Thank you to everyone who responded to this thread, and to Ian for making it a sticky thread.
I'm using some of the examples in an email to the appropriate people and will report back on how I get on.
In the meantime, do please continue to post here if you have been told not to test, and whatever variant of 'it will make you depressed/it will hurt your fingers/you will get an infection/it doesn't work/etc' you were told by HCPs.
This issue doesn't apply to me as a t1 (though I did get my script stopped as I was testing 'too much', this is in another post), BUT my mum was t2, and had other health issues and was told to watch and test as higher BG could indicate other underlying problems. She didn't though, stubborn as she was, and now her death certificate shows a simple UTI as cause of death - with diabetes as a contributing cause. Basically, she may have survived or not even contracted said infection without the diabetes. And if she had tested, she might, just might, have realised something else was going on and got help. This may sound like scaremongering, for which I am sorry. The actual point I am trying to make is that diabetes is dangerous, be it t1 2 or otherwise, treated by insulin, tablets or diet, you need to test regularly to see what is happening. And another thing I'd that simple infections can cause DKA you need to know when to seek help and the only way of doing this is by testing, trust me, I found that one out the hard way (simple stomach bug, felt too ill to eat, test or medicate, cost a nice stay in hospital on a drip)
Yes I was told this today that for type 2s it's totally unnecessary. I'm still going to buy a monitor and do it though!This is not about whether the NHS should, or can afford to, provide test strips on a permanent or temporary basis to non-T1 diabetics. Having read #EveryCloud ’s post, and so many more like it over the years on this forum, I wonder whether we could gather together examples of Healthcare Professionals who have told people that it is either unnecessary or just plain wrong to test their blood sugars. It is a scandal that needs highlighting.
While I was still on gliclazide My practice nurse insisted that DVLA were totally wrong and I did not need to test before driving.My husband has T2 since 1998 and went on insulin in April. We told the DN that we had been testing out meals and she said that was very extreme and testing only needed to be done 3 or 4 times a week despite that my husband drives on a regular basis and the DVLA advise testing before driving. We are finding it hard enough getting any kind of balance with insulin and find testing really useful. Needless to say we are continuing to test.
That's atrocious, hope you have put a complaint in to you GPI had my prescription withdrawn without notice and didn't find out until I collected the prescription. This meant that I could not test for 2 days until I got them re-instated. Result? DVLA says that I didn't have 3 months readings on my meter and revoked my LGV licence. I am now having to fight them through the courts.
That is one of the daftest yet. Who told you that? You have diabetes so you are ill.I was told I only need to test when I am ill. I test as often as I feel the need to-I want to know what is going on to keep myself healthy.
SD codefree meter and strips work out to be a lot cheaper to use.I've been told I don't "need" to test 7 times a day, just keep an eye out for odd things.
I think GP was being cautious that I don't get too obsessive, or disheartened by the occasional bad set of readings.
Well, that's very thoughtful of him, and he is supplying enough strips for a modest testing regime, but I have a more complex situation and have noticed patterns that won't appear with one or two tests a day.
So, whilst I can afford it, I will splash out on a private pot of strips for my own edification. He'll supply enough for 2-3 a day - good on him, but I will supply the rest until we know what's going on.
My body, my data, my prognosis.
My DN told me only to test when I as ill, which I strongly disagree with and didn't take any notice, so I agree with you there. However, I'm sorry but I have to disagree that being diabetic does not make you ill, it just means you have an underlying health condition that you must pay attention to, otherwise you will become ill. I am certainly not an ill person, but that's because I test regularly so i know what to do to keep myself well.That is one of the daftest yet. Who told you that? You have diabetes so you are ill.
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