know I shouldn't confuse my Google search with a doctors medical degree but I was desperate and needed an answer.

Hi and welcome to the forum.
I have reactive hypoglycaemia, and my sympathies for all the problems you are struggling with. I went through similar!
Firstly, I will tag @Brunneria to give you a link to the reactive hypoglycaemia forum, and to move this post there. Do have a read and see if things ring a bell!
Next, because we cannot diagnose you, you will still need to see a GP and try and get a referral to a specialist endocrinologist, who can give you the appropriate tests for diagnosis. A GP has usually limited knowledge and access to the tests necessary.
It took me over a decade to get a definitive diagnosis, so keep on fighting.
If you do have a blood glucose monitor it will give you so much information as to what happens when you eat.
What does your dietary intake look like?
What medical advice about diet have you had?
What tests did your GP give you?

Sorry for the questions, but it may help with advice.

Keep safe
 

HSSS

Expert
Messages
7,473
Type of diabetes
Type 2
Treatment type
Diet only
Did you simultaneously (with the improvement to whatever it is) stop the carb loading associated with the gym? High carb imputes in reactive hypoglycaemia typically equate to higher over response and lower rebound bgl. If your carb input is more consistent then less chance of the overshoot.

from my reading extended glucose tolerance testing is the usual diagnostic tool. Did they do this? It’s a fairly uncommon condition and sadly not all drs consider this.
 

Antje77

Oracle
Retired Moderator
Messages
19,464
Type of diabetes
LADA
Treatment type
Insulin
Firstly, I will tag @Brunneria to give you a link to the reactive hypoglycaemia forum, and to move this post there. Do have a read and see if things ring a bell!
Hi, @vrealdeal , and welcome to the forum!
Here's our section dedicated to our reactive hypoglycemia subforum: https://www.diabetes.co.uk/forum/category/reactive-hypoglycemia.70/
If you want to have your thread moved there, just say so in a reaction and one of us will move it :) . But if you chose the Low carb diet forum because you changed your diet to a low carb one (you don't mention what diet changes you made) it's fine to stay here as well.

Just a little thing: You seem to have the hyperglycemia (which is high blood glucose) and the hypoglycemia (low blood glucose) mixed up ;)