1. Get the Diabetes Forum App for your phone - available on iOS and Android.
    Dismiss Notice
  2. Guest, we'd love to know what you think about the forum! Take the Diabetes Forum Survey 2022 »
    Dismiss Notice
  3. Diabetes Forum should not be used in an emergency and does not replace your healthcare professional relationship. Posts can be seen by the public.
    Dismiss Notice
Dismiss Notice
Find support, ask questions and share your experiences. Join the community »

Have you been told not to test your blood sugars?

Discussion in 'Ask A Question' started by desidiabulum, Oct 30, 2014.

  1. Susiespearish

    Susiespearish Type 2 · Well-Known Member

    Messages:
    358
    Likes Received:
    449
    Trophy Points:
    103
    Here here ....I'd do anything to avoid insulin ! It was five hours after I'd eaten and I've tested with that bread a while back but as you say ,anythings worth a try .
     
  2. cold ethyl

    cold ethyl Type 2 · Well-Known Member

    Messages:
    3,211
    Likes Received:
    10,737
    Trophy Points:
    178
    Can they do anything about the tumour if that is what it is? Obviously you can go on insulin but that isn't really addressing the underlying issue which is what seems to be pushing your levels out of control.
     
  3. Susiespearish

    Susiespearish Type 2 · Well-Known Member

    Messages:
    358
    Likes Received:
    449
    Trophy Points:
    103
    I've no idea Cold Ethyl .I see him again at the end of this months so hopefully I'll have more answers .I know they wont operate due to my BP .guess i left it all too late to lose weight and take myself in hand .I don't think taking endless meds helps either .It has to effect your liver .I'm now on 13 tabs a day for heart,BP ect .Fed up of it all .
     
  4. AndBreathe

    AndBreathe I reversed my Type 2 · Master
    Retired Moderator

    Messages:
    10,114
    Likes Received:
    16,094
    Trophy Points:
    278
    How much weight have you lost? There does appear to be a percentage 15-20% which is considered life-changing (probably in more than one way!!). And, has your weight loss helped your hypertension at all?
     
  5. Susiespearish

    Susiespearish Type 2 · Well-Known Member

    Messages:
    358
    Likes Received:
    449
    Trophy Points:
    103
    I've lost just under three stones Andbreathe .i was 18st 2 and now down to 15st 7 ....still more to go but I am 5ft 9" .i thought that would make a huge difference to my BG but it hasn't which is why the doc is looking for a cause.
     
  6. AndBreathe

    AndBreathe I reversed my Type 2 · Master
    Retired Moderator

    Messages:
    10,114
    Likes Received:
    16,094
    Trophy Points:
    278
    Well, we can be certain it can't be doing it any harm! Well done.
     
    • Like Like x 2
  7. cold ethyl

    cold ethyl Type 2 · Well-Known Member

    Messages:
    3,211
    Likes Received:
    10,737
    Trophy Points:
    178
    I can well I imagine.fingers crossed they can do something. The weight loss should help your BP though I don't imagine an adrenal tumour will be doing that any favours either.
     
    • Like Like x 2
  8. this is too difficult two

    this is too difficult two Don't have diabetes · Well-Known Member

    Messages:
    852
    Likes Received:
    779
    Trophy Points:
    133
    Interesting. We have thousands of people who test often here. Have any of you had an infection through it?
     
  9. billiegoat

    billiegoat Type 2 · Newbie

    Messages:
    1
    Likes Received:
    6
    Trophy Points:
    43
    I was put on treatment metformin yesterday and told by the nurse I do not need to test. It was because of the lack of testing that my sugars crept up and I am now on treatment, if I could have afforded tests I would have been able to control better. disgraceful decision
     
    • Like Like x 6
  10. Susiespearish

    Susiespearish Type 2 · Well-Known Member

    Messages:
    358
    Likes Received:
    449
    Trophy Points:
    103
    I personally feel this is just the latest bandwagon they are jumping on.I see the FDA is trying to reclassify lancets at the moment too but no one can deny there is a risk every time we prick our skin .Clearly the risk should be minimal .Probably some office bod has "risk assessed " it due the huge rise in Hep B and C lately .
     
    • Like Like x 2
  11. phoenix

    phoenix Type 1 · Expert

    Messages:
    5,672
    Likes Received:
    3,675
    Trophy Points:
    178
    There's no risk though from normal home use. You don't or shouldn't share your finger pricker (people who 'offer; to test friends and colleagues blood for them should though be aware of the risks)
    There have been several cases of Hep B caused by bad practice in glucose monitoring but this is in hospitals and in care homes (mainly in the US)
    It has been transmitted by the use of finger pricking devices that are designed to be used by one person being used for all patients ie they load a new lancet but there is still some blood on the device. (here's one such case :http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3530571/ )
    And here is a case where they were using the wrong lancet device at a 'screening ' event just this year.
    http://kstp.com/article/stories/s3455571.shtml
    .
    There is certainly MHRA guidance on this going back to 2006 in the UK so it shouldn't happen in the UK but who knows what goes on in care homes? I know my hospital in France uses horribly fierce gadgets but they are single use so I'll forgive them that!

    There occasional infections from self monitoring but they are rare enough for case study papers to be written about them.(and all of the 4 I found involved people with either very poor control or another condition that made them susceptible to infection)
    If there were frequent infections they would surely be mentioned on forums like this . Not only do many people test quite a lot but lots admit to changing lancets infrequently. ( on some forums they make a joke about it being World diabetes day or Groundhog day or St Swithun's and time to do the annual lancet change!)
     
    • Like Like x 4
  12. Susiespearish

    Susiespearish Type 2 · Well-Known Member

    Messages:
    358
    Likes Received:
    449
    Trophy Points:
    103
    I'm wouldn't disagree with you on any of those points but felt the doctor had a point when suggesting that endless testing wasn't the answer whatever excuse he used to refuse more strips .I couldn't argue with him at the time as I hadn't done more research and to be honest I'm managing with the strips they give me and if I run out some months It really doesn't change my BG .I did all my food testing months ago so know what spikes me .I was given Ketostix so I can check that if I'm worried.
     
  13. pavlovsdog

    pavlovsdog Type 2 · Well-Known Member

    Messages:
    907
    Likes Received:
    3,809
    Trophy Points:
    158
    @billiegoat same happened to me, and it was increased to 2 grams/day, despite me having terrible side effects from them. When that didn't work, my GP just kept adding medication so I also ended up on Gliclizide and Sitagliptin. I was only referred to the Specialist Diabetes Team when I was admitted to hospital for surgery - apparently, they had asked my GP on two previous occasions to refer me. In a way, being on insulin has worked in my favour, as they stopped the Gliclizide straight away, and when I told them the problems I was having with Metformin, they stopped that too. It has also helped me comes to terms with having diabetes, as I have been in denial for the last few years. Also, I am now prescribed a blood testing kit, which my GP denied me, and I have found Diabetes UK forum and learned about LCHF diet, which has worked wonders!
     
    • Like Like x 3
  14. alicemason

    alicemason Type 2 · Active Member

    Messages:
    30
    Likes Received:
    18
    Trophy Points:
    48
    I was told testing was unnecessary until I told her I wanted to see what foods sent ny sugar levels high. She then said in that case she could give me a monitor and I can have strips and lancets on repeat prescription . If I hadn't pushed for it I wouldnt have got it
     
    • Like Like x 2
  15. alicemason

    alicemason Type 2 · Active Member

    Messages:
    30
    Likes Received:
    18
    Trophy Points:
    48
    Can I just ask . It may sound silly but is it normal to have pains in my feet and legs. The pains in my feet feel like iv got broken bones in them and I get lije electric shocks in my feet and legs.
     
  16. Brunneria

    Brunneria Other · Guru
    Retired Moderator

    Messages:
    21,807
    Likes Received:
    35,058
    Trophy Points:
    298
    You've just described how some people feel when they have diabetic neuropathy.

    But there are other reasons for this sensations too, including vit B12 deficiency.

    None of us can diagnose on here, of course, so I suggest you read up online about both conditions and then consult your doctor for treatment or referral.

    If you do get diagnosed with either condition then there are members on this forum who are in the same boat, so you won't be alone!
     
  17. alicemason

    alicemason Type 2 · Active Member

    Messages:
    30
    Likes Received:
    18
    Trophy Points:
    48
    Thankyou so much
     
    • Like Like x 3
  18. Susiespearish

    Susiespearish Type 2 · Well-Known Member

    Messages:
    358
    Likes Received:
    449
    Trophy Points:
    103
    That was exactly what happened to me .I even got extra for a couple of months so i could test my food .
     
  19. Yorksman

    Yorksman Type 2 · Well-Known Member

    Messages:
    2,446
    Likes Received:
    1,908
    Trophy Points:
    178
    I was told by my GP on diagnosis that it would make my fingers hurt and by my DN that I would only confuse myself. Eventually she relented and gave me a prescription for 25 strips per month and told me not to eat to my meter. She and the GP were moved out of the practice and my new GP said 25 was not enough and doubled my prescription to 50 per month. The new DN said I didn't need to test at all.

    Clearly they are not all singing from the same hymn sheet.
     
    • Like Like x 4
  20. desidiabulum

    desidiabulum · Well-Known Member

    Messages:
    696
    Likes Received:
    767
    Trophy Points:
    113
    Thank you to everyone who responded to this thread, and to Ian for making it a sticky thread.
    I'm using some of the examples in an email to the appropriate people and will report back on how I get on.
    In the meantime, do please continue to post here if you have been told not to test, and whatever variant of 'it will make you depressed/it will hurt your fingers/you will get an infection/it doesn't work/etc' you were told by HCPs.
     
    • Like Like x 2
  • Meet the Community

    Find support, connect with others, ask questions and share your experiences with people with diabetes, their carers and family.

    Did you know: 7 out of 10 people improve their understanding of diabetes within 6 months of being a Diabetes Forum member. Get the Diabetes Forum App and stay connected on iOS and Android

    Grab the app!
  • Tweet with us

  • Like us on Facebook